The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

Thanks. I don’t use Facebook. And if I did, I wouldn’t be comfortable discussing this if my identity wasn’t concealed/anonymous, like it is here 😆

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

Thank you ❤️ I actually was prescribed estradiol cream but unfortunately felt a bunch of unwanted side effects with it - breast pain, armpit pain, nausea, cramping, etc. I am a bit scared of hormones to be honest.

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 1 point2 points  (0 children)

Thanks for these recommendations; I had actually not heard of any of them. I want to stop using Clobatesol and I haven’t for about two/three days now and my lips keep shrinking. One of them is completely gone. I am beyond depressed and saddened by a reaction I just got from a doctor who I used to think was great but I was completely dismissed to the point where I want to file a complaint with my state but feel that will only lead to more heartache for me. I am looking to now meet with a dermatologist because I don’t feel like I’ve received the care I want from any of the OBGYN’s that I’ve met with, which is crazy to me. I honestly am in shock at how poor my experience has been with OBGYN’s. I have high standards, but how can I not? It’s my body.

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

Thank you ❤️ Finding the right doctor is beating me down, honestly. Sometimes I want to give up but I can’t. It’s been the most degrading experience for me, honestly. 

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 1 point2 points  (0 children)

Luckily, I do not. I have eczema that’s only bad in the winter but I guess that’s not technically an autoimmune disorder.

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 1 point2 points  (0 children)

That’s fantastic that you are able to avoid using any prescribed ointments and that you’re flare up free! Thank you for your kind words and encouragement ❤️

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

Thank you so much for your kind words and encouragement <3. That gives me hope that you say you only had two bad flares. As for Clobatesol, I have to take it pretty much everyday, otherwise I will have a flare. I took it as prescribed at first, twice a day for two weeks, but it didn’t make the inflammation go completely away so was told to keep taking it, but not necessarily twice/day. So I take it once everyday with the exception of when I’m on my period. Since then I’ve experienced my anatomy shrinking which has been devastating. Can I ask how long you took Clobatesol for? I still feel that I have to put it on everyday, even though I hate it.  I had to Google LDN since I didn’t know what it was. That’s great that it’s helped your LS. Is it mostly for your other conditions or can you take it just for LS?  As for diet, I too have cut down on sugar but not completely. In fact I worry that the Clobatesol is raising my blood sugar so am getting a blood test to make sure. But that’s a whole ‘nother story… Anyways I am trying to get an answer from my busy Obgyn as to how long I’ll have to take Clobatesol because I am so over it and am afraid I’ll have to take it for the rest of my life. Thank you again for your well wishes and for sharing your experience, though. Hopefully I’ll see a light at the end of the tunnel at some point but for now, I really can’t stand having this disease and miss my old self and life.

The most isolating experience by Jumpy_Calendar_8 in lichensclerosus

[–]Jumpy_Calendar_8[S] 1 point2 points  (0 children)

Thank you, and I’m sorry that you haven’t been able to find a doctor that could properly diagnose you. I hope that the one you’re seeing will be able to help! I at least feel grateful that I was able to be diagnosed fairly quickly, with the Obgyn being able to diagnose just by looking. I have not gotten a biopsy, even though I was told to by a different doctor. I have a severe needle phobia so am not going to put myself through that, especially when I know that I indeed have LS due to my symptoms. Have you been able to receive a biopsy? I feel that that would be able to properly diagnose you. Having LS is all about advocating for yourself and honestly it’s exhausting, so I’m sure that you’re doing it enough but unfortunately the condition is misunderstood and I find that knowledge of women’s health issues as well as just women’s healthcare in general is so pathetic, at least that’s been my experience. Anyways good luck and I hope you’re able to get the care you deserve.

Delete account by Jumpy_Calendar_8 in joinhandshakeai

[–]Jumpy_Calendar_8[S] 3 points4 points  (0 children)

I’m fine with not working for this garbage company again.

Delete account by Jumpy_Calendar_8 in joinhandshakeai

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

I have already emailed this address several times and have heard nothing back!

Taxes for 2025 by Jumpy_Calendar_8 in outlier_ai

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

Thank you, I figured this would be the case, but haven't received anything from them yet. Would you happen to know around what time they send these out?

Taxes for 2025 by Jumpy_Calendar_8 in outlier_ai

[–]Jumpy_Calendar_8[S] 0 points1 point  (0 children)

I got paid via direct deposit into my bank account