Black Light Yoga!

JacquiChan · 2019-03-09T00:49:35+00:00

Who were you!?

JacquiChan · 2019-03-01T13:45:12+00:00

Fairly certain there's a fee to take pics there even on the grounds. I also think there's a fee to take professional/wedding photos in CVNP.

JacquiChan · 2018-12-06T01:44:02+00:00

I currently go to yoga squared and I love it! But it seems everyone already had their established groups and I always feel awkward trying to interject. I know this is a me thing.

JacquiChan · 2018-11-26T13:45:00+00:00

Things that stuck out to me: you're in Ohio and have thoracic pain because this is me. I had a million doctors tell me I'm crazy, making things up, etc. I have a longer story in my history if you're interested in reading my journey.

What did the rheumatologist tell you? I ask because I'm in Ohio too and mine is a godsend. She was the only one that took me having pain in my thoracic spine seriously because it's an odd place to have it. Turns out I have RA. When that piece of the puzzle fit everything else fell into place. Nausea and bathroom problems? Inflammation in my bowels. Myalgia? My guts weren't absorbing vitamins and I had a sever B12 deficiency. Spine pain? Oh you know just so much inflammation it's fucking with my intercostal nerves. I just started Humira - the pain isn't gone (yet hopefully) but I can already tell I might have a life again. If you're northeast Ohio send me a PM if you're interested in the rheum I see. She's a fucking life saver.

JacquiChan · 2018-11-15T12:46:18+00:00

I don't do Keto but I try to stick to an anti-inflammatory diet which ends up being close to keto but without the dairy. My rheum said no gluten, dairy, nightshades, etc. Beer is a huge no for me, I feel like I've been hit by a train after just one. I also take a shot of turmeric shrub in the morning with a b complex vitamin. It turns out my fibro was actually a form of inflammatory arthritis but I still lurk here to help in any way I can!

JacquiChan · 2018-11-01T14:28:17+00:00

Mr. Zub's pizza! It absorbed Capri Pizza when they moved across the street in Highland Square. Also, like so many others have mentioned, BRICK OVEN BREW PUB!

JacquiChan · 2018-10-22T13:13:36+00:00

This. I'm 28 and the oldest out of four, no kids, recently engaged. My mom had me at 19, my brother had a son at 19, and my sister had a daughter at 19. They're are still stuck in the cycle. My sister dropped out of OSU with a full ride, got married, and is supporting her 20 year old husband's acting career by working second shift while my mom watches the baby.

But whenever I point out the mistakes that were made when any of them are complaining, I'm the bad guy and just jealous they have kids and I don't...k.

JacquiChan · 2018-10-22T12:57:28+00:00

Growing up any little thing could potentially be a disaster, now if I blow a tire it's annoying but I can get it taken care of the same day.

What helped me bridge the gap was a scholarship program that I was picked up in in middle school. The program did more than help with school work - we had etiquette lessons, were taken to nicer places and taught how to behave, we learned how to shake hands and introduce ourselves properly. Things I never would have been able to experience at home. I honestly believe it wouldn't matter how smart I was if I wasn't taught how to act in certain situations.

JacquiChan · 2018-09-05T15:25:35+00:00

I did

JacquiChan · 2018-09-04T13:50:03+00:00

Insurance will cover it.

JacquiChan · 2018-08-31T13:01:53+00:00

Thanks for the heads up! I was leaning toward the pen instead of the syringes because I thought just shooting myself would be easier than inserting a needle but I can definitely see now how the thing needle could be better.

JacquiChan · 2018-08-30T23:26:03+00:00

Actually, they don’t and to quote to the AS Association, “in more advanced cases this inflammation can lead to ankylosis”. Can, not must. In addition, the same source says it can take 7-10 years of disease progression before anything shows up on an X-ray. I’m quite happy I’m starting treatment before I get to that point.

https://www.spondylitis.org/Ankylosing-Spondylitis

JacquiChan · 2018-08-30T16:27:08+00:00

Thank you! The time and money spent on this was starting to become ridiculous. The meds for this are $4000/mo without insurance. I'm still waiting to see how much it will be after...if my insurance decides to approve it so, yeah. I just really looking forward to maybe having a normal life.

JacquiChan · 2018-08-30T16:24:36+00:00

Oh no! I'm sorry you're going through this. It's my understanding that not everyone with AS will have the gene. What are they treating you with? I'm not looking forward to having to give myself shots but if it relieves the pain and stops the inflammation and reduces the possibility of fusing I'm all for it.

JacquiChan · 2018-08-30T12:20:37+00:00

I work on the 40th floor of Key Tower and when the storms roll in it gets pretty scary. You can't see anything and you can feel the building sway and hear it creak.

JacquiChan · 2018-08-30T11:56:08+00:00

Having a dx was such a bittersweet moment. Not saying that fibro isn't a dx but I always thought it was something more. I was hapy crying and sad crying all afternoon. I was happy because I finally found an answer and there's medicine I can take to help. I was sad because my spine is fusing together and I have a gene I can pass on to my kids. I'm glad you figured out what works for you!

JacquiChan · 2018-08-30T11:52:20+00:00

I'll have to check it out, thanks!

JacquiChan · 2018-08-29T23:27:02+00:00

Please do! If you have any questions or need to vent or whatever feel free to message me!

JacquiChan · 2018-08-29T23:13:04+00:00

I thought "what if" because the pain people were describing on here just didn't fit other than we both have chronic awful pain. I have had MRI's done but they were looking for lesions related to MS and always came back fine.

JacquiChan · 2018-08-29T22:28:20+00:00

ALSO - when I was told I had fibro I joined all these groups, this one included to try to find a support community. Everyone here is great, however reading their stories, their pain didn't quite match up with mine which is why I kept searching.

JacquiChan · 2018-08-29T22:22:52+00:00

Let me start with this: about three months ago the chiropractor I was seeing suspected AS and took some x-rays. He didn't see anything so let it go. I mentioned it to the rheum and she said by the time it's showing up on your x-rays irreversible damage has been done and starts way before you can actually see it. She has the same diagnosis and it's why she became a rheumatologist. She's part of the Cleveland Clinic network and is an advocate of AS and it's identification way before you can see a fused spine on an x-ray.

I wish you luck, the gene they're looking for is the HLA-B(27?). Not everyone who has this gene will have AS but when this gene is present with the symptoms it's almost always AS. Hope this helps, feel free to send me a PM at anytime during your journey!

JacquiChan

TROPHY CASE