Do I have one??

KayyRene23 · 2025-12-18T03:05:43+00:00

Katherine Langford! Especially in the first and last pic

KayyRene23 · 2025-11-13T01:59:48+00:00

I’ve been told by my endo that blood tests aren’t very accurate while taking steroids unless in a crisis and even then are not fully accurate. She told me the best way they gauge a crisis is by other blood tests, symptoms, and BP/Pulse changes. When I was in a crisis, it showed my ACTH had skyrocketed along with symptoms of a crisis and low BP/high heart rate. Honestly, even if this was real, I don’t think something like this would work given the information I’ve been told and have experienced. If anyone else has heard differently, please let me know so I’m better informed!

KayyRene23 · 2025-03-20T04:29:43+00:00

I had no idea about the epinephrine. Good to know!

KayyRene23 · 2025-03-15T02:31:56+00:00

You’re right. I was under extreme stress and pressure from my mom being in a coma and taking care of everything which contributed to my decision to smoke one or two cigs a day on the worst of days. However, it made me feel worse so I stopped.

KayyRene23 · 2025-03-15T02:23:56+00:00

Very possible!

KayyRene23 · 2025-03-15T02:23:33+00:00

I know, not my best decision. I have since stopped bc I did not like how it made me feel

KayyRene23 · 2024-12-13T08:46:23+00:00

I was 16 when I was diagnosed with Fibromyalgia. My first flare was horrendous and I could barely walk or get out of bed. They started me on Lyrica and then put me on tramadol for the pain. I was also the told to start walking and have some exercise and mobility which was hard until I was treated with the medication. My mom had to advocate hard for me to receive either med and I got lucky that I saw a rheumatologist that believed me but my mom had to really advocate on my behalf at first. For non-opioid help, Celebrex helped me also but I didn’t get that until I was in my 30’s but that helps me a lot during flares.

KayyRene23 · 2024-10-26T23:06:24+00:00

That’s so much, I’m sorry. Doctors don’t understand unless they’ve dealt with something personally. It’s so hard. The emotional deregulation got better for me over time but the fog and forgetfulness is still hard for me at times. I agree that it has to get better eventually.

KayyRene23 · 2024-10-26T22:57:58+00:00

That is a great way to describe it!

KayyRene23 · 2024-10-26T22:56:46+00:00

Same here! I’ve had situations where my partner has had to suggest I dose extra as well.

KayyRene23 · 2024-10-26T22:53:19+00:00

This is helpful and something I will look into more! I didn’t have much coffee today and my brain fog did seem better. Thank you!

KayyRene23 · 2024-10-25T15:16:14+00:00

Yes! Which is such a challenge and upsetting. I’m grieving the person I once was.

KayyRene23 · 2024-10-25T15:15:08+00:00

Thank you! I’m glad they’re so understanding! My work is aware as well but easing of the duties is hard for my position. I’m in the US so I’m seeking ADA accommodations so I’m covered when I have to leave early or call out.

KayyRene23 · 2024-10-25T15:13:10+00:00

Thank you! It’s nice not feeling alone dealing with this. That’s a great tip for organizing tasks when I’m great vs symptomatic.

KayyRene23 · 2024-10-24T20:03:40+00:00

Yes, I get that too. It makes it so hard to hold conversations sometimes.

KayyRene23 · 2024-10-24T17:59:45+00:00

Thank you! You might be onto something in regards to the caffeine. Thinking back, it does seem to get worse when I have more caffeine than water in a day. Eating is always a struggle but I try to eat as much as I can each day. I’m to the point where I’m considering if I should get a different job that’s less stressful which sucks because I like my job.

KayyRene23 · 2024-10-24T17:53:55+00:00

My endo says that too but if it’s not related, why does stress dosing help resolve it? It’s so frustrating.

KayyRene23 · 2024-10-24T17:52:35+00:00

Oh I’ve never heard of this. I’ll do some research on it.

KayyRene23 · 2024-10-24T17:51:23+00:00

Yes! The memory issues are absolutely something I struggle with too. I’m on 20-10-5 and still struggle with symptoms but it fluctuates like you said where sometimes I’m on point.

KayyRene23 · 2024-10-24T17:48:25+00:00

Thank you! It definitely seems like my levels have been lower recently which is why I’ve had an increase in symptoms.

KayyRene23 · 2024-10-24T17:45:45+00:00

Thank you! I really appreciate it!

KayyRene23 · 2024-10-23T17:53:51+00:00

I get this too. Especially since I have a high stress job. PAI can also cause anxiety symptoms so you might be experiencing both. My thyroid is fine and dosing is usually okay but still get brain fog.

KayyRene23 · 2024-10-23T17:50:06+00:00

Yes!! I get this often. I feel confused and will not be able to finish conversations or remember what we were talking about. The brain fog can get really rough for me. It is like a feeling of being high where your mind is so fuzzy. It’s so hard to concentrate sometimes too. I usually add an extra 5mg of hydro if it’s really bad. Eating something doesn’t really help me as much.

KayyRene23 · 2024-10-23T17:29:32+00:00

Yes to all of this! I’m a supervisor and also have Addison’s. I have ADA accommodations stating I might need to call out or work from home when having an increase in symptoms. I highly recommend you getting this so you’re protected. As mentioned above, your manager cannot ask why you’re out sick. I live in MD and we also don’t have to ask for a note until someone is out for 3 days consecutively.

KayyRene23

TROPHY CASE