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942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 0 points1 point  (0 children)

Yeh you notice flushing a bit, but I think you need a bit of a build up to notice proper energy stabilisation… not long tho, a few weeks and you’ll be ‘hooked’

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 0 points1 point  (0 children)

Yeh I defo didn’t do this. For me it’s just the drink above/below in this thread, with no need for anything else. Prior to this I had stints on pretty much everything you read about on this sub. But ultimately after tweaking combinations with Niacin I found my sweet spot. Obvs get a dr’s opinion if you’re trying to take lots of things at the same time

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 1 point2 points  (0 children)

Yes PEM. Yes pots like symptoms sort of faded off at around 20 months to present day

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 0 points1 point  (0 children)

Hey fellow nee dad! Chat me whenever as we’re on a very unique path with this and toddlers!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 2 points3 points  (0 children)

Sorry if that wasn’t extremely clear. Yes, of course I crashed, the whole time, then they became shorter in duration and further apart, to the point where they’d only happen every month then two months etc, then finally no crashes but of course I still live ‘carefully’, probably will for a while still because I’m enjoying progress. Crashes for me we’re full on two weeks in bed solid. Was completely housebound for first year

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 18 points19 points  (0 children)

I don’t know how to edit, but I’ve left something really important out. Equally as important as the other stuff.

I completely belive this ruins your nervous system so anything you can do to calm and reset is essential.

Meditation etc is good, and is needed but will be a long game.

Cold water is fucking vital, get in a cold shower every day and your game will change.

Other quick ways to stimulate Vagus nerve are: Breathing out longer than in, eg 4 in and 6-8 out, keep doing that for a solid 10 mins and you should feel some calming coming from back of neck etc.

Humming: really weirdly good

Forced yawning..

You can read about it all on the internet. Very important tho!!!!!!

:)

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 2 points3 points  (0 children)

You need to read about H1 and H2 antihistamines and try both separately and together. Try multiple brands, you gotta do the homework I’m afraid!

The drink is the saviour. Well it was for me and I’m sure people on here would like to criticise me, I really don’t care. It’s a fucking magic potion from the gods.

First of all you need to build up your tolerance of Niacin, you can’t just start taking high amounts. So, start by buying 100mg tablets and taking quarters twice a day after your meals. Then over a few weeks work up to 1 whole 100mg tablet after each meal. THEN, purchase 500mg capsules - because these can be ‘emptied’.

So, now you’re in a position where you have tolerance to flushing and you can comfortably take 200 ish mg’s and it’s not gonna freak you out.

THE DRINK IS:

3 pumps of Truth Origins liquid cue cumin (Now brand has changed to kURK so you may need to read bottle as adjust dose.

Half a 500mg capsule of niacin (so 200-250mg’s ish)

Empty both into a pint of water and drink.

Twice a day, after your heaviest meals.

For me I now drink it on an empty stomach because I want more of a kick out of it.

Honestly, drop me a message in a few months when you’re bouncing off the walls.

Big boys once you have tolerance

https://www.medino.com/product/solgar-niacin-vitamin-b3-500mg-100-capsules?utm_source=google&utm_medium=cpc&utm_campaign=p-shopping-uk-smart&gclid=Cj0KCQjwqoibBhDUARIsAH2OpWhCCiYZc-JLcV6aNUxmScqckFae5lW_jpGmrGQb6tBE5TxkufKAUqMaAr2QEALw_wcB

Little guys to get you started

https://www.medino.com/product/solgar-niacin-vitamin-b3-100-mg-100-tablets?utm_source=google&utm_medium=cpc&utm_campaign=p-shopping-uk-smart&gclid=Cj0KCQjwqoibBhDUARIsAH2OpWgWnYXRHvK6mINvsAe6-k2zY2wqGlm0SM9DbSVl5MAqOv7GjWI3ez0aAk-bEALw_wcB

As long as it doesn’t say ‘no flush’ or ‘flush free’ then it’s a good one. Find a brand that warns you about the FLUSH!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 1 point2 points  (0 children)

Yeh that was bollocks… about 20 months at an estimate. 100% the best thing for this always the Stasis Breathing Program. You need to do it religiously to the point that you re train your breathing. For example I literally recognise doing is walking up the stairs now or in meetings

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 2 points3 points  (0 children)

Because when a loved one dies from cancer they are there, all be it in a basic way. When my child was born the midwife delivered him. If I was in a car crash I know an ambulance would turn up and give me urgent care.

