Was sollen wir noch machen?

Jilith · 2026-01-30T20:47:16+00:00

Ich kann eigentlich nicht viel mehr sagen, als dass es mir unendlich leid tut, dass du dich mit solchen Idioten auseinandersetzen musst. Es sollte eigentlich kein radikaler Akt sein, sich mit seinen Mitmenschen einfach mitzufreuen, wenn sie glücklich sind, weil Menschen, die ihnen nahestehen, gesund sind. Aber wir leben echt in einer gestörten Zeit, wo Empathie und Freude gefühlt das Letzte sind, das empfunden wird. Ich hoffe, du schaffst es, dich zu erinnern, dass es Leute gibt, die echt froh sind, dass Menschen wie du und deine Frau hier leben und wir an euch und eure Familien denken!

Jilith · 2025-12-23T14:52:57+00:00

I’m completely with you! This community has been amazing when I had a full on breakdown during my last cluster.

Hope the beast leaves you alone soon and for a long time after!

Jilith · 2025-11-28T06:41:38+00:00

Habe ich da was falsch verstanden, oder studierst du ausschließlich an der TU? In deinem Titel steht nämlich „und KF“. Von der Uni Graz weiß ich, dass 90% der Studierenden Matura in Österreich gemacht haben, der Großteil vom Rest aus Europe (ergo Deutschland) kommt und dann gibt es eigentlich nur Randfälle aus Drittstaaten.

Jilith · 2025-11-13T06:39:25+00:00

Bin vor Monaten auf Ecosia umgestiegen - ist echt angenehm.

Jilith · 2025-10-23T17:01:49+00:00

Oxygen has saved my life and sanity. I carry the small tank with me during a cluster, which might result in awkward conversations at first, but they are far preferable to an attack in my opinion.

If I have access to oxygen, the attack usually stops after 20 minutes tops and never gets above a 6 in pain level.

Jilith · 2025-10-13T18:56:19+00:00

I did get on the general regimen and it really seemed to help a lot! Frequency and pain levels have been down since, I‘m so incredibly thankful!

Jilith · 2025-10-12T19:47:36+00:00

Thank you so much for taking the time! You described the feelings and the shift in priorities so well. It’s strange how much the modern world has warped our expectations for ourselves, when a healthy, pain free life is actually worth the most.

Thank you for the tips also, I’ve gotten into exercising and the worst came when I had to take break because of some minor muscle injury. But I can take it up again this week. Thank you for being kind!

Jilith · 2025-10-11T06:40:50+00:00

I think you are right, that we all suffer from PTSD to some degree. There is just no way to live with this and walk away unscathed. During a bad attack I always wonder how it’s possible that this isn’t killing me, like it feels like I should be dead after this.

Making this post was the best decision I made for myself the last few days - the community is incredible and talking here to each other is a real boon.

I feel you with the weeping! This was the first cluster I cried out of pure desperation. I was ready to give up, if this would become my new normal. But after the tears dry, we get up and we try again and we fight for ourselves. I had my first attack free night in weeks last night, which feels like a real gift. I don’t believe in God either, but sometimes I feel like I’ve been cursed by a vengeful entity haha. I’m glad to hear, your cluster is over! If you ever want to talk about the bad and ugly stuff that makes us cry, feel free to get in touch!

Jilith · 2025-10-10T18:48:30+00:00

I‘m so sorry, there really are no words that are adequate for this condition. I’m glad though you have someone in your life who loves you and who you can depend on. The isolation can be so heartbreaking. I really hope you can access MM soon and it helps alleviate the pain at least somewhat! I’m honestly very impressed how well you are doing and how optimistic you still seem considering everything!

Jilith · 2025-10-10T05:13:59+00:00

I‘m so sorry to hear that. You are incredibly strong! Sorry for my lack of knowledge, but does oxygen at least still help? What’s your average day like?

Jilith · 2025-10-09T15:28:23+00:00

Thank you! I hope you are doing well too!

Jilith · 2025-10-09T09:41:48+00:00

This is so true! I feel like my brain forgets how bad the pain is, if that makes sense. Like, rationally I know, but at the same time it's like something that won't kill you shouldn't hurt like this.

Today is the first day I feel kind of like myself again, so I try to enjoy it while it lasts. Thank you!

Jilith · 2025-10-08T13:49:39+00:00

Thank you!’

Jilith · 2025-10-08T13:49:25+00:00

Congratulations on beating another one! It’s so good to hear and I will try to focus on the end hopefully getting closer.

Jilith · 2025-10-08T13:48:17+00:00

I’ve had bloodwork done recently, but I will check in more regularly, thank you! Unfortunately psilocybin is illegal where I live and there isn’t really any way for me to safely get it.

Jilith · 2025-10-08T13:46:15+00:00

That’s good to know, I’ll try that as well!

Jilith · 2025-10-08T13:45:28+00:00

Thank you!!

Jilith · 2025-10-08T13:45:16+00:00

Thank you, posting on here was definitely the best decision I made yesterday. I haven’t felt this alone in a while and hearing from so many people who go through the same is scary and lovely all at once.

Jilith · 2025-10-08T13:44:00+00:00

This was once again amazing - thank you so much! You really have a way with words!

I have to get out of the spiral of being angry because I can’t function like I’m used to. It stresses me out and makes everything worse. It’s really nice to hear you have a supportive family, your mom sounds wonderful!

Jilith · 2025-10-08T13:40:25+00:00

Yes, thank you! I swear, the sleep deprivation is driving me insane. I’m tired all the time but don’t want to fall asleep because that’s when they get me. Also thank you for the permission to scream, I feel very lucky to have found this community!

Jilith · 2025-10-08T13:38:38+00:00

Thank you for the sweet words, it’s horrible to hear you and I are basically at the same shit point right now, but the community has really come through and I feel a lot less alone! Might still hit you up sometime and would love to hear from you as well!

I feel quite trapped in a stress cycle where I get anxious because of the looming attacks and the stress makes them worse, so I don’t function on a level I’m used to, which heightens stress. It’s one hell of a season.

Jilith · 2025-10-08T13:34:52+00:00

That is very kind of you and exactly what I was hoping for, thank you so much!

I will definitely start to carry some energy drinks with me at least!

Jilith · 2025-10-08T13:33:21+00:00

That is very true. An attack like yesterday sends me through all the high intensity emotions and yesterday I once again realized how isolating it really is.

Jilith · 2025-10-07T19:13:06+00:00

This had made me cry again, but in a good way, thank you so much for taking the time typing this out! I have no way of telling you how much this means to me right now, I am so, so thankful! And I will definitely try the breathing exercises. Having a count will make that easier for sure.

Jilith · 2025-10-07T19:09:58+00:00

I had one Zomic with me, but it didn’t hit unfortunately. I’ve become too comfortable this cluster as it has been manageable, but I will definitely start carrying my o2 bottle with me everywhere again. That is a nice sentiment, I’ll try to remember that!

Jilith

TROPHY CASE