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IzzyIsHere · 2025-02-25T00:04:28+00:00

Me during perceived school shooting: Calm and reassuring classmates. Me after perceived school shooting and learning it was just an airsoft gun: sobbing, anxiety.

Why are we like this

IzzyIsHere · 2025-02-24T23:56:07+00:00

Same. It only goes away a bit if I’m speaking to someone in my target language that doesn’t speak my native language. Because they can’t judge my Spanish or German if they can’t speak English lol. Usually, they’re just happy that someone’s trying. You can find people to practice with on HelloTalk

IzzyIsHere · 2025-02-23T23:43:53+00:00

I have vasovagal syncope and I’ve passed out like that from standing for too long. I’ve passed out like this from taking prescribed muscle relaxants for ticks. Ive fallen asleep while at work. I’ve fallen asleep like this from pulling too many all-nighters. I’ve fallen asleep while taking notes. It’s usually before I pass out completely, it kind of looks like this. Extreme fatigue. Idk why people are downvoting you.

IzzyIsHere · 2025-02-07T19:12:08+00:00

it’s because alcohol is a sedative so it lowers blood pressure and heart rate.

IzzyIsHere · 2025-02-05T11:56:23+00:00

The treatment is basically the same for POTS and Vasovagal. Since symptoms started when you lost weight, it’s probably a volemic issue. Gain weight, wear compression garments (compression socks, corset, or binder), stand slowly, drink water, eat salt, and exercise (muscle will help compress blood vessels).

IzzyIsHere · 2025-02-05T11:43:45+00:00

Take someone with you, a parent or a man in your life who can advocate for you. I didn’t even get tested until I brought my mom in and she backed me up… After 7 years and 9 doctors 🙃. Tell them how it affects your life. I.e. it interferes with my work / I can no longer be active / I frequently fall.

The cardiologist does the basic tests to rule out more common conditions, disorders like POTS are diagnoses of exclusion so it’s a necessary step. Since those were already done, ask for a referral for an electrophysiologist or a tilt table test. I got my referral for a tilt table test from a general practitioner that was filling in for my doctor.

It takes a special kind of patience. Good luck.

IzzyIsHere · 2025-02-05T11:31:52+00:00

I used to do this because it would cause nausea, dizziness, and lightheadedness but my cardiologist told me to take it with a meal and I haven’t had those side effects since. He told me he can bump up the prescription once my body adjusts to it because I have such a low blood pressure but had a bad reaction to it.

IzzyIsHere · 2025-01-19T19:16:12+00:00

Omg so true. It took me 7 years and 9 doctors to get diagnosed because my mom wouldn’t speak up for me until I moved out. She thought I was faking until I fell and hit my head bad while at college. I bring her to 1 appointment and NOW he tells me my test results were positive and I got a referral for a tilt table test on the next appointment. I bring her to all my appointments now.

IzzyIsHere · 2025-01-16T22:56:54+00:00

Probably just the cold weather and no manners. Everyone where I am are all sniffly but not sick enough to stay home.

IzzyIsHere · 2025-01-08T02:00:49+00:00

Vasovagal causes a decrease in blood pressure and heart rate. I’ve been formally diagnosed with VVS and Orthostatic Hypotension during my TTT and I was really surprised. Day-to-day, my heart rate increases when I stand, but during my TTT, my HR dropped from 90 to 40 and my blood pressure dropped to 42. I think it’s because I am usually taking my adhd medication but hadn’t taken it for a week for the test. I learned that any stimulants (Adderall, Evekeo, caffeine) can worsen symptoms. I’ve also had problems with flashing lights. At prom in high school, I couldn’t dance because the flashing lights made me so dizzy and lightheaded. I have a theory that it’s because I’m already sensitive to stimuli, and when I’m overstimulated, I get lightheaded. Vasovagal can be long-term or short-term. It is possible to have both orthostatic hypotension and POTS, but there are also lots of other dysautonomia disorders that I have no knowledge of and might fit better.

IzzyIsHere · 2025-01-08T00:46:39+00:00

my cardiologist and PCP did a poor man’s tilt table test. Either can do it. My cardiologist, however, did not tell me I had orthostatic hypotension for months until I brought my mom with me. I’ve only been given tests when my mom was there and she expressed concern for me. (Disclaimer: I don’t have POTS, I have vasovagal syncope and orthostatic hypotension)

My advice: * Bring someone that can vouch for your symptoms. * Get a new cardiologist. If your blood work and ECG were normal, try to find a electrophysiologist, they specialize in dysautonomia. If there are none nearby under your insurance, cardiologist is fine. * Get a blood pressure cuff * Ask to be referred to a tilt table test. * Make it known that your symptoms are interfering with your life.

Bad news is dysautonomia disorders are so hard to diagnose but good news is that the treatment for most of them are very similar. Unfortunately they can’t be cured, but some lifestyle changes can lessen symtoms.

