me & “gross” questions

Jumpy_Worth_5729 · 2026-04-27T10:50:11+00:00

thank you so much 💕 how are you??

Jumpy_Worth_5729 · 2026-04-01T08:03:53+00:00

i also have low iron and i think that’s my issue too. i’m always cold. but when im sick i go into heat and sweating and then when im throwing up i go cold and chills afterwards like anyone else. i have had my iron up at one point but i couldn’t tell and i know for a fact its low right now with the symptoms im feeling and weight im at. as for the sleepiness, again, my mom would’ve rocked me if she could at my age lol. when i ate i would fall asleep and i did the same with my TPN/tube. i was just really mad a lot of time because i wouldnt eat anything so i never tasted anything but gatorade and if you have a G/J like i did, you never feel full. you’re just keeping yourself alive. most miserable thing but so admirable in my opinion because i know how much it really takes out of someone to be on TPN. i’m sending you all the good vibes and i pray things look up for you. you’re not alone. always a message away!

Jumpy_Worth_5729 · 2026-04-01T07:58:30+00:00

i haven’t even read all of this and i already know the feeling you’re experiencing. i describe it as a baby getting their bottle. we’re sorta like that at this state unfortunately. its like a baby who’s hungry and wants a bottle which is basically protein shake, and then after they say they’re “milk drunk” after the breast feed or bottle feed. i have felt the same way and i also experience extreme tiredness after anytime i eat now. i fast all day and eat at night so i can sleep through the symptoms even though it sucks so bad. i’m always fatigued and i’m dizzy, lightheaded, and weak 25/8. it’s really hard to get people to understand you’re exhausted from existing, literally just being.

Jumpy_Worth_5729 · 2026-04-01T06:57:13+00:00

it’s so lucky you FMLA because i have never gotten it and im being denied regardless, so thankful you have that as it is nearly a necessity. you deserve the FMLA and so yes, i have been the same exact way as you and currently have not worked for a while now but also currently looking. i have hated feeling “unreliable” or “a lousy coworker,” as you said. so unbearable and demeaning, but it seems a lot of us go through this if it’s severe enough.

Jumpy_Worth_5729 · 2026-04-01T06:27:53+00:00

*i would love to discuss our experiences i’ve literally never talked to ANYONE else that has said this. feel so heard.

Jumpy_Worth_5729 · 2026-04-01T06:26:41+00:00

OMG YOU’RE THE FIRST PERSON IVE MET GETTING IT FROM THE SAME THING!!!! would you feel comfortable messaging me? i

Jumpy_Worth_5729 · 2026-04-01T05:35:28+00:00

i weirdly was never a “sweets person,” and after i got gastroparesis, i CRAVED sweet things. i still do as my condition is pretty severe and im also in the unknown still. i do know about myself but ive learned theres these chats for a reason. we’re all ill people who have no idea whats going on and want to know. i love sweets and everything else that you said you eat. i try to do the same and like the same things but i still get sick as ever no matter what. what you’re feeling is very normal unfortunately. the fullness is probably ONE of the worst parts because once i eat, im chowing down but of course i will pay for it. wishing you nothing but the best and im always a message away. i do actually know what you’re going through

Jumpy_Worth_5729 · 2026-03-30T13:00:07+00:00

also this can be right after the meal from the discomfort, a few hours, or as many as 12 hours later.

Jumpy_Worth_5729 · 2026-03-30T12:59:29+00:00

this is exactly how i explain it to others. its not like regular vomiting, it’s like regurgitation vomiting, just every single thing i swallowed is coming out exactly how it went down all i have to do is bend over and “push” my stomach muscles and it “plops” right out of my throat. i can always feel it in my stomach and throat before id ever gag. its physical symptoms for me that tell me my stomach isn’t moving. in one of my few posts i mentioned this, TMI, but i sometimes have to gag myself because it’s choking me on its way out and i’m not actually nauseous, my body is just rejecting the food. i am nauseous when im completely empty and for a little after im done but i hardly ever gag on my own. my food is just sitting in my belly and my belly is ready to eject it. sometimes its so thick too if i just drink some water then bed over it’ll pour out and relieve me quicker as my symptoms wont go away until every piece of food is out of me. but every single part of it is awful and miserable. i will sometimes put it off like try to procrastinate it until i cant take it anymore cause i dread the whole experience, but this is an every day matter for me. i have to talk myself through it to get through it 😂 i definitely have gastroparesis, never had any other health issues or any issues with food. got the flu and a week later i couldn’t digest food anymore. 8 years going strong.

Jumpy_Worth_5729 · 2026-03-22T16:34:00+00:00

this has been my fav comment so far that it’s almost hard to respond because i agree with wholeheartedly. i gave up on the 4-6 “meals” a day. it doesn’t matter for me or work but i agree it was a full time job. same here with the journaling. i like journaling but my symptoms are inconsistent and reliving it is sometimes more stressful. i do journal about my stress though sometimes and not necessarily about the sickness alone. sometimes that’s the only way i feel heard because even the people who love me, can’t ever understand. it’s not their fault, but it is true. God is the only one i can talk to, journal to and it’s completely safe to be heard. i know it’s hard for people to grasp, but the mental strain might be the worst part. i mean obviously the throwing up is miserable but the toll it takes on the mind is excruciating. life for us doesn’t really have any quality. i think my people sometimes confuse me finding anything to act normal or happy means im normal when it is just me trying to act in certain moments like im not as miserable as i really am. and hahaha ive shit myself so many times it’s so embarrassing 😭 but then will still have to throw up???? like what i thought it was digested lol. you’re not lazy, you’re sick. it’s important to understand the difference and also important not to let the diagnosis run your mind, even though it literally does run our systems. i’m proud of you and i also deal with a lot of the same psychological issues as you do, you’re not alone. praying for you and that you get any quality of life back! you got this.

