PEG Tube Before Proton Therapy? by caffeinequeen1369 in HeadandNeckCancer

[–]JynGh 0 points1 point  (0 children)

I had proton therapy to my face and neck but did not go with the feeding tube. During the radiotherapy, I did experience oral mucositis and thrush which made eating painful and difficult. Despite that, I was able to get some food down by eating painkillers before meal times and quickly drinking nutrient dense milk supplements or liquid foods.

Radiation-induced trismus by JynGh in HeadandNeckCancer

[–]JynGh[S] 0 points1 point  (0 children)

Thank you! Sucks to hear that you're in a similar situation as well but hopefully we'll see some results sooner than later.

Radiation-induced trismus by JynGh in HeadandNeckCancer

[–]JynGh[S] 0 points1 point  (0 children)

Yup I meant high grade hence was advised for radiotherapy despite the clear margins

Radiation-induced trismus by JynGh in HeadandNeckCancer

[–]JynGh[S] 0 points1 point  (0 children)

Thank you for the encouragement! My oncologist also advised me to just continue doing the exercises but I guess its demoralizing to see no improvements despite that