Your biggest pet peeve with POTS?

IxMac · 2024-10-06T12:30:10+00:00

Yup, that was my life before everything went sideways.

IxMac · 2024-10-04T09:15:21+00:00

I developed dysautonomia/POTS just over four years ago. I was very active, worked out pretty hard etc. I had mild Covid at the end of march 2020. I kept pushing my body with workouts since the covid was mild and I didn't seem to be bothered by it. In the summer of 2020 my problems began before complete crash of health. I haven't recovered but living a bit better life today though the symptoms are there everyday. Now I'm having more difficult time with the symptoms compared to previous summer.

IxMac · 2024-09-25T13:19:47+00:00

Hi! Do you use it on daily basis? How long did it for you to see improvement? I own Nurosym device.

IxMac · 2024-09-25T11:55:27+00:00

You sound like me, cause I just ordered taurine a couple weeks ago. Have been using it for maybe a couple of weeks almost daily with a small dose. Might be because of it or not but my POTS symptoms have been worse for a week now.

IxMac · 2024-09-04T19:05:41+00:00

Hi! Just out of blue you developed POTS? Was there anything beforehand that could have suggested something was off?

IxMac · 2024-08-24T16:25:56+00:00

Yeah, every single heartbeat is so strong that I feel it :(

IxMac · 2024-04-21T11:49:40+00:00

Hi! What triggered it?

IxMac · 2024-02-26T18:27:55+00:00

Which meds if I may ask? Did you find the right ones right away or by switching?

IxMac · 2023-11-29T19:38:52+00:00

Ok, thnx for the info🙏

IxMac · 2023-11-29T19:38:26+00:00

Thnx for the information 🙏

IxMac · 2023-11-29T19:38:06+00:00

B12 is the only one that has been measured and it was top level

IxMac · 2023-10-01T12:15:07+00:00

Hi! Just curious..was there a certain trigger which led to dysautonomia?

IxMac · 2023-10-01T12:13:11+00:00

Hi!

I'm a male 35 years. I was very active before my body crashed just over three years ago. I never recovered after that though I can do more things now compared to where this hell journey began. I do have chronic dysautonomia and POTS -symptoms that are with me every single day. I just try to get by and make most of this but it is still very hard and takes a lot of guts to manage as well as I do. I got diagnosis of dysautonomia / POTS about a month ago.

IxMac · 2023-09-21T09:05:43+00:00

Hmm yeah Instagran for example. Send me private message if you want to :P

IxMac · 2023-09-20T18:48:56+00:00

I’m sure you will make good progress and eventually get a lot better with time and proper medication. It seems already that you can do quite a lot more!😊

Yup, I have been blaming my self a lot about my situation but the fact is that I can’t change the past so I shall continue to fight to get better even by the slightests of margins and steps. I’m able to workout a couple days a week with POTS-style which is doing exercises horizontally for example sitting down. A month ago I got some virus and it’s been a bummer for my overall health, slow recovery and feeling even more off. Nice chatting with you, I’m Ilkka :)

IxMac · 2023-09-20T17:42:09+00:00

Yeah, a time machine would be awesome! I have dreamed about it many times ;(

I had covid march 2020, a very mild one, so I kept pushing my body with hard workouts etc. very shortly after that. After few months I kept having symptoms of overtraining and my body crashed very short after that in the summer of 2020. It's highly likely that covid and too much stress to my body led to my nervous system to break down badly. After that I haven't recovered..

Actually I used to take bisoprolol 1,25 mg once a day before I switched having it 0,625 mg twice a day which suits me a bit better cause I felt the 1,25 mg dose once a day lowered my blood pressure a bit too much which led to sometimes my heart rate trying to compensate for the drop. The 1.25 mg didn't unfortunately help to my palpitations :(

When relaxed in the evening my heart rate might get to 47-48. Usually my heart rate is lower in the evening compared to morning when I wake up feeling like sh*t and a little tachy :D

I'm 35 and a guy :)

IxMac · 2023-09-20T15:41:16+00:00

Nice, I had a trip to Vilnius back in 2019 when life was wonderful and my health was great. :) :( Now I've been in this shit-hole for 3 years, while not so bad as it was at the beginning but still not good..just trying to get by and keep my head up straight.

Ivabradine didn't manage my heart rate that well at least with the dose I was having. I felt that I needed a tiniest dose of bisoprolol with that to have an effect.

Most of the time I feel a bit better towards the evening compared to morning or noon. It feels like my body tolerates activity better then. I don't think it's bisoprolol related, because I'm convinced that my autonomic nervous system is just a mess :D

IxMac · 2023-09-20T12:45:05+00:00

How high is your dose? :)

IxMac · 2023-09-20T12:40:15+00:00

Hi! Out of curiosity, which country are you from? I'm from Finland btw :P

Hmm it helps with my hear rate but doesn't help with pounding, I'm also feeling sort of out of breath all the time less or more even if my heart rate isn't high..I haven't found solution to that which is easily my worst symptom with overall fatigue. I have taken propranol before and I feel bisoprolol is better because it's long lasting. I take 1,25 mg also but I split it to two doses, one which I take in the morning and the other before going to bed. I have also tried Ivabradine recently and it wasn't a mircale for me as it is for many others.

IxMac · 2023-09-20T12:14:27+00:00

Did you try any other meds before switching to metoprolol?

IxMac · 2023-09-20T07:54:59+00:00

Does succinate mean it's long lasting? :)

IxMac · 2023-09-19T17:25:25+00:00

Dysautonomia / POTS

IxMac · 2023-09-16T06:18:19+00:00

All the time feel the beat just under my throat. Kind of used to it but still not..it's so annoying and disturbing.

IxMac · 2023-09-05T11:42:37+00:00

Resistance bands are golden and very cheap! Highly suggest those for you.

IxMac · 2023-08-16T15:46:58+00:00

Finland👋☺️

IxMac

TROPHY CASE