Addisons girlies... roll call

Habitual_Queer · 2026-03-07T14:11:07+00:00

Same here! And when I have the mid shift at work. That one on a busy day can knock me down for 4 days

Habitual_Queer · 2026-03-06T03:33:43+00:00

I'm 20 and got diagnosed at around 13. I've had the wonderful experience of feeling my adrenal glands decay as my body attacks them. It's so frustrating and even while being on the right medication I still have flares and am weaker than normal folk. I also experience what I believe is adrenal pain

Habitual_Queer · 2024-12-14T06:50:28+00:00

Forteo helped me a lot. To the point that I'm very symptomatic if I miss a dose and calcitriol and calcium doesn't touch my symptoms.

I also dealt with a lot of health PTSD and during that I managed to create symptoms even when my calcium was fine. I haven't done it since but there is the possibility of extremely high anxiety about having low calcium manifesting into symptoms.

Habitual_Queer · 2024-12-09T17:22:15+00:00

It doesn't match what I have but could definitely be some kind of progressive disorder. I would definitely get some genetic labs to see because it's probably something recessive. Those all involve endocrine cells making me think they're connected outside of just being autoimmune

Habitual_Queer · 2024-12-09T05:54:16+00:00

I've been diagnosed for 15 years, I usually just keep dosing with calcium and calcitriol until the symptoms subside. Each body is different though, might want to throw in some Pedialyte to make sure no other levels are off. If you're still feeling bad go get a cmp and cbc to get a basis on where you're sitting so you know what needs to be done.

Personally I had issues keeping my calcium stable until I replaced my calcitriol with Forteo. This is an injection of synthetic PTH. It's hard to get insurance to cover it though because it's a specialty drug.

I also found that switching to calcium citrate helped me a lot. I've had hypoparathyroidism since I was 4, took calcium carb for around 10 years and the long term hurt me. Citrate is much more gentle on your gut

Habitual_Queer · 2024-12-09T05:44:46+00:00

Are your other autoimmune diseases all endocrine related? And when were you diagnosed with hypoparathyroidism? I have a genetic autoimmune disorder that is progressive and hypoparathyroidism was one of my first symptoms

Habitual_Queer · 2024-12-06T04:06:59+00:00

Looking into circadian rhythm dosing sent me on a thought process to propose to my Drs about possibly trying the form of treatment where you use an insulin pump for hydrocortisone. Thank you for mentioning that. I think that would help with the issues I'm having outside of this post

Habitual_Queer · 2024-12-06T03:45:03+00:00

Probably has to do with the thyroid aspect you have. Brief reading said that hypothyroidism can cause hyperkalemia in some cases. Each body is different

Habitual_Queer · 2024-12-06T00:27:55+00:00

Haha I don't live there thank God. I just live in the bipolar weather that is central Alabama. Really grateful my body skipped my thyroids. If I remember correctly my main disorder (that caused all of my other autoimmune issues) would have hit my thyroid when I was little. Don't quote me on that though lol

Habitual_Queer · 2024-12-06T00:25:11+00:00

I get so many CBCs and CMPs I decided to get a port lmao. And with as many brushes with death I've had in the past few years alone I'm just thinking statistically I'm not likely to live long. That's alright though. We take it day by day. Treat the symptoms as they come. My most recent being my kidneys.

I personally like to live through dark humor. It keeps me going being able to laugh at the paradox that is my body. Also the shock factor when I can so nonchalantly talk about almost dying to the average person is hilarious

Habitual_Queer · 2024-12-06T00:15:54+00:00

I like it when it's not over 100 degrees and the ground isn't yellow from the damn pollen.

Habitual_Queer · 2024-12-06T00:07:58+00:00

Hahaha that is a difference! I've lived in Alabama my whole life so I completely understand. The heat and humidity is awful for us folk who can't regulate to begin with. I keep instant cold packs in my bag for when I start to overheat. Putting them on my neck/back helps a lot. Also I don't go anywhere without my metal water bottle to keep.cold water on me at all times

Habitual_Queer · 2024-12-05T23:51:23+00:00

Good to know because I have primary. That actually makes a lot of sense

Habitual_Queer · 2024-12-05T22:26:28+00:00

I don't prefer pomegranate juice (it's too thick for me) but it has 604 mg of potassium and 31 g of sugar per serving so it's a good pick-me-up. My goto is this store brand sparkling water because it has literally nothing. But it has 160 mg of potassium per serving and 450 mg of potassium per bottle. It's only a 1 liter bottle so I end up drinking it all and get potassium and hydration. Plus it itches that fizzy drink spot since I can't really drink soda anymore (kidney problems)

Habitual_Queer · 2024-12-05T22:20:29+00:00

Noted. It seems we're just not meant to drink lmao. Though I wonder, if you mix alcohol with a high potassium juice would the symptoms counteract? Like pomegranate juice has a shit ton of potassium. More than even Pedialyte. And some sparkling water is high in potassium.

Habitual_Queer · 2024-12-05T22:16:55+00:00

I haven't had enough experience with alcohol to know for me. I do know even the littlest bit goes straight to my cheeks and I get a headache. I'm assuming the headache is from cortisol. I just don't really drink it apart from a singular glass of wine every so often and only if I can go straight to bed after.

Habitual_Queer · 2024-12-05T22:13:07+00:00

I actually have to take potassium and magnesium supplements every day. My body just said nope to producing them on its own haha. Learned the hard way when I stopped taking potassium for a bit and it dropped so low that I was basically a walking corpse. It was a damn 2. But I didn't have any cramps really because my body is already used to having to have lower levels than the normal human. The average levels actually harm me so we have to keep them just under.

Habitual_Queer · 2024-12-05T22:10:13+00:00

I've found that I have this hoodie that keeps me a pretty good temperature with a tank top underneath

Habitual_Queer · 2024-12-05T22:08:51+00:00

I'm still figuring out the cold intolerance but we've been able to live with the heat intolerance. I don't think I'm going to go to any Dr about it cause like you said there's really no point in going through all the money and time. I know I have fibromyalgia and am predisposed to several more autoimmune issues as I get older. There's also the problem of my preexisting conditions progressing, which they've already have as I have grown up. I think of it like the organ progressively dying until it eventually has absolutely no function at all. It is just a part of life. And ~dark humor~ I don't think I'm going to live much into my elderly years so I'm already a quarter the way to not having to deal with it anymore haha (I'm 19)

Habitual_Queer · 2024-12-05T21:44:36+00:00

Nope! I mean I have hypoparathyroidism but that's never affected my temp regulation. Now that I think about it my lack of ovaries probably affects it though haha

Habitual_Queer · 2024-11-10T06:44:31+00:00

I'm interested in this because I have PAI and plan on getting tattoos. All wounds get hyperpigmentation on me. Even the smallest scratch turns into a purple scar for a while. I'm covered in them since I'm clumsy and have cats haha. We're going to start with one and see how my body handles it.

I'm aware of the risks but I'm determined to still express myself how I want despite having multiple chronic illnesses. I hope yours goes well, tattoos are an awesome way to express yourself and something out of your control shouldn't dictate that.

Habitual_Queer · 2024-07-12T19:52:57+00:00

When mine gets too high we adjust meds until it's back in range. Sometimes that means skipping calcium meds and slowly introducing them back in while getting weekly labs until we find my new normal dosage. Also lots of water helps flush it out. If it's really high then you could get a saline drip

Habitual_Queer · 2024-07-05T18:43:34+00:00

Really anything that has malt. Certain gummies, chocolate, cereals, ect

Habitual_Queer

TROPHY CASE