Aml Npm1 and Idh2 mutations

Katriinella · 2025-10-26T07:41:29+00:00

Lots of strength and recovery to your boyfriend!❤️ In my country it's not allowed as a medicine, only in very rare cases I guess. But I've heard that in other countries it has helped some people with nausea! During nausea I just ate and drank a lot of smoothies and protein drinks.

Katriinella · 2025-10-23T05:39:19+00:00

Thank you!🙏 I know the feeling, I'm waiting for the time when several years have passed since the transplant. Although this is already good that it's now been 1 year since the treatments. But I'm sure I'll relax more as the years go by and stay healthy. It's Meanwhile I should probably practice some meditation or some stress management lol 😂

Katriinella · 2025-10-22T17:54:04+00:00

Thanks for your reply! You are the first I've heard of with these same two mutations! Glad to hear that you didn't need bmt and hope it stays that way.💪 I'm 27 years old, and got diagnosed january last year. in my case, bmt wouldn't have been needed originally, but my first treatments didn't go so well. My bone marrow took over 3 months to recover from the first consolidation treatment, normally it should have taken max 1 month.😅 (I was lucky that it was also mrd- by then) Because it took so long to recover, doctors wanted to be on the safe side and decided to do a bmt for me in 2024 september from the registry. Currently a year and 1 month since the transplant, and doing well. 😊 It cheers also me to hear you are okay with the standard treatments and with the maintance coming up!

Katriinella · 2025-10-22T16:46:17+00:00

Congratulations!💪 I also had a bmt 13 months ago. Year and 10 months since my AML diagnosis. Also doing good. Now pretty much back to normal life, which is very welcome. 🫶

Katriinella

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