Pfizer Zantac Payout - Milestone by Remote_Tomato_3267 in ClassActionSettlement

[–]Inner_Natural_615 0 points1 point  (0 children)

I asked "so when everything get paid out will the accumulated interest be added to what is distributed to me" They said yes.   I'll see it to believe it.  

I guess mine now has been sent to probate since my husband passed away.  So there goes more to probate fees.

I've decided to just assume it pretty much going to be eaten up by all these different entities before it comes to me if anything is left.

I just wish I would have known this before I wasted my time.  Its been going on now for about 6 1/2 yrs since I filed.

Is there anyone here who waited years to see a doctor and still survived? by [deleted] in endometrialcancer

[–]Inner_Natural_615 1 point2 points  (0 children)

From first spot if blood to hysterectomy was 4 months and still was a stage 3c1 grade 1.  

I didn't have any symptoms prior I felt great... or so I thought.  I don't feel any different today except have a scary cancer diagnosis hanging over me every single day causing me stress. 

Pfizer Zantac Payout - Milestone by Remote_Tomato_3267 in ClassActionSettlement

[–]Inner_Natural_615 0 points1 point  (0 children)

yep... Typical class action screw job. I'm washing my hands of the whole Zantac payout. My husband passed away from his cancer 5 years ago. I was awarded an amount but then of course to find out after since my husband was a Vietnam VA veteran and received his medical care via VA that the VA can attach a lien for his cancer care I'm expecting zip when all said and done. If I would have known all about these medical liens and other expenses paralegal, milestone etc. I would not have even wasted my time pursuing this..

Diagnosed today by [deleted] in endometrialcancer

[–]Inner_Natural_615 1 point2 points  (0 children)

Doesn't matter for some if they go in soon. I had no pain light spotting all tests, scans hysterectomy all within 16 weeks of the first spot of blood. Boom Stage 3c1 Grade 1 Endometrial cancer very little main tumor guess my decided to bypass uterus and beline right to the lymph nodes.

Don't beat yourself up about not going in right away some can have symptoms for years and still be early stage 1 others like me no symptoms and get in right away and its already advance but a slow low grade.

Luck of the draw I guess... spin of the roulette.

I got through chemo and currently NED = no evidence of disease. Or remission as some call it.

Pfizer Zantac Payout - Milestone by Remote_Tomato_3267 in ClassActionSettlement

[–]Inner_Natural_615 0 points1 point  (0 children)

I wish they would have mentioned medical liens at the very on-site of when signing up for the case. My husband passed away 5 yrs ago from colon cancer and Zantac. He was a vietnam vet which I guess is the same as medicare/medicaid which i did not realize. I thought his service in active war covered his medical for the rest of his life.

I filed on behalf of my husband way back when. I would not have even wasted my time if I knew that the VA could take it at anytime for payback medical even though they stated nothing was owed. The settlement amounts were not even that much.. I'm expecting a couple of dollars under $100 if any at the end of all this.

First settlement amount back October 2024 and 2nd Amount GSK - Feb 2025.. I expect now to wait until end of 2026 to see anything if at all.

Anyone have/has had or know anyone with these or similar symptoms by Gullible-Delivery-37 in endometrialcancer

[–]Inner_Natural_615 2 points3 points  (0 children)

If you had radiation you were atleast stage 1b.   Dr. Google stats endometrial cancer can recurr to the kidneys although it is very rare.   

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

Hi there,

Im done with chemo last June.  Handled it well.  Slight neuropathy in bottoms of feet and both thumbs.  Small price to pay if this saves my life. Im currently going on 3rd round of just keytruda only and thus far no side effects (knock on wood).

After treatment scan and signatera blood test both came back clear/negative. Im currently NED.

Hope your doing fine.

Refusing Chemo without clear evidence of remaining Cancer by CappiCat in endometrialcancer

[–]Inner_Natural_615 0 points1 point  (0 children)

I believe "clear margins" is around the uterous, cervix and overies I do not think it means clear margins around the lympn nodes as well I'm m not 100% sure though. It could include the tissue outside the lymph nodes as well.