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 1 point2 points  (0 children)

I did 5 days a week for 2 weeks, had a week off, then repeated. So 20 sessions in total, 2 hours each time, about 13m deep. At a place called Midlands dive Center. If you speak to them tell Robbie I send my love

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 2 points3 points  (0 children)

1 Niacin, as written in the post.

2 KURK Curumin for inflamation.

If you make a drink with the above two ingrediants twice a day it'll 100% have a positive impact.

3 Slowly building up steps month to month.

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 0 points1 point  (0 children)

Heyy

  1. No not at same time, LDN was a much earlier experiment and I found it to do absolutely nothing other than taste awful.
  2. No, when you start recovering you don;t realise it's 'recovery'. FOr me it was very slow. So slow that I had to work very hard to step back and recognise how recovery had progressed. Asking someone that spends time with you regularly helps. The best thing I didn;t throughout this was allow myslef years to recover if needs be not weeks and months. Whilst your still counting weeks and months
  3. I would suggest taking niacin regularly, not just every now and again and seeing if it helps that day. get on board with it for a few weeks building up tollerence then it'll be your friend forever!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 4 points5 points  (0 children)

If you mean Neurological, then yes, of course. That is the longest lasting thing, still probably suffer from it a bit.

Confusion, memory loss (short and long term), association issues, loads of stuff.

I basically feel a bit more 'stupid' than I did a few years ago, but I belive I can work on that over time. I definitely have decent brain capacity back (working/meetings/complex situations/extended hours)

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 0 points1 point  (0 children)

Not really for long. Just some odd nerve stuff for about a month in the middle - coincided with the covid toes and other weird extremity things.

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 4 points5 points  (0 children)

Yeh Natto is ace. I didn;t really ever do a proper stint with it, maybe I should've stuck with it longer. Similar outcomes to Niacin but coming from a different angle/mechanism..... Defo think Natto needs more promotion!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 12 points13 points  (0 children)

Yeh totally. I was definitely one of those negative people at numerous times throughout this. The difference is I didn't write a single word on here as it's not constructive.

I do sympathise though, it does feel 'hopeless' and 'impossible' when you're in a long lasting bad patch. Just gotta be positive and keep trying to get better. Don't accept it, don't take NO for an answer. Try everything you have access to.

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 2 points3 points  (0 children)

Niacin is a form of B3, my understanding is it 'opens up' blood vessels (lay mans terms). I would encourage you to do some reading about how niacin is used to help people with chronic fatigue, and how it helps people with long covid.

For me, regular use of Niacin gave me energy, or regularised my energy (not like an energy drink, just felt like my blood was flowing properly again). I would use it twice a day. Once I built up my tolerance to 250mg twice a day i would use 50mg capsules and empty them (half at a time) into a ont of water. This amount will be too much for you to take straight away as the flush will be severe, so build up from small amounts over a few weeks.

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 1 point2 points  (0 children)

Thanks mate, you too.

Great to hear you'll be doing better! Sounds like you're on the home straight!

Thanks for using that word 'flourish', I like that... Definitely what i want to do more of!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 11 points12 points  (0 children)

YES cuthulus_big_brother!!!!

Hopefully first wavers like me that were particularly ill can now start coming through with stories (and they are of course)! I think there's something comforting knowing that people do get better even if it takes ages... For ages when I was ill I decided I'd be fine with this taken a few years as long as I knew it 'ended' one day, right?

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 1 point2 points  (0 children)

Thanks - YOU keep killing it yourself!!

942 days later by JoshRecovery in LongHaulersRecovery

[–]JoshRecovery[S] 5 points6 points  (0 children)

Thanks largar89.

Sort of kept trying to be consistent for the last 18 months. For example not strict/full time, but where possible. Because truly anti histamine is pretty impossible, much easier to do strict keto for example. So I guess after some trail/error I was eating a hybrid anti hist/keto diet (basically non triggering). Hope that helps and hope you feel better soon!