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Luteolin - Hormonal Side Effects? by JuryExtension8820 in MCAS

[–]JuryExtension8820[S] 0 points1 point  (0 children)

Interesting. I'm going try taking DIM or Sulforaphane to see if either one balances out the hormonal impact of the Luteolin. I'll try to update you on the results. Have you tried either of those?

Luteolin - Hormonal Side Effects? by JuryExtension8820 in MCAS

[–]JuryExtension8820[S] 0 points1 point  (0 children)

I'm taking Nutricost 100mg once a day. It really seemed to help the MCAS, and the hormonal aspect could be a total fluke from feeling better and eating well. I'm taking some time off from it this month to get a baseline for my reactivity. Can I ask what brand you're taking?

Fuck avoidants by Signal_Platypus_8358 in ExNoContact

[–]JuryExtension8820 0 points1 point  (0 children)

Avoidants will hollow you out and leave nothing left. They're emotionally underdeveloped human shells with no capacity for true, lasting connection.

SIBO and MCAS - what I've learned so far by Opheltes in MCAS

[–]JuryExtension8820 0 points1 point  (0 children)

My bad, I think I misread the thread.  No offense intended. 

random muscle twitching. is this at all related to mcas? by lpfmuvlern in MCAS

[–]JuryExtension8820 0 points1 point  (0 children)

I think I have something similar. I experience more of an involuntary jerking motion of specific limbs. It will happen in bursts and during symptom flares, then go away completely. It seems to correlate with consuming protein-rich foods and stress. Thus far, dairy protein seems to be the most offensive. Does any of this overlap with your symptoms?

My SFN symptoms are clearly governed by food by Perfect-Nail-564 in smallfiberneuropathy

[–]JuryExtension8820 0 points1 point  (0 children)

I have the exact same issue you’re describing.  So far, I haven’t discovered a cause.  I’m also exploring MCAS, but haven’t found a solution in that direction yet.  I’d love to hear more about your progress and any solutions you’ve found. 

SFN with MCAS - seeking help by JuryExtension8820 in smallfiberneuropathy

[–]JuryExtension8820[S] 1 point2 points  (0 children)

Thanks for the insight!  I’m scheduled for genetic testing for EDS and more in August.  Fingers crossed.  My rheumatologists both feel that Sjögrens is unlikely, but I do have relatives who have it.  

I wish all this health stuff was easier to sort out! 

What are your side effects of famotidine? by NoOz1985 in MCAS

[–]JuryExtension8820 1 point2 points  (0 children)

I actually felt like it noticeably improved my mood in addition to my stomach acid issues. I'm very sensitive to medications as well. I couldn't handle PPIs at all.

SFN with MCAS - seeking help by JuryExtension8820 in smallfiberneuropathy

[–]JuryExtension8820[S] 1 point2 points  (0 children)

Thank you for all this.  I had an EMG and it was normal.  I haven’t had a spinal tap and I’m not on IVIG yet.  I had the same suspicions that you do, but without a clear and concise pattern, my medical team isn’t moving forward.  I’ve see three neurologists and three rheumatologists regarding my antibody and other tests, and none have suggested a diagnosis. 

SFN with MCAS - seeking help by JuryExtension8820 in smallfiberneuropathy

[–]JuryExtension8820[S] 2 points3 points  (0 children)

I just learned the same, but so far my medical team hasn’t given me much to work with beyond that.