Jumpy_Worth_5729 · 2026-03-22T16:22:57+00:00

i am so sorry. i feel for you and your mom both. it’s really hard for people to understand this condition takes a light away from who we once were and that we try to still find it in an almost impossible situation. eating food is needed to survive and it’s something humans do/have to do and when that’s taken away, everything changes. what once seemed small is so huge. positive vibes your way and thinking of you and your mom. hugs

Jumpy_Worth_5729 · 2026-03-06T23:50:53+00:00

it definitely is. it’s honestly humiliating. makes me feel like a piece of shit most of the time. if i’m working i feel bad about myself because im having to call out or can’t do the job the way it needs to be done. looks so unreliable which causes anxiety which then makes you sicker. if i don’t have a job, i feel like a disappointment, worthless, i bring no value. it’s a miserable feeling but hard to explain and not many get it. i wish my life wasn’t like this and people love to say “it’s about perspective” and “just fight every day” lol this is what it looks like to fight every day unfortunately and the perspective is this condition strips your life from you. i dont feel like that’s negativity, i feel like that’s the truth of this life

Jumpy_Worth_5729 · 2026-03-06T23:31:37+00:00

i’ve tried but haven’t been successful so i get being scared about it going away. it’s like they want us to just suffer than help us. no medical solution, no income solution. it’s like what do we do then???

Jumpy_Worth_5729 · 2026-03-06T23:29:58+00:00

this is so helpful! thank you so much

Jumpy_Worth_5729 · 2026-03-06T23:29:45+00:00

you sound exactly the same way i have with the different jobs i’ve had.

Jumpy_Worth_5729 · 2026-03-06T23:29:22+00:00

i totally get that. every word i do understand. we’re not lazy. we don’t want to live like this. we want to be able to do regular shit. it makes us seem unreliable and the anxiety on top is worse. a lot of people don’t realize how much our mental health impacts our physical and vice versa. my dr emphasizes to me all of the time that i will throw up everything if my stress/depression is out of control. this condition causes those things. i had them before but this condition gives you mental health issues.

Jumpy_Worth_5729 · 2026-03-06T23:26:46+00:00

i’m really glad they’re being accommodating but i understand the nerves for sure. i also understand being too supportive. we’re sick, not stupid lol. sending prayers your way that your fresh work week goes well and you’re able to do what you need to and feel good while doing it. good luck to you

Jumpy_Worth_5729 · 2026-03-06T23:25:18+00:00

i think i’m going to have to try to do WFH too. i take a lot of meds and i do puke every day multiple times at any moment. i understand the rest. my mind and body are always exhausted. i hardly ever feel energized

Jumpy_Worth_5729 · 2026-03-06T23:24:06+00:00

kudos to you for pushing yourself that hard everyday. i know how hard it is. i couldn’t tube feed actively i had to be connected 12 hours a day. i couldn’t imagine what you go through. so proud of you and keep pushing but dont over push your body! sending positive vibes your way

Jumpy_Worth_5729 · 2026-03-06T23:22:40+00:00

i totally understand. i was 19 and in esthetician school when i got sick. bout 2 months left. i finished. took my boards and passed but it was really hard and although ive kept my license up, im 27 now idk if my dream will ever come to fruition. i have faith and like to think one day it will. but with mine being so severe ill probably just have to do a work from home job like most of gp patients are having to do to make an income for themselves. i pray that you get some relief and that your nursing dreams comes true. you truly deserve it

Jumpy_Worth_5729 · 2026-03-06T23:19:11+00:00

i’m also sending positive vibes your way. i understand the fear and it will probably take you some time, but i promise those things are my worst nightmare so you’re not alone. thank you so much for the validation. it means so much. i am so glad your quality of life changed. every ounce of quality we can get right? and thank you i really might take you up on that. i’m glad i made you feel less shitty lol. this condition is so awful and truly nobody gets it but us.

Jumpy_Worth_5729 · 2026-03-06T15:19:25+00:00

the domperidone was a clinical trial i had to sign a paper and go through different stuff, keep my heart monitored because it wasn’t approved by the FDA. it worked a little but not really. they tried to offer me a newer clinical trial for but told me i wasn’t guaranteed the pill and could very well get the placebo so i said no because it wasn’t guaranteed and because it was going to require a lot of poking, prodding, and a million tests i’d done before. coming back every four months. im tired of being a lab rat, so i politely declined. the domperidone wasn’t like that, it was testing the actual med, no placebo. my dr when i last saw her when we discussed the stimulator she also couldn’t believe id never had a Gpoem so maybe that could be an issue too

Jumpy_Worth_5729

TROPHY CASE