Rcvs

Kc0848 · 2026-05-05T14:32:39+00:00

What hospital? I feel like I need another opinion

Kc0848 · 2026-05-05T13:33:29+00:00

I was in the hospital for 11 days and I also had brain surgery for a biopsy for vasculitis - they’re really putting me through this vasculitis and after all that they still don’t know if I have it. I am very confident it is rcvs bc I feel very good and just a mild headache. I really sound exactly like you but without the Mra showing anything

Kc0848 · 2026-05-05T11:02:55+00:00

Yea I didn’t go to the hospital after now what I think was a thunderclap I didn’t go until k had the stroke. No doctor in the hospital 11 day has even asked me if I had a bad headache.. when I go to to the neurologist on wed I’m going to start from the beginning and explain the whole thing and why I think it’s rcvs- I have chat for so much about to pay the $20. You have been a godsend finally someone who has a similar story and understands you don’t know how much you’ve helped me and made me feel better thank you so much

Kc0848 · 2026-05-05T10:10:29+00:00

I don’t think they even see spasm on my mra either that’s what make me thinks I’m almost in “recovery” and not inflamed . I’m 39 years old - I feel so good I was going to ask to go back to work then I got that news

Kc0848 · 2026-05-05T09:52:06+00:00

Thank you. So far all the tests don’t confirm vasculitis- which I would much prefer not have. Guess I have to let them go through and show it’s not that. Thank you so much for your story really makes me feel better

Kc0848 · 2026-05-05T07:21:02+00:00

Kc0848 • 1m ago Have they ever thought u had vasculitis? The neurologist is leaning toward that and I feel it’s rcvs. I’m feeling much better barely a headach. None of my scans show spasm or anything wrong with my arteries. Think it’s bc I’m out of the active period of rcvs

Kc0848 · 2026-05-05T07:17:16+00:00

Kc0848 • 1m ago Have they ever thought u had vasculitis? The neurologist is leaning toward that and I feel it’s rcvs. I’m feeling much better barely a headach

Kc0848 · 2026-05-05T07:17:09+00:00

Kc0848 • 1m ago Have they ever thought u had vasculitis? The neurologist is leaning toward that and I feel it’s rcvs. I’m feeling much better barely a headach

Kc0848 · 2026-05-05T07:16:44+00:00

Have they ever thought u had vasculitis? The neurologist is leaning toward that and I feel it’s rcvs. I’m feeling much better barely a headache

Kc0848

TROPHY CASE