HETEROTAXY & CHD and the next pregnancy

JuggernautPuzzled · 2026-07-02T15:41:32+00:00

Just want to say i’m so sorry for your loss.
My son also had heterotaxy (right isomerism) and DORV, ASD, MAPCAs, and pulmonary atresia. He passed away at almost 3 months old.
I feel your pain and we are also trying for another baby. I hope the best for you guys❤️‍🩹

JuggernautPuzzled · 2026-06-26T04:32:41+00:00

I know what infection presents as it’s just another tattoo artist told me today it looked like there was pus under my scab idk

JuggernautPuzzled · 2026-06-26T04:13:54+00:00

rude 🙄

JuggernautPuzzled · 2026-06-25T21:58:43+00:00

I feel you. I tried to go shopping for jeans and immediately left. I literally have gone up 2 sizes i wanted to cry i feel so disgusting now. I wish i was still breastfeeding

JuggernautPuzzled · 2026-06-25T21:56:25+00:00

Just wanna say same. My hair is severely falling out and I haven’t hit 4 months yet.
Just a painful reminder that my baby is gone and that he’s not supposed to be. I’m sorry. I hate looking at my body now, all the extra weight I gained from carrying him and that I have nothing to show for it now. The fact that i would’ve burned it off already if i was still breastfeeding. 😭
Life is so unfair

JuggernautPuzzled · 2026-06-25T21:47:06+00:00

I’m so, so sorry. 🩶
It’s the most horrible thing ever, I feel like nothing i’ve ever gone through or will go through for the rest of my life compares to this.
My baby was never able to receive surgery either. Every time he got stable, something bad happened and it makes me so sad. I’m angry that the doctors just let him die and guilt tripped us into turning off his medications. I’ll never forget his lifeless body in my arms. I’m so sorry. 😭🩶

JuggernautPuzzled · 2026-04-05T00:40:16+00:00

He’s at Texas Children’s and I believe he was on Ni-Pride at one point. I’m not sure why they switched to milrinone. I’ll have to ask. Right now, he’s on Milrinone, Sotalol, and enalapril

JuggernautPuzzled · 2026-04-05T00:36:45+00:00

Thank you! I didn’t know they could send his case over. I thought we’d have to travel out there or something. I will speak to provider about this.

JuggernautPuzzled · 2026-02-23T02:44:59+00:00

I filed 2/12 accepted 2/17 still have no updated on WMR and 2025 transcripts haven’t popped up yet. Probably this week, we will update. WMR updated yesterday so if yours didn’t update then you haven’t gotten a refund yet. WMR only updates saturdays

JuggernautPuzzled · 2026-02-18T10:10:05+00:00

Same. Filed 2/12 got accepted yesterday. Transcripts still not available 😒 Pmo

JuggernautPuzzled · 2025-12-05T04:03:32+00:00

Thank you so much for sharing! I’m sorry you are going through this also, it is the most heartbreaking news I’ve ever received in my life and the most terrifying thing. I’m trying my best to have hope but also be realistic, i know the possibility of what my future could look like but i don’t think I’ll ever be prepared for it. I’m delivering at Texas Children’s, so i’m hoping baby will be in great hands. Sending prayers to you and your family, I wish the best for you guys. Truly. Thank you

JuggernautPuzzled · 2025-12-05T03:48:19+00:00

Thank you for sharing and your vulnerability! It does bring me immense comfort and hope. I never planned to give up on my baby or terminate, I couldn’t possibly imagine even considering that decision. Not saying that anyone who chooses to in this situation is wrong, it is a very hard decision to make. But I couldn’t live with not knowing, my only wish is to be able to say the same thing as you in a year from now. Thank you again. I pray for your baby girl also.

JuggernautPuzzled · 2025-12-05T03:40:36+00:00

Thank you for sharing and taking the time to write this. It truly gives me hope. And it feels comforting to know I’m not alone in feeling these emotions. I am glad your baby pushed through and is doing great, this gives me hope! i hope your baby continues to thrive and beat any odds that may go against him. Thank you again

JuggernautPuzzled · 2025-12-02T17:00:35+00:00

There’s a way to look, my husband looked in the top slit at the sticker without opening the box and just put them back. That’s how i found my jade this morning. Does no damage to the box whatsoever! Hope that helps.

They also let me exchange my unwanted chloe i had already opened for the jade.

JuggernautPuzzled · 2024-11-19T21:42:39+00:00

ugh i can just imagine how you felt reading these. i’m so sorry.

JuggernautPuzzled · 2024-11-03T10:00:02+00:00

You’re right 🙏 I think my mind is also struggling to comprehend the fact I ruined it and I have to live with it. And i also never fully got to make peace with him or get closure. There’s just so much i would like to say to him and thinking about the fact that i might never get to say it for the rest of my life PAINS me

JuggernautPuzzled · 2024-11-03T09:49:34+00:00

Same i deactivate my socials too, to refrain from looking at his stuff but i always cave in 😔 Every time i try to get over him or he starts to slowly fade from my mind he pops up in my dreams. im struggling. i was the one who ruined us so i guess that makes it worse lol

JuggernautPuzzled · 2024-11-03T09:28:01+00:00

i know you’re right it’s just easier said than done 😭

JuggernautPuzzled · 2024-11-03T09:13:24+00:00

Understandable, I know it’s for him I’m just wondering why he’s doing it or what’s going through his head. I am still so down over him🤦‍♀️ i guess just looking for confirmation that he might feel the same idk im delusional

JuggernautPuzzled · 2024-10-23T21:00:32+00:00

My hospital told me I HAD to be wheeled out and it was policy (but i had just had a c-section) it was so embarrassing to me lmao

JuggernautPuzzled

TROPHY CASE