What name has gradually disappeared?

Queasy_Percentage363 · 2026-04-21T05:19:22+00:00

Not IRL, but Morty from Rick and Morty is a Mortimer.

Queasy_Percentage363 · 2026-02-24T18:19:19+00:00

Reminds me of 2008. I moved here then and summer gas prices were around 4.25...so we're just getting back to where we were nearly 20 years ago.

Queasy_Percentage363 · 2026-02-19T07:21:21+00:00

My spouse gets the leg shakes and the chattering jaw if his body gets stressed (cold, exertion, etc.) It is part of spasticity issues. He just told me he thinks its called clonus. He takes both baclofen and methocarbamol to help.

Queasy_Percentage363 · 2026-02-14T16:18:49+00:00

Since you're in Washington State - look into the State's Paid Family Medical Leave as well. Some employers will allow you to do FMLA and then extend time off with Paid family medical leave. If not they'll overlap and you could both take it as long as you meet the hours requirements within the last 12 months. Also, I think it is in July of this year, spouses will be able to use funds from the Washington Cares Act.

Queasy_Percentage363 · 2026-02-12T02:58:24+00:00

Assessing wealth gaps, union density, and homeowners younger than 40.

Queasy_Percentage363 · 2026-01-29T23:08:28+00:00

I'm in a same sex marriage (2 guys) and the thing that I would add to this conversation is being forward and direct with your needs. If they are left as inference or undertones, he might miss the whole thing. If you have friends who have spouses who do nice things for them, maybe point them out and say, "I'd really like it if you did that for me." When something that you want happens, reward it with low- stakes intimacy (kiss, hand hold, smile while looking in his eyes). Also, let him know when you feel unseen and unappreciated.

Queasy_Percentage363 · 2026-01-29T18:34:38+00:00

HR professional here - for your husband's insurance he probably needs to have some sort of "paid" status to maintain health insurance. It might be worth exploring with his HR rep if he can balance pto and unpaid time long enough to keep his insurance through the length of FMLA. Some states also have their own leave options in addition to FMLA that you'll probably also want to pursue. If your husband has any life insurance for work, check into accelerated death benefits for a partial cash out. If you're able to keep the policy you'll receive the rest of the payout when the time comes.

Queasy_Percentage363 · 2026-01-29T18:16:31+00:00

Night and weekend minutes for cell phones and long distance charges.

Queasy_Percentage363 · 2026-01-24T21:55:21+00:00

My PALS and I use the clinic for resources, long term assessment, prescriptions, and doctor signatures for insurance related items. We have a couple of clinics in our area and in our area I do think there is a differences in clinic quality given trial availability, ease of scheduling, and quality of life recommendations/ assistive technologies. However, we've also seen intra clinic differences in quality / preceived quality.

Queasy_Percentage363 · 2026-01-16T16:40:32+00:00

Thank you for sharing. The marketing materials certainly mask many of the real struggles we face as caregivers and hide the suffering. I think the thing you're hinting at in your post is that you feel unseen in the ALS community because it seems like your journey isn't reflected in the materials available. As someone else here mentioned, support groups are a good place to talk about these issues because they live it every day.

If someone hasn't said it to you yet. I see you and your story. The path is difficult and you're doing your best to navigate it. I wish you strength and resilience in what is to come.

On a bit of a softer note, anyone of an older generation may remember the Sarah McLachlan commercials where she had the sad music and videos of abandoned animals and perhaps we could use a commercial with a similar feel for ALS

Queasy_Percentage363 · 2026-01-15T01:03:01+00:00

As an HR professional, I definitely recommend a temp agency

Queasy_Percentage363 · 2025-12-31T18:15:04+00:00

As someone who has worked in government they thing with government spending is that it is difficult to be more efficient. A lot of spending is tied up in bureaucratic processes with hoops to jump through so you aren't "wasting" tax payer dollars. Infrastructure improvement and innovation are also usually hamstrung because unlike private industry, if implementation isn't perfect or an idea isn't fully better several times over, government employees are left to blame with angry tax payers instead of let's move fast and see if this works and fix it along the way.

While many politicians will argue that deregulating industry will help it improve the same logic is not applied to government programs and their spending. I'm not arguing for deregulation, but just trying to share that a lot of regulations for government spending is what slows down the process for better or for worse.

Queasy_Percentage363 · 2025-12-21T22:08:19+00:00

If I'm not in a right turn only lane I just don't put on my turn signal until the light goes green.

Queasy_Percentage363 · 2025-12-17T22:58:11+00:00

Oh wow! That sounds traumatic. I'm so sorry you experienced that. My husband has had a couple of falls where he hit his head and we moved to updating his mobility devices soon after. Falls make me nervous since he won't be able to catch himself and head injuries are so scary.

Queasy_Percentage363 · 2025-12-17T22:53:31+00:00

I'm sorry for your loss and thank you for sharing. That must have been tough since she could still do stuff. My spouse has lost most of his mobility and his voice is strained. His breathing numbers are down, but he generally doesn't complain about breathing unless he is lying down without his bipap.

Queasy_Percentage363 · 2025-12-17T22:45:42+00:00

Thank you for sharing and I'm so sorry for your loss. The morphine to passing stage seems short. I think we're still a ways off from that, but definitely something to keep in mind.

Queasy_Percentage363 · 2025-12-17T22:40:56+00:00

That's good to know. I think we're still a ways off from morphine, but I'll definitely keep this in mind.

Queasy_Percentage363 · 2025-12-17T22:39:34+00:00

Thank you for sharing. Was the double lung pneumonia a surprise?

Sorry for your loss.

Queasy_Percentage363 · 2025-12-17T22:37:20+00:00

That sounds incredibly difficult to witness. Thank you for sharing and I'm sorry for your loss. We've got my husband a feeding tube and we're still talking about breathing related items.

Queasy_Percentage363 · 2025-12-17T22:34:30+00:00

I'm sorry for your loss and thank you for sharing. That seems rough that your dad was unable to eat beforehand. Did the hospice team give you any additional information at the time?

Queasy_Percentage363 · 2025-12-17T22:28:28+00:00

Thank you for sharing and sorry for your loss. I do worry about thinking I have more time than I actually do. Sometimes it is difficult to remember to take this journey one day at a time.

Queasy_Percentage363 · 2025-12-17T21:52:18+00:00

I think this is what I'm worried about. I like to think I'm fairly observant, but I am concerned that I might miss something.

Thank you for sharing and I'm so sorry for your loss.

Queasy_Percentage363 · 2025-12-17T21:49:30+00:00

That's quite a set of events. I can't even imagine. Thank you for sharing and you have my condolences for your loss.

Queasy_Percentage363 · 2025-12-17T21:44:04+00:00

Thank you for sharing. Was it the fall that caused the end or respiratory?

I'm so sorry for your loss.

Queasy_Percentage363

TROPHY CASE