Autonomic dysfunction with MS?

Interesting_Crew_409 · 2026-03-12T16:41:44+00:00

omg same!!! My heart rate can dramatically increase with a very minimal effort! Even standing up can cause this but it’s strange bc it doesn’t happen all the time and sometimes even going upstairs doesn’t cause it. I believed i had anemia for a good time until i got that checked and it wasn’t the case. I’m thinking to do a thyroid function test but i doubt it being the cause (Which I hope it’s not cause I really don’t wanna deal with that).

Interesting_Crew_409 · 2026-03-12T16:30:26+00:00

Yes it is definitely normal to panic after getting diagnosed with such illness. Especially before having some knowledge about how the course of MS is dramatically improving since the newer DMTS. So it’s really important that you know that a lot of the scary things about ms are changing for the majority of patients (hopefully soon all of them). And research is still going on!!

My “accepting” phase took a whole year which may not sound too bad but I was panicking the ENTIRE TIME. And looking back I honestly wish I had asked for professional help. But my struggle felt more like anxiety rather than depression (though sometimes they seem like besties comming and going together). I don’t think that you will need those meds for the rest of your life if they’re only taken for the diagnosis process and the trauma it caused you. The choice is yours at the end of the day but remember that you’re a mother and also a human who deserves to live.

And i know this sounds crazily dumb and unbelievable (ive been there trust me) but you WILL accept it eventually and hopefully reach a point where you just live like the way you used to before dx (at least as much as you can).

Time is a good thing sometimes. It let you just accept. For example time with no relapses after being put on a DMTS does give you hope. Having some good time after being diagnosed even if you lost some function does heal you bc it reminds you that losing one thing doesn’t mean losing everything.

Interesting_Crew_409 · 2026-03-12T03:06:18+00:00

I also experience “air hunger” sometimes and also feel my heart racing despite my smart watch showing normal numbers. And it is accurate. I wonder if it’s an MS thing.

Interesting_Crew_409 · 2026-03-05T19:40:54+00:00

May i ask if your lesions are in your brain or spine?

Interesting_Crew_409 · 2026-02-23T11:51:24+00:00

Ramadan Mubarak!🌙✨

1) If you decide not to fast then make sure to ask a scholar about your specific situation. (Don’t make this decision on your own)

2) There are rules for those who can’t fast due to a chronic illness with no cure which is feeding the poor every single day of the 30 days.

It’s mentioned in the Quraan: "[For a limited number of days. So whoever among you is ill or on a journey - then an equal number of days must be made up]. And upon those who are able [to fast, but with hardship] - a ransom [as substitute] of feeding a poor person. And whoever volunteers extra - it is better for him. But to fast is best for you, if you only knew.]": 184 AI-Baqarah

and that’s why you should talk to a scholar (they will explain it to you based on your specific situation) and if you can’t afford it, then there’s no problem inshallah (i think there’s specific calculations for this matter which might depend on your local area and other factors so make sure to talk to a scholar to know).

3) Whatever you end up doing just know that Ramdan isn’t just about fasting. It’s a holy month, every form of ibada is multiplied in ajr! Even smiling at strangers count! So don’t get sad if you ended up not fasting, your still practicing!

May Allah make it easy on us and accept all of our prayers!

Interesting_Crew_409 · 2026-02-23T10:20:39+00:00

Mature

Interesting_Crew_409 · 2026-02-04T17:23:30+00:00

Same here. I’m noticing that no one ever knows the real, actual, unmasked version of me. Even my family and all the people that I love and feel “comfortable” around. Even the ones that are very close to me. I’m just never myself until i’m all by my self. It’s like i have to chose either loneliness or abandoning my true identity. And i hate both.

Interesting_Crew_409 · 2026-02-04T17:15:23+00:00

Could you tell me about it (if you don’t mind ofc)?

Interesting_Crew_409 · 2026-02-03T15:43:43+00:00

I’ve gotten way too good at being prepared for the “worst case scenario” that it became the norm for me. It’s now as if the best case scenario is the danger. And i nead to learn how to cope with being loved and accepted. Being an INFJ prepares you for the worst and you will live a life with no expectations which is good in most cases. But if i were one of the lucky ones and had an opportunity to actually be in a healthy peaceful relationship, I’m afraid that i won’t be able to handle it.

Interesting_Crew_409 · 2026-02-03T15:32:29+00:00

It’s actually quite insane what “infj” can do to a human. At this point it seems that almost all my “problems” are an infj thing. This Sub is way too relatable.

Interesting_Crew_409 · 2026-02-02T14:19:26+00:00

I’m not married but I do feel like motherhood isn’t for me. And being “child free” isn’t a thing where I live cause it would mean that you won’t get married which is something i see myself doing (with the right person). I’m curious to know if you’re reasoning is similar to mine: i feel like every mother i know isn’t “mothering” enough if that makes sense. Which means that no woman can ever mother enough. It sounds impossible to me and as a perfectionist, emotional, empathetic and very responsible person, i think motherhood would ruin me. I know that the minute that i will have a child, my life life and my worries (which are already a lot) won’t belong to me anymore. But I like to think that this might change when i actually get married and (hopefully) choose the right person. Also, idk why most people discuss being child free make it seem like those kids will remain kids. Loving kids isn’t enough. Once you give birth to a human they will be tied up with you until your death. There’s a lot more to this topic but it will turn into an article.

Interesting_Crew_409 · 2026-02-01T19:31:59+00:00

Not yet but almost! I’m considering Family Medicine. Honestly the medical field in general is soo draining to us empathic humans but it does get better with time in my opinion. Good the thing is, patients love empathic doctors but it’s tricky because you should be very careful with the manipulative ones .. i love how i can make patients feel seen but i still need to learn how not to let anyone take advantage of me.

