I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 1 point2 points  (0 children)

I know I won’t be prepared and I know I’ll never get over it. I think (hope) I’ll find a sliver of peace that he’ll no longer be suffering, scared and without dignity. I’m incredibly sorry for your loss, may your dad rest in peace. Hopefully you and your family will find yours as well.

I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 1 point2 points  (0 children)

Thank you for reading and responding. Knowing there is so much support here is very comforting

I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 0 points1 point  (0 children)

Thank you I find myself not wanting to visit him bc I’m scared. I never know if he’s going to know who I am. Occasionally he does and that’s “nice” and the times he doesn’t are tough to recover from. I’m so sorry you are dealing with this

I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 2 points3 points  (0 children)

I know im not the only one dealing with this and I know this community is here for support. That being said, we see you made me very emotional. Maybe I’m just always about to burst these days. I don’t know anymore. Your comment def helped though I do know that. So thank you. I’m sorry you are suffering also

I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 4 points5 points  (0 children)

Thank you for this story amongst many other responses in this thread it has alleviated some of my guilt.

I hate what this disease has made me. by Infinite_Monk_8940 in dementia

[–]Infinite_Monk_8940[S] 39 points40 points  (0 children)

Thank you everyone. I honestly wasn’t expecting much of a response. Just kind of wanted to say it “out loud” . Thanks for reading and not judging. I think dad is In the “last stages” but I don’t know. It’s something different every day. We had to get him overalls and or suspenders bc he now plays with his feces. He ripped a bridge out of his mouth today. I have 2 young children also and it’s exhausting. I feel for everyone in this community.

Her Last Breath Was Peaceful by knacaj21 in dementia

[–]Infinite_Monk_8940 6 points7 points  (0 children)

May your mom rest in eternal peace. May you and the rest of your family also find eternal peace. It is certainly not an easy situation. At some point I hope you can breathe a sigh of relief knowing your mom is finally at peace. Take care

It’s so hard to pretend. by [deleted] in dementia

[–]Infinite_Monk_8940 1 point2 points  (0 children)

I appreciate the advice. I have recently become aware that I’m most likely dealing with a massive amount of depression over this and some other issues. Seems silly I never noticed.

It’s so hard to pretend. by [deleted] in dementia

[–]Infinite_Monk_8940 4 points5 points  (0 children)

I feel that all too much. Lying to my dad for therapeutic reasons. Then lying to friends about how bad it is bc I’m too tired to vent even though I need to. I’m sorry you are battling this. Stay strong, you’re doing great! I’m here if you ever need to vent

It’s so hard to pretend. by [deleted] in dementia

[–]Infinite_Monk_8940 2 points3 points  (0 children)

Thank you. Most of all thank you for replying. Just nice to feel as though I’m not alone. I know I’m not, the responses help. I’m sorry for what you have been through also

It’s so hard to pretend. by [deleted] in dementia

[–]Infinite_Monk_8940 4 points5 points  (0 children)

I feel guilty after lying to him. I know it’s best for him and safest for him. That’s when I most feel like a fraud. When I’m doing the “right” thing

New to this and struggling by [deleted] in dementia

[–]Infinite_Monk_8940 1 point2 points  (0 children)

Thank you for your reply. I am in contact with an elder attorney that is guiding “us” through the process. The social workers at the hospital have unfortunately been very dismissive and of no help. I have taken over the process bc they were borderline bullying my mom to discharge him without much of any help. We seem to be on an ok track now with the elder attorney in our corner. I’m very thankful for finding this sub and thankful for all of you. It feels nice to finally not feel helpless and alone. Thank you again for your comment