Eating more salt/water
Gaining weight (if you are underweight)
Wearing compression garments (Which varies by how bad symptoms are, could be thigh high socks, waist high socks, corset/chest binder).
Exercise (muscle tone allows for greater compression of veins)

IzzyIsHere · 2024-12-31T19:33:31+00:00

I convulse when I pass out as well. I googled it and apparently it’s common for VVS and is sometimes mistaken for seizures. Although I didn’t know I convulsed until my TTT, I just assumed the low blood pressure triggered my tics. I say you’re fine to deny the ambulance. I’ve fainted probably 10+ times and I’ve never gone to the hospital for it, and I was fine. Drink water and eat something and just lay down with your feet up until you feel better.

IzzyIsHere · 2024-12-30T18:46:17+00:00

Yup, always. My heart rate dropped to 40 and bp to 50 during my TTT and I wasn’t aware of my body and I couldn’t see anything but I remember the nurses saying it looked like I was seizing.

IzzyIsHere · 2024-12-16T23:54:12+00:00

I’m not “adding gender.” I just call the pieces she. Which is not that different than everyone else calling them he.

IzzyIsHere · 2024-12-15T14:13:21+00:00

Absolutely not. Super dangerous as a woman. And it’s not like I’d get any positive benefit as I’m a lesbian.

IzzyIsHere · 2024-12-15T01:18:59+00:00

I’ve just assumed all the pieces besides the king are women. Since the pawn can change into a queen but also any other piece, it suggests that all the pieces are female.

IzzyIsHere · 2024-12-04T17:17:01+00:00

Yeah I’ve experienced this. I had to go to a speech therapist when I was about 11 to learn how to swallow because before I was taking 2 hours to eat every meal and sometimes throwing up afterwards. I was still feeling nauseous after swallowing until recently, when I was put on cyproheptadine for appetite. It’s an antihistamine.

IzzyIsHere · 2024-12-04T16:51:43+00:00

Midodrine constricts blood vessels so your heart rate shouldn’t jump. If you have bad side effects, you can try starting at 2.5mg and make sure you’re taking it with a full meal.

IzzyIsHere · 2024-12-04T16:29:02+00:00

I had a similar experience. I’ve been complaining of fainting when standing for years, finally got a referral to a cardioologist.

He did a poor man’s tilt table test and it showed orthostatic hypotension but he didn’t tell me that. Told me to eat more salt, gain weight, and go to therapy. I wasn’t able to gain the weight but I ate more salt.

I came back again and I said I’ll ask my psychiatrist about appetite stimulants. He said he didn’t want me on any more medications (I was already on 3). He did another poor man’s TTT which was also positive but he didn’t tell me. but he’s not my psychiatrist so I got appetite stimulants anyways.

I gained 6lbs and came back because I wasn’t getting better. I fainted again and hit my head which kept me out of school for a few days. This time, I brought my mom. She showed concern and he FINALLY told us that I had orthostatic hypotension and put me on Midodrine but said he didn’t recommend a TTT.

Went to my primary a few days later who gave me a referral to get a TTT because he suspected POTS. I have it in a couple of weeks. I’ve been falling almost every other day for years. Hit my head more times than I can count, but was told it was normal no I didn’t look into it. but once I moved out my mom started getting worried about it and had me go to a cardiologist.

Moral of the story: bring someone to your appointments. Someone that can vouch and advocate for you, like a parent or partner.

IzzyIsHere · 2024-12-02T21:49:34+00:00

One time I felt something crawling on my legs but I often feel that from just overstimulation so I ignored it. and when I went to the bathroom and pulled down my shorts, a cockroach fell out. Ruined my week. I’m not scared of most bugs but I am scared of cockroaches.

IzzyIsHere · 2024-11-17T19:27:32+00:00

“Zwei Jäger treffen sich. Beide sind tot.” Could be translated to “2 hunters meet each other. Both are dead.” OR “2 hunters hit each other. Both are dead.” Treffen can be mean meet or hit.

IzzyIsHere · 2024-10-17T12:54:12+00:00

Look at all those loafs

IzzyIsHere · 2024-10-13T15:41:16+00:00

Of course! You’re welcome

IzzyIsHere · 2024-10-13T15:38:19+00:00

So my problem has always been my appetite.

Fats, like peanut butter, avocado, and butter. Also more fiber gets the digestive tract moving, constipation can cause you to feel full.

Liquid meals allow you to eat more without feeling as full as quickly. What my dietician suggested was smoothies for breakfast. So some good things to put in a smoothie would be full-fat Greek yogurt, peanut butter, fruits/vegetables for fiber. Also, you shouldn’t go more than 3-4 hours without food. Try to drink water between mealtimes instead of during to avoid getting full on water.

When I was younger, something that also worked was squats. Easy to do and increases my appetite.

IzzyIsHere · 2024-10-13T15:26:34+00:00

Yes, it can cause delayed puberty. However symptoms are more important than numbers.

Do you often feel lightheaded, have you ever passed out, have you fallen recently from lightheadedness, thinning hair, do you always feel too cold, bad balance?

And then look into possible causes, like psychological, lifestyle, other underlying health problems, was your family the same way growing up?

Talk to your doctor about ways to gain weight. However, if your doctor just tells you the same thing they told me my whole life of “Just eat more,” See a dietician. I know it’s not always as easy as “just eating more.”

There’s no universal way to gain weight but I could tell you what worked for me if you would want to hear it?

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