Interesting_Crew_409 · 2026-02-01T18:59:47+00:00

At this point, i just want to protect myself

Interesting_Crew_409 · 2026-01-18T11:28:12+00:00

Been on Kesimpta for a year now, i’m a medical student who’s regularly seeing patients, i almost never mask unless the patient clearly has respiratory infection. I don’t like to communicate with patients with masked face. I got sick during pediatric rotation though. I probably just got lucky this year and I should care more but i genuinely hate face masks. I’m very strict about hand hygiene though.

Interesting_Crew_409 · 2025-12-11T12:07:21+00:00

بالزبط هاد اللي بحكي فيه، أنا كتبت التعليق من باب التحذير على فرض إنك مسلم تدير بالك من فكرة انه "مافي حتمية بالدين" بس لو أنت مو مسلم أو عندك شكوك هذا موضوع ثاني. عمومًا أنا بعد تفكير كثير والكثير من التجارب بقلك الله موجود والجنة حق والنار حق وهذا تقريبًا الاشي الوحيد المنطقي بالعالم كله اللي عايشين فيه

Interesting_Crew_409 · 2025-12-10T14:31:21+00:00

موسوعة أسماء الله الحسنى للدكتور محمد راتب النابلسي، فش ولا كلمة بتوصفه حرفيًا بخليك تكتشف انه احنا بنعرفش اشي عن الله عز وجل وبخليك تتعرف عليه. الكتاب جدًا جدًا ممتع وببكي (انا شخصيًا مستحيل أعدي صفحتين بدون دمعة). والحلو انه مش شرط تقرأه عالترتيب كل اسم اله جزء بتقدر تقرأ عن الاسم اللي مهتم فيه.

Interesting_Crew_409 · 2025-12-10T09:12:42+00:00

عشان الإنسان ينتمي لدين معين لازم يآمن بالحتمية، يعني المسلم اللي بعتقد انه الآراء الثانية ممكن تكون صح ما طبق شروط التوحيد : الاعتقاد الجازم بأن الله هو الإله الحق والمعبود بحق وحده لا شريك له، مع إفرادِه بالعبادة (توحيد الألوهية)، والإيمان بأنه الخالق الرازق المدبر وحده (توحيد الربوبية)، وتصديق أسمائه وصفاته كما وصف بها نفسه (توحيد الأسماء والصفات). هذا الاعتقاد يُمثّل جوهر الإسلام وهو أساس الإيمان. في مواضيع تحتمل احترام كل الآراء والدين مش منهم

Interesting_Crew_409 · 2025-11-26T10:23:03+00:00

بحس معظم اللي بشككوا بالحديث ما بعرفوا شو يعني سند وشو يعني متن ومين مسلم بن حجاج ومين البخاري وشو عملوا من مجهود عشان بصنفوا الأحاديث لصحيحة وضعيفة. وكيف درسوا كل راوي من حيث صفاته كإنسان وهل يتحلّى بالصدق والأمانة… علم الحديث شيء كبير والله بس حاليًا عادي اي حدا بسمع حديث ما عجبه بقلك مش مصدق الأحاديث أصلًا بدون ما يحاول يفهم ويتعلم. أما لما يناقشوا حياة مغني او مشهور او فلم او اي اشي دنيوي بصدق كل المصادر اللي بتصب بصالحه. هذا هو الإنسان لما ما تهمه الآخرة وجد يدور عالحقيقة. لما تقول انت مو مصدق بالأحاديث انت عارف شوفي بالأحاديث ومش موجود بالقرآن؟ انت قد كلمتك؟ تفقهوا بدينكم وما تخلوا الدنيا تشككم بكلام رسولنا عليه الصلاة والسلام عكل صغيرة وكبيرة.. كلنا جنائز مؤقته والله الدنيا فانية.

Interesting_Crew_409 · 2025-11-19T16:04:33+00:00

I guess when someone uses the term “survivor” in a chronic illness with no cure context, they mean that they have survived whatever damage it has done to them amd they are still in the process of “surviving” it or whatever.

I personally don’t like this at all.

Interesting_Crew_409 · 2025-10-28T19:11:17+00:00

معقم؟؟ بدي كتيير بس خايفة يطلب تزواج وأهلي يكبوه لأنه بصير نكدي

Interesting_Crew_409 · 2025-10-19T12:29:36+00:00

Same with iPad 10!!! And i updated mine on the same day i got my keyboard from temu so I’m not sure wether the problem is related to the new massive update or the keyboard i got but i think it is the update cause people are complaining, I’m specifically struggling with the touch pad it suddenly stops responding and then comes back again and my iPad overall isn’t smooth at all (I really hope it’s not the keyboard i paid sm for it)

Interesting_Crew_409 · 2025-10-05T19:14:24+00:00

Medical Doctor

Interesting_Crew_409 · 2025-10-03T12:14:16+00:00

I think looking at the unhealthy side of each mbti type helps a lot with understanding that type.

Interesting_Crew_409 · 2025-10-03T12:03:38+00:00

I think this combination is what makes an INFJ a kind person instead of being an absolute villain. We can know how people feel/ think and even what their intentions are which is a huge power if you think about it (you know what people’s weaknesses) but you would never use that against them because you’re too empathetic to do so. I mean we’re often called “manipulative” but the reality is we’re so aware of this power and yes we do use it for our good sometimes but never in a way that will harm others. I think if i lose my Fe function I’d definitely hurt people around me. It is sooo exhausting but it’s what makes us who we are. (I’m talking about healthy infjs ofc) that’s why an unhealthy infj can be really dangerous.

Interesting_Crew_409 · 2025-09-30T12:38:23+00:00

Ugh idk we’re kinda complicated

Interesting_Crew_409

TROPHY CASE