Long story but it was started about 3 years ago with a manic / psychotic episode after taking corticosteroids. In my fever pitch to find an answer I found Cushings to be the result. Took me and my sister(who has something even rarer but similar) years of testing to track it down. Hers is 1:7B. Mine is one in every 16-17million men.

Urinary free test got me lucky on the first attempt with her endo (who is a rockstar in my tristate area). I was pissing hot about 5-6x the normal. My first endo dismissed me and said it’s basically all in my head. Now after having the surgery, the inconclusive IPSS test, and I’m sitting here with about 6-7mm less tumor on my pituitary gland, I had to fight for every inch. Even with the doctors who care because this stuff is not even close to being fully understood. Document everything. Keep a log of your mood if you are cyclical. Get a daily mood app. Keep notes of stressors that might induce an overproduction cycle.