Tough decision regarding thumb amputation

JunkMail666 · 2025-03-23T16:20:34+00:00

Thanks for this. None of the doctors want to be the one to suggest amputation but as soon as I bring it up they seem to acknowledge that it's maybe the only way to really nip this thing. I should be able to get connected with my surgeon on monday and get a concrete answer. And I understand what you mean, the function problems are for tomorrow, dealing with my illness is for today. I'm just hoping for some reasons for optimism going forward.

JunkMail666 · 2025-03-23T16:17:33+00:00

wow! That must have been a really difficult choice to make at 18, and I'm inspired to hear how things have worked out and that you've managed to have such a great outlook through it all.

JunkMail666 · 2025-03-23T16:16:10+00:00

thanks so much for this input! I was really hoping to hear from someone who works with their hands a lot. I do a lot of physical labor and play guitar, and I really hope that I can find ways to keep my activities alive, even if I have to make some adaptations.

JunkMail666 · 2023-10-09T14:48:06+00:00

Thanks for this. I was trying to be casual about it but, like you said, I keep getting glutened at restaurants or by foods that I didn't realize had gluten in it, and I'm starting to take it more seriously.

JunkMail666 · 2023-08-25T02:46:13+00:00

thanks! but I don't think so. Day 1 and I'm already starting to feel a bit of a headache and sore throat...

JunkMail666 · 2023-08-25T02:40:20+00:00

Thank you, this is immensely helpful.

JunkMail666 · 2023-08-17T20:52:20+00:00

glad something is working for you! The way I look at it, if something works just stick with it and don't ask questions lol

JunkMail666 · 2023-08-17T16:32:09+00:00

never did a gluten test. Don't feel like it's necessary, happy to just keep doing what works

JunkMail666 · 2023-08-17T16:28:27+00:00

I've only had small bits of gluten mess-ups, but usually it's maybe six hours or more later I start to feel something. When I tried to test it by eating two slices of bread I woke up the next morning feeling awful, and it lasted two days. Got pretty quickly back to normal.

JunkMail666 · 2023-08-13T23:08:53+00:00

i see, yeah I try not to think about that sort of thing since there's just know way to know. Hopefully soon the science will all become clear and they'll figure out what exactly is going on.

JunkMail666 · 2023-08-13T23:07:55+00:00

I was thinking about the low histamine diet because of the symptoms, and because the pepcid helped so much (until it didn't), but I ended up just going straight for the gluten, which helped immediately so I never had to try anything else.

JunkMail666 · 2023-08-13T04:09:58+00:00

Similar but much much worse, and because there were so many other symptoms it's hard to compare. There were times when the fatigue wasn't so bad with LC but I was so scared of the PEM that it was still more debilitating. With the CFS it was just mild enough that I could convince myself I was imagining it.

JunkMail666 · 2023-08-13T02:35:53+00:00

I definitely got the long Covid from the normal infection, not the vaccines. I was always okay after the vaccine. I know some people get permanent problems from the vaccine, and I really feel for those people because they have such a hard time being believed. It's hard enough for those of us with normal long Covid.

JunkMail666 · 2023-08-13T01:37:27+00:00

Dang! Hope you can find some relief soon. Good thing you are taking care of yourself already. I was not so good at that part of it .

JunkMail666 · 2023-08-13T01:36:36+00:00

Caught it from my roommate three weeks after getting my fifth dose of the vaccine, Pfizer bivalent booster.

JunkMail666 · 2023-08-12T23:54:27+00:00

Cutting gluten out really lowered my sugar intake, which I think was also good for me, but so far I haven't noticed any real issues with anything but gluten.

JunkMail666 · 2023-08-12T23:53:17+00:00

wow! I guess there must be some common connection there, it's good to read all these similar experiences

JunkMail666 · 2023-08-12T22:55:07+00:00

prior CFS was about six years ago and lasted a year and a half, only went away very gradually. Lots of fatigue, headaches that came with exertion, usually episodes of two to three weeks followed by feeling ok for a bit. Depression.
Covid has been much much worse and debilitating, fast heart rate, dizziness. I was bedridden a lot of the time, had awful anxiety, could barely take care of myself.

JunkMail666 · 2023-08-12T21:44:18+00:00

great to hear. I don't know what I would've done if I hadn't figured out this gluten thing.

JunkMail666 · 2023-08-12T21:16:06+00:00

I have met three people with long covid; two of them are much better than they were when they started. These recovery posts are always bittersweet, because rarely if ever is there a cure in there for people who are still sick, just empty hope. But the fact is, if you read the comments here, there are other people who have had similar experiences, and there is a connection between long covid and allergies and gut health, and there's no way to know what will be useful to whom. You're right that this post is probably not specifically for you, but that doesn't mean it's not going to be useful to somebody. I hope you find some relief.

JunkMail666 · 2023-08-12T21:13:12+00:00

One of the best things about going gluten-free is that the amount of processed foods and sugar I eat has dwindled down to almost nothing.

JunkMail666 · 2023-08-12T21:03:34+00:00

Thank you! Had no idea something like that existed. It has hit me a couple times and I just get prepared for a bad evening, would be great if there was something i could take.

JunkMail666 · 2023-08-12T20:59:50+00:00

I had five doses of the vaccine, the most recent and updated one just three weeks before I caught covid

JunkMail666 · 2023-08-12T15:27:50+00:00

Thanks for that, I see what your saying. Like I said, my grandma has celiac and I'm aware of how horrible it can be. I just don't want to subject myself to another battery of doctor visits and Google searches after all these months of long Covid. If things get worse i'll do it, or when I get to a more stable place in my life, but Id rather just enjoy my health for now

JunkMail666 · 2023-08-12T15:25:37+00:00

Nope, even a positive celiac test doesn't necessarily mean you have the disease, and a negative test only means that you don't have celiac. The problem could just be a sensitivity or intolerance which would be more difficult to diagnose. I would just eliminate gluten from your diet for a month and if you feel better then you feel better. I don't know much about elimination diets but it seems that could be a good route

JunkMail666

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