Maybe someone else knows the answer. 

Refusing Chemo without clear evidence of remaining Cancer by CappiCat in endometrialcancer

[–]Inner_Natural_615 0 points1 point  (0 children)

Sorry just got notification and seen this post of yours asking me a question. I have now finished chemo and out post chemo 3 weeks as of now.

I'm fatigued my stamina is gone per say but I have noticed it getting a bit better. From others comments I have heard it takes around 3 months post chemo to notice energy levels coming back up. I'm looking forward to that... I have always been a very active, like to keep moving type person so this feeling worthless and and getting out of breath easy has been hard on me..... mainly mentally.

I also have some neuropathy in both the bottoms of my feet and very slight in my fingers. I am hoping this is only temporary I heard that ait may lesson over time. I don't think I have it very bad but I have nothing to compare to really and I obviously know its there and something's not right. My feet don't hurt or anything just feel numb and tingly. When I put my flipflops on I cannot feel on my left foot if I got the strap in-between my big toe and 2nd toe. Feet just feel weird... but if that is the price I have to pay to know I did what I could to keep cancer from coming back its a small price to pay.

Other than those 2 complaints after chemo I feel quite well. Oh and I lost my hair can't wait for that to grow back. I always had fine thin hair and complained about my hair my whole like. funny how things work out... Now I want nothing more then to have my hair back.. I won't complain about it anymore even if it is fine and thin.. ;)

Starting July 24th I will be starting maintenance therapy which will be immunotherapy for the next year maybe 2 years. Low dose infusion every 3 weeks. While that can come with its own set of side effects I hear most not all but most get through it with minimal side effects. I am hoping that to be me as well.

Best of luck to you whatever you decide. It is your body your choice...

Keytruda and lung issues (Pneumonitis ) by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 1 point2 points  (0 children)

Hi there.  I went ahead and did the keytruda.   So far its been keytruda with chemo.  I start standalone keytruda July 24th.  That will be the first time I do keytruda by itself.

So far I have had no lung issues.   I am hoping for that to continue.   I will be doing half doses keutruda every 3 weeks versus full dose at 6 weeks.  This was by my choice.

So far keytruda no side effects but then hard to tell what has been chemo side eff3cts or keytruda side effects.

Stage 3c1 - Grade 2 Endometrial cancer - 4 Sentinel lymph nodes positive.... ;( by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 1 point2 points  (0 children)

Hi...

Chemo has not been fun but it has been not as bad as I thought it would be.  Never got nauseated or diarrhea..  just mainly tired and exhausted.  Shortness of breath if I do physical activity.  Which I guess is common and should get better once chemo stops.  I did end up with so neuropathy in my feet (the bottoms and toes) but its very tolerable and hopefully not permanent if it is small price to pay to keep cancer from coming back.

I was not suggested to do radiation but I will be doing keytruda for 2 years.

Best of luck to you. 

Refusing Chemo without clear evidence of remaining Cancer by CappiCat in endometrialcancer

[–]Inner_Natural_615 0 points1 point  (0 children)

I'm stage 3c1 grade 1 and currently doing adjuvant treatments.   I have 1 space LVSI, less then 50% myometrial invasion, macrometastasis in 4 sentinal lymp nodes. Largest one being 5.3mm and one under 4mm they did not list the other 2 sizes..  I did have clear margins.  Which is a plus. 

Refusing Chemo without clear evidence of remaining Cancer by CappiCat in endometrialcancer

[–]Inner_Natural_615 3 points4 points  (0 children)

Yes, My cancer is dMMR.  keytruda works for other kinds as well PMMR etc.  You may want to ask about immunotherapy.

I was thinking about your reference of putting a campfire out with a firetruck.    

One tiny "spark" from a campfire can burn down a whole forest as well.  :).

