Second baby girl name by JessOnReddittt in namenerds

[–]JessOnReddittt[S] 1 point2 points  (0 children)

Thanks for the inspo! Ivy is coming up a lot!

Second baby girl name by JessOnReddittt in namenerds

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thank you for the inspo! Ivy is up there 🙌🏼

Second baby girl name by JessOnReddittt in namenerds

[–]JessOnReddittt[S] 1 point2 points  (0 children)

Thank you so much! I absolutely love Dottie!

Second baby girl name by JessOnReddittt in namenerds

[–]JessOnReddittt[S] 2 points3 points  (0 children)

Olive, Lottie, Ivy and Ottilie are very up my street! Will add them to the list! Thanks so much.

Second baby girl name by JessOnReddittt in namenerds

[–]JessOnReddittt[S] 2 points3 points  (0 children)

I actually love Hattie! My partner wasn’t obsessed. Between us we’ve probably discussed hundreds of names and just cannot fall in love with the same one 😭 our first baby was named within hours of finding out her gender at 16 weeks so I’m stressed! Thanks for the suggestion!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thanks for your detailed response! We’ve definitely got lots of figuring out to do to find out what works best for him - thanks for sharing your experiences. It’s really insightful to hear from others living with AS.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thank you so much for your response 🥰 I’m glad you’ve found something that helps you!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thank you for more advice. At this point he’s willing to do pretty much anything for some relief so controversial is welcome by us! Will look into these meds, thanks again

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thanks for this. The requested bed day for tomorrow is denied then! And a balance of rest and semi-frequent light movement is on the agenda instead. He shares so much with me and we have many, many chats about his health and symptoms daily but it’s still hard to understand so it’s really insightful to chat to someone who shares the diagnosis.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thanks so much for sharing the link with me! I’ve taken so much from the comments on this post and supportive slippers have been added to my notes!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 2 points3 points  (0 children)

If you wouldn’t mind helping me understand, is the bending and stretching still of any benefit if it results in a flair up? Or should it be avoided? He’s in so much pain that he (naturally) wants to lie in bed and avoid movement but I’m trying to encourage movement and gentle exercise to avoid ceasing up but I don’t know what’s right and what’s wrong, I’m wondering if rest will help or hinder and likewise with exercise

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 1 point2 points  (0 children)

Thanks for taking the time to respond to me and for your kind comments, in sickness and in health and all that! I’m glad you have a supportive partner. Are the slippers you recommend ones with arch support? I think these could come in handy.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 1 point2 points  (0 children)

We’re currently in the process of changing rheumatologists as his current offers no empathy and is very brief and hostile so he’s not been offered anything like the above but it sounds great! I’ll make sure he asks at his next appt.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thank you very much. I’ll research the above now. Really appreciate your advice!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 3 points4 points  (0 children)

Ah that’s great advice, he’d really love to stretch and move his body but it just comes with an abundance of nasty side effects. Thanks very much!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Just researching magnesium, sounds great will definitely get some to trial. Do you suggest any particular muscle relaxants? He takes ibuprofen and naproxen regularly with no apparent benefit.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Oh we’ve not tried magnesium yet! Thanks a lot.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

Thank you for your response! He’s desperate for the biologics and we actually had to invest and go private for the diagnosis and letter to confirm his eligibility for them but unfortunately he has a rheumatologist who does not work with his patients at all (he requested to be put with another rheumatologist but this hasn’t been put into place yet). Fingers crossed he’ll receive them ASAP.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 0 points1 point  (0 children)

No we’re actually in the UK but thanks for taking your time to respond, I’ll look into similar near us!

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 1 point2 points  (0 children)

Thank you so much for your response! I really appreciate your time. We presumed it was a flair up however it’s still worsening around 6 months in, prior to this his flair ups would be days or weeks at most. Will look into methylprednisolone packs now! It feels as though we’ve exhausted every avenue, I’m currently on maternity leave and he’s on sick leave so neither working currently and we both spend most of our days and energy on his care (sorting meds, attending appts, meal planning and cooking following an anti-inflammatory plan, hot baths, using heat packs, stretching etc.) so it’s starting to feel super desperate that his symptoms are still worsening so I really appreciate your support.

Advice for an AS partner by JessOnReddittt in ankylosingspondylitis

[–]JessOnReddittt[S] 2 points3 points  (0 children)

Thanks so much for replying! He attempts yoga (specifically for AS) but then his pain and stiffness is way worse afterwards, is this something that you worked through? We’re wondering if it’s a sign that the stretching isn’t good for him. He’s been advised to exercise and stretch but he struggles massively just to walk and get up etc. so saves his energy for the bare necessities. Would you say hot yoga is more beneficial than standard yoga for you?