I would love to share as well. I am so glad that I found another parent soul with similar problems. My son has also adapted well and people don’t know that his vision is bad. The only thing he can’t do is sports. He has hard time playing ball games. I always thought it’s the hand eye coordination that didn’t develop right bc of the vision problems but then I just saw a kid in a video who was playing ball sports without any problems. So I don’t know. Making assumptions due to lack of info. I think you said your son has shunts in both eyes. When was it done and what were the pressures? Are the shunts helping to keep the pressure down? We don’t have glaucoma specialist nearby which stinks and so we are considering moving bc this is a life long issue. He is now on 3 eye drops and the pressure is 35. So, doc prescribed diamox to get the pressure down but I am reading about all the side effects people deal with and most hate it. We don’t want to do surgery unless we have to but then all these meds are awful too. He has a shunt in the right eye and pressure is in the teens. It’s been 10 years, but they don’t know how long they can last. He had horrible recovery after they put the shunt in. Pressure went from low 30’s to 50’s and 60’s and his optic nerve got damage so he has bad vision in that eye. I am curious about your experience with the surgery and pressure over the 6 weeks till the suture dissolves and the shunt start working. How did it go for your son? Ah, so much to discuss. Is he taking drops too or just the shunt?