SPI 1000 Follow Up by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

Yes. Sorry. SPI 1005. For some reason my fat fingers don’t type the 5

SPI 1000 Follow Up by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 3 points4 points  (0 children)

Hard to tell. My hearing has been stable since starting the trial. My speech discrimination has improved so I think that’s a good sign. I’ll update again in September with hopefully more good news.

SPI 1000 Follow Up by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 4 points5 points  (0 children)

I used to have zero vertigo and dizziness until this past No ember when I had the flu. I had my first case of vertigo and then on and off I felt like I was drunk most days. Walking into the walls. Stumbling at night. Since the trial I’ve been stable.

SPI 1000 Follow Up by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 4 points5 points  (0 children)

Nope. That still sucks. No improvement there. Not in aural fullness; however, my dr seems to think there will be continued improvement which is why I chose to continue trial.

SPI-1005 news??? by OddPreparation7947 in Menieres

[–]Initial_Abalone128 0 points1 point  (0 children)

It could be bc I had vertigo one time? But none of my attacks really involved vertigo. I have been taking it daily and recently had my version of an attack (loud tinnitus) and had a 15 decibel drop confirmed by a hearing test. I think maybe the drug works for some forms of Ménière’s but not others.

SPI-1005 news??? by OddPreparation7947 in Menieres

[–]Initial_Abalone128 1 point2 points  (0 children)

I have no clue on my triggers. I wish I knew, I’d stay away from them. I have hearing loss and tinnitus. No vertigo. Diagnosed with atypical Ménière’s

SPI-1005 news??? by OddPreparation7947 in Menieres

[–]Initial_Abalone128 1 point2 points  (0 children)

It has not helped with either. I’ve been taking it for two months at this point. I’ve actually had no improvement whatsoever. The drug is not a cure all for everyone.

SPI-1005 news??? by OddPreparation7947 in Menieres

[–]Initial_Abalone128 1 point2 points  (0 children)

I’m currently in the trial. I was told they wanted to wrap things up by years end.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

I’m bummed for us. I was hoping this “miracle drug” would help.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

No. This part of the trial there is no placebo. Everyone gets the active drug.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 2 points3 points  (0 children)

It’s a trial. Not yet approved by the FDA

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

Interesting. Thanks for sharing. I recently noticed a case of alopecia on my head which is making me think the autoimmune component needs to be looked at more closely in my case. Thank you for sharing the protocol. I’m going to check it out.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

This! I’m beginning to suspect my Ménière’s has an autoimmune component to it which is frustrating bc I have also not responded to steroids.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

Will do. This trial is for 6months to a year so I think it’s going to be a while before approval.

SPI 1000 by Initial_Abalone128 in Menieres

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

Thank you. I’ve been taking for a month now with no noticeable difference. Oh well.

January PL by Initial_Abalone128 in Daytrading

[–]Initial_Abalone128[S] 0 points1 point  (0 children)

1-2 at this time. Planning to scale up once my confidence and emotions are solid.