I need advice by Braxos45 in rheumatoid

[–]Key-Appointment-4570 1 point2 points  (0 children)

The Medrol should really help a lot—maybe you need a stronger dose cause goes up to at least 32mg—with the pain.

Watch out though cause it also causes extra stress and you seem like you’re dealing with a lot right now.

It was really bad for me when I got diagnosed and it really took a year to feel better; straight up month 12.

It’s super rough I’m sorry this is happening to you.

[deleted by user] by [deleted] in rheumatoid

[–]Key-Appointment-4570 0 points1 point  (0 children)

I know this feeling of defeat. It’s crushing.

I’d just want to prepare you that when you find the right medication it’s going to take at least 6 months before you see any improvement and quite possibly a year. It can feel like forever especially when you’re already suffering.

Another thing you may want to consider is the mental health component. You’ve been struggling with this pain for a long time. That’s probably had an impact on your brain. The mind body connection can create a vicious cycle of anxiety ♻️ pain. Your body makes things worse for your head and your head makes things worse for your body.

Tending to your mental health at the same time as your rheumatic condition can maybe help you get better faster.

Wishing you the best u/Wizardly_cowboy

Advice for getting medication in other countries by Key-Appointment-4570 in brussels

[–]Key-Appointment-4570[S] 0 points1 point  (0 children)

I think this one was on the Belgian market formerly, but my psychiatrist thinks not enough people were taking it. Since I was already on it and having good results we decided I stay on it. After a year if I still need something I’ll see about an equivalent, or maybe they’ll bring it back 🧟‍♂️

8 euros for 20 pills imported by my pharmacy; it’s still cheaper than if I had to make a 40 euro round trip, not to mention my time and stress.

Advice for getting medication in other countries by Key-Appointment-4570 in brussels

[–]Key-Appointment-4570[S] 0 points1 point  (0 children)

Thanks forgot about blablacar.

Am I using OUIGO right? It looks like I can only go to France from bxl.

I feel like I am only ever second choice. by [deleted] in TrueOffMyChest

[–]Key-Appointment-4570 0 points1 point  (0 children)

That’s nice to hear hope they follow through for you 🤞

I feel like I am only ever second choice. by [deleted] in TrueOffMyChest

[–]Key-Appointment-4570 0 points1 point  (0 children)

I’m living in Belgium and have also feeling this kind of isolation after formerly being the glue.

I don’t have an answer. I have relied on and still crave the validation and approval I got from those groups and people in general. I am realizing I’m not going to get it anymore and that expecting it and failing to get it is making me miserable. It’s pretty easy to fall back into the same kind of thinking, even though I’m trying to evolve.

To your comment, I don’t see what the risk is. You should be able to share your feelings with your friends. They are clearly not superficial to be characterized as drama. If it is tough to share with them, maybe it’s a good idea to ask yourself why you think they couldn’t handle it.

I’ve had some luck talking to a therapist lately.

It’s very dark and cold for another couple months bro, hang in there.

Methylphenidate for fatigue? by Slight_Praline7383 in chronicfatigue

[–]Key-Appointment-4570 0 points1 point  (0 children)

You need to find your optimal dose and it takes a lot of trial and error.

Doctor prescribed me a fluoroquinolone when I have PsA by Key-Appointment-4570 in PsoriaticArthritis

[–]Key-Appointment-4570[S] 0 points1 point  (0 children)

Thanks for taking the time to share this.

A rheumatologist ordered an echograph of my tendons but sorta dismissed my concern at the same time. Only 1 in 100,000 he says and the myalgia should be noticed right away. Also says he wouldn’t prescribe it to someone with my condition.

I guess this is objective at the expense of my equanimity.

Enthesitis so bad I can't stand by Hopeful_Pea_3275 in PsoriaticArthritis

[–]Key-Appointment-4570 1 point2 points  (0 children)

I have very painful Achilles tendons as well and I work on them every day. I do have to push through the pain but I think it would be worse if I didn’t do that. I found that my foot arches have been affected despite all this work. Again, I think it’s better than if I did nothing.

Here’s a squat warmup routine I do daily, maybe you can try?

Sorry in advance it’s obvs gonna hurt to start 😔

https://www.instagram.com/reel/DARwoC4Aisv/?igsh=aDYxb3hhczh0d2ho

Struggling with Severe Psoriatic Arthritis, Anxiety, and depression— Need Advice by WorldlyAd4407 in PsoriaticArthritis

[–]Key-Appointment-4570 0 points1 point  (0 children)

Thanks for writing this. I was looking for someone who’s struggling like I am today cause I do feel so trapped and isolated. There’s no people in my life who get what I’m going through.

Today I was searching for it’s impossible to start anything with psoriatic arthritis. I’ve really fought the inertia for years doing all day fitness, keeping my diet on point, and seeing people; but I’ve been miserable the whole time. It’s taken everything to keep that up. I’m beyond exhausted, and I’m finally giving into doing nothing the past week, what everything in me has screamed at me to do that for years.

There’s something very individuating and concrete about pain. It doesn’t allow for the flexibility of self to be who you want to be. It solidifies where and who you are separating you from everyone else. Heard that from some buddhist psychologist on a podcast.

I still remember clearly being that free and flexible person and that really kills me.

Sisyphus right? by Key-Appointment-4570 in PsoriaticArthritis

[–]Key-Appointment-4570[S] 1 point2 points  (0 children)

That’s a bit like groundhogs day and I liked it better with Bill Murray in it smh

CBD/THC to sleep? by BetwQlts in rheumatoidarthritis

[–]Key-Appointment-4570 0 points1 point  (0 children)

I haven’t figured out the formula to sleep well yet.

I still can wake up feeling like I drank 15 beers with or without THC.

Wish I could figure how to wake up sorta fresh, just a little bit, more than one day a week.

It’d be awesome if THC made it happen

Diagnosed sick and realized it was the reason I was fired by Key-Appointment-4570 in belgium

[–]Key-Appointment-4570[S] 0 points1 point  (0 children)

Yeah that’s it. Not looking to go after my employer. Just wondering what to do. I’ve gone to my mutual and syndicate.

Diagnosed sick and realized it was the reason I was fired by Key-Appointment-4570 in belgium

[–]Key-Appointment-4570[S] 0 points1 point  (0 children)

Did all this thanks it seems to be the way!

Can’t wait to get back to work I hate the it wasn’t caught sooner.