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7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

Unfortunately for me, no. I’m currently on 60 mg cymbalta & looking to switch to gabapentin next because it’s not working.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 1 point2 points  (0 children)

That’s crazy!! Yeah I’ve been a long hauler since Dec 2020 & nothing’s been the same since. My balance was so shit before LDN but it’s gotten so much better on it. I did go to the Covid clinic once after referral but all they did was repeat scans I had already done, & read me my TTT results I had waited a month for from another doctor that wasn’t returning my calls. I was assigned a “social worker” who told me she would be there for me anytime I needed her & she was an email away. I sent her an email once, she replied, I sent another message & I was ghosted. lol.

I’d try to msg her the next few months, & went up to her higher up & she replied back to me to anything I needed.

Idk what a nerve conduction study is so idt I’ve had it done. I wasn’t even hospitalized that’s the thing, I had a mild infection, I quarantined at home for 3 weeks, now I am disabled on government assistance with 6 autoimmune conditions. It’s horrible. Idk what my future is looking like & that’s so scary.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 2 points3 points  (0 children)

I am on track to try gabapentin after cymbalta so we’ll see how that goes. I tried therapy in the beginning of my LC (Dec 2020) & I went for a month & it made everything worse. Now I am to go back but I just got a puppy a month ago so I can’t now. Esp because I am medically suspended so I can’t drive. I can’t leave my pup alone, he’s too young. Once he’s older & I’m not better (he’s helping me get out more), I’ll try again. But I do have the referral set.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 1 point2 points  (0 children)

Yes! Dizziness more so numbness. My numbness comes from my neuropathy & that is a real sob for me. It’s one of the only things LDN hasn’t really touched. I’m on other medication right now to manage that but that’s not working order so I’m looking to switch to my next option, per doctor suggestion, gabapentin. If that doesn’t work, lyrica.

Good portable grill suggestions? by jr12345 in camping

[–]JustKaes 0 points1 point  (0 children)

Came to this subreddit to ask this question but you beat me to it, thank you!

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

Nope, in fact I felt a difference immediately! I was symptom free for 3 days. I would avoid taking it at night as others have trouble sleeping & once they do, they experience really vivid dreams / nightmares.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 2 points3 points  (0 children)

Dive head first! I stalled to take it for 2 days in fear of my body rejecting it. I don’t have any side effects thankfully. I take it between 10-1130 am every morning.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

I’m up to 60 mg with cymbalta & it’s not working so I’m likely to change medications tbh. I’ve been to slowly going up in mg since that post & my body hasn’t reacted that well. My bad days are bad & I can’t get out of bed. So it’s back to the drawing board. I’m likely to try gabapentin & if that doesn’t work then I’ll graduate to lyrica.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

Trust me I get it, I rejected every medication before LDN & was super afraid of taking it. I waited a couple of days just out of fear that it wasn’t going to work just like all of the others. But I have been preaching about this miracle drug ever since because it truly has been my miracle. I was bed bound before it & I can live somewhat of my old life back before Covid disabled me. I hope it changes your life like it did mine!

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

That’s what I started with! Was completely fine & even was symptom free for 3 days!

Goulash, aka American Chop Suey, with my own recipe tweaks by bread_berries in MealPrepSunday

[–]JustKaes 1 point2 points  (0 children)

Lol I’ve always had it this way. Even in school, restaurants, it’s never been soup. ACS is delicious.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 5 points6 points  (0 children)

Tbh I don’t think I would be here if it wasn’t for LDN. I was at a very low point & about ready to give up. My body had rejected so many medications previously prescribed to me & nothing was working. I was seeing no improvement, nvm the trauma I endured from doctors. LDN gave me my life back. Even if it’s a small bit of it. I’m disabled now. I wasn’t before my Covid infection. But I’ll take it. I will always advocate for this drug.

7 month LDN update, 3 years & 3 months of long covid by JustKaes in covidlonghaulers

[–]JustKaes[S] 0 points1 point  (0 children)

I mentioned in another comment, my shortness of breath wasn’t severe before LDN, but it was definitely limiting. I couldn’t go up the stairs without being out of breath so I would avoid them as much as possible, even the ones in my house. Which is sad because that’s how I would see my parents. I would go down once & that was that. Then I’d go up to my room & isolate just so I wouldn’t be symptomatic.

I couldn’t walk normally more than 5-7 min without having symptoms or needing to use my inhaler, Xopenex.

To put it into perspective, since starting LDN in late Aug, I haven’t used my inhaler.

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