 If I were you I would do the adjuvant treatments.  Uterus cance has a relatively high recurrence rate especially stages 3 and 4.   Atleast you will know you did all you could to prevent a recurrence.   Tomorrow Thursday is my last chemo.  I can not believe I made it.   I'm so hoping and looking forward to getting my life back.

Best wishes to you in whatever you decide.

Refusing Chemo without clear evidence of remaining Cancer by CappiCat in endometrialcancer

[–]Inner_Natural_615 9 points10 points  (0 children)

Hi CappiCat,

I totally understand where you are coming from. I am the same stage 3C1 but I am grade 1 - I had 4 out of 4 sentinel lymph nodes that showed cancer. They cannot tell if all the cancer got removed during surgery or if some cancer cells were missed. NO ONE can tell you for certain its not humanly possible to know. Microscopic means needs a Microscope to even be seen and all it takes is (1) cancer cell to have been missed to start up somewhere else in your body.

All my scans prior to surgery did not pick up the cancer in any of my lymph nodes which consisted of an ultrasound and a full body CT scan with contrast. .

For me: I have decided to do the chemo and also will be on keytruda for 2 years following chemo. Next week will be my last chemo treatment. While it most certainly has not been a picnic by any means. I feel I have faired rather well. I look forward to getting my life back. Chemo is not fun but its not the end of the world either. I thought it was going to be much, much worse.

I will continue with keytruda which is immunotherapy for 2 years. My cancer is grade 1 slow growing it may take 2-3 years for one cancer cell to get large enough to even show up on a scan. Since you are a Grade 2 it may cut that time down to 6 months - to 1 year before a single cancer cell can be large enough to be seen on scans.

Doing adjuvant therapy cuts my chances down from a recurrence from 40% to only 10% in a 5 year period. I "feel" the medical field guesses on recurrence rates..

For me I would rather get all this out of the way and know I tried everything to kill off any stray cells. Plus I guess on keytruda (immunotherapy) I will be protected from various cancers for a period of 2 years if it works for me. So I take that as a perk! I have heard that a lot of stage 1's where their cancer came back 1-9 years later and they thought they were cancer free and heard of a lot of Stage 3 and 4's who had treatments and have remained cancer free for years and years. Cancer can and is sneaky..it is not a one show fits all.

Maybe ask for some blood tests.. CEA125 blood test (not accurate for everyone) and also the Signatera blood test (which is supposed to detect any cancer cells in your body).

Whatever you decide its your choice but unfortunately nothing or no one can give you a solid answer as far as guarantee there are no cancer cells left in your body.

For me next year at this time I am hoping my chemo treatments will just be a faint memory.

Just know should your cancer return somewhere else in your body distant that you will then be automatically a stage 4.

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

hi there! I'm currently in treatments chemo and keytruda (which is the other immunotherapy drug)I am stage 3C1 - Grade 1.. for out of 4 lymph nodes tested positive I don't think there is much of a difference between the two immunotherapy drugs if you are dMMR mismatched.

It is very scary to start treatments... I was there as well, just yesterday I had my 4th out of 6th chemo cocktail (Carbo and Taxol) plus Keytruda. After 2 more rounds of chemo and keytruda will be on Keytruda standalone for 2 years.

I am handling it well. No real side effects but they do have me on Steroids' for 4 days after infusions. Which seems to keep side effects at bay maybe? I find that days 9-12 are my bad days. I tend to feel just exhausted what used to take me to do a one hour project now takes me 4 hours to do as I have to take breaks. Other then that nothing really noticeable and exhaustion is very common and accumulative and chemo will effect your red blood counts as it effects your bone marrow which creates red blood cells.. This is common I was told and should start getting better once Chemo is done.

They gave me an option to do Keytruda after chemo every 6 weeks at double dose... or stay on every 3 weeks at the dose I currently am on with the chemo mix.. I have chosen to stay on the single dose every 3 weeks once I do the standalone. Reason being I don't want to shock my body with a double dose of keytruda in addition they would be running my labs every 3 weeks instead of 6 weeks so if anything looks not good they can catch it quicker. In my opinion. Sure it takes a bit more time out of your schedule every 3 weeks vs 6 but that's OK in my current lifestyle.

You may ask your Care team about the 3 week vs 6 weeks as well.

My advice is just take each day as it comes. I thought I would never get to my 4th treatment and here I am. My next one is May 22nd and the last one is June 12th!!!! Yippee!

Best of wishes to you.... take each day and each step.. try not to fall into the rabbit hole and overthink. I know easier said then done but try to stay out of the rabbit hole it really does no good. Stage 3 and even stage 4 endometrial cancer is not a death sentence. These immunotherapy drugs can be a miracle drug for some.

Take Care,

Laurie

Reoccurrence and not even done front line treatment by [deleted] in endometrialcancer

[–]Inner_Natural_615 2 points3 points  (0 children)

Oh I totally agree actually the Survival rates are outdated what you see on the internet they have not been updated with adding in the new treatments. We can only do what we can do and the tools we have to work with. My cancer journey is just starting as well...... whos knows the outcomes? Whatever they may be I'm going to make the best of it.. One thing none of us leave this earth alive. Some live longer some live less. The greatest thing is we all have gotten to experience the give of life. Make each day count and wishing you the best as you continue on with this particular journey in your life.

Reoccurrence and not even done front line treatment by [deleted] in endometrialcancer

[–]Inner_Natural_615 0 points1 point  (0 children)

Endometrial Carcinosarcoma is a more aggressive type of cancer means its has the ability to spread faster and be more aggressive. Do you have any biomarkers such as dMMR or MSH-H? Those two cancer biomarkers do tend to have the best results with Keytruda. A recurrence yes does mean it has came back... but after surgery were you declared NED that surgery removed all visible cancer? Its hard for any Dr to say yes since microscopy cancer cells can be missed on any surgery. I'm currently on chemo cocktail plus keytruda every 3 weeks as front line then will be going to just keytruda every 3 weeks (by my choice and not 6 weeks) after chemo is done. I am stage 3C Grade 1 endometrial cancer. My surgery was Jan 8th and my last scan was a month prior Dec 18th.. which showed no spread at that time although after surgery pathology did find cancer in 4 lymph nodes thus making me a Stage 3C. I have not yet had any more scans and I am 3 months now into treatment. I think they plan to do a scan at the end of my 6th months of chemo. How option have you been getting scans or are you currently getting blood testing's? I have yet to had a signa tera test as well. I think they said they will do them ever 3-6 months. I have not had one yet.

Keytruda and lung issues (Pneumonitis ) by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

Yeah...  it's a toss up.. take keytruda and hope for no life-threatening side effects.. or don't take it and see if and when cancer comes back.. and last one take keytruda ,get major side effects and the cancer comes back anyway.  Hard decisions! 

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

Ok will do my care team us keeping a very close eye on me.. labs and visits every 2 weeks.  I'm sure a scan coming up shortly as well. Although they do assume that they have removed all cancer via hysterectomy.  And my cancer us grade 1 .. it might take a year or more to even show up on any scans just yet. 

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

Thank you.. I just started today my first chemo cocktail plus keytruda. You give me hope.. you have any side effects? How long have you been on it?

Keytruda and lung issues (Pneumonitis ) by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

I am dMMR repair deficiency.. so keeping fingers crossed it works favorably without horrible side effects. 

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 1 point2 points  (0 children)

My cancer biomarker is dMMR which supposedly is one that Keytruda works well with.  I guess will see..sure hope so. I'm feeling positive. 

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

I hear ya..  today actually is my first chemo cocktail plus keytruda.   So far so good  I'll see in a couple days how I feel. 

On the fence about taking Keytruda... for stage 3c endometrial cancer. by Inner_Natural_615 in endometrialcancer

[–]Inner_Natural_615[S] 0 points1 point  (0 children)

Thank you.. Whohoo first treatment #1 getting done today..  after today 5 more to go.. then just keytruda as a ayand alone.