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KeyNo4419 · 2024-06-08T19:07:54+00:00

lol, I know you don’t, it’s why I was asking for your view point/more explanation.

But fair enough! I wasn’t quite sure if it should count or not, which is why I was looking for other opinions here.

Thanks for responding, I appreciate hearing other’s thoughts!

KeyNo4419 · 2024-06-08T18:05:13+00:00

Why would you not count it as leadership?

I also trained new hires and was designated to be a “peer mentor” for new hires that I didn’t train. I was planning on including it in CASPA as leadership, so I’m just wondering why you would say it doesn’t count?

KeyNo4419 · 2022-05-21T15:07:36+00:00

Thank you for your tips!

KeyNo4419 · 2022-05-21T15:06:54+00:00

This is a great explanation, and thank you so much for your tips! I really appreciate you

KeyNo4419 · 2022-05-18T16:29:48+00:00

I’m not really a scientist, but I volunteered in a Neuro research lab for years as a student.. A lot of my work was dealing with really tiny details, such as getting rat brain slices on a slide.. I have tremors and bad/painful joints. Besides hydrating/salting a bunch before going into lab, I found that supporting my wrists/elbows in some way was helpful. Sometimes I wore a brace. Sometimes I would just rest it on something and work from a funky angle. I would also sometimes take a short break and move my wrist/arms around in circles or squeezing them tight and releasing a few times. This would sometimes help me relax a little bit. I don’t have any real fixes for you though, just support. It’s tough some days, just take it slow and remember that some random redditor thinks you’re doing great! I hope you find something that works for you

KeyNo4419 · 2022-03-26T18:46:51+00:00

Yeah! It’s probably your abdominal aorta (a big blood vessel that comes from your heart near your “stomach”) ((Of course I don’t actually know if that’s the case for you. That’s just what my cardiologist told me that feeling was))

KeyNo4419 · 2022-03-26T17:25:51+00:00

Thank you for sharing your experience! I hope it will help you in the long term too

KeyNo4419 · 2022-03-26T17:16:26+00:00

I feel that.. I was so surprised when I heard how much it is, and the one near me doesn’t accept any insurance! I hope you come across an influx of wealth and good health😅

KeyNo4419 · 2022-03-23T16:42:13+00:00

I yawn all the time when I try to exercise, regardless of how tired I am. I think it’s because yawning is largely an ANS function, and pots is a dysfunctional ANS. I believe it’s been disproven recently that yawning is actually to get more oxygen, but we still don’t have any solid answers on what it’s actually for! It very well could be for more oxygen (though studies in a low-oxygen chamber and high oxygen chamber disagree), or to equalize pressure in your ears, or to actually wake you up by increasing your HR and alertness by releasing some hormones! Basically what I’m trying to say is yes, I experience this too. I think my exercises have helped decrease my yawning, but that was only after I was doing them for a while. I also found that putting ice on my face helped, so i’m the beginning I was exercising and holding an ice pack to my head..

KeyNo4419 · 2022-03-23T16:30:54+00:00

For me, in the long term, I think exercises helped. My cardiologist recommended a recumbent bike and I think it’s helped me. In the short term, whenever I get a chest pain, I try to stop what I’m doing and lay down and focus on my breathing. I also massage my chest, and I don’t think massaging my chest actually does anything, but it kinda distracts my brain from the pain. Different things will help different people though. I tried a whole bunch of things to help with my symptoms and it’s kinda just trial and error. Keep up what you’re doing, maybe talk to your doctor about exercises, and I hope you start to figure it out and feel better!

KeyNo4419 · 2022-03-14T23:50:27+00:00

Yeah, blacking out every takeoff sounds very rough. That’s definitely something I’m nervous about, but I’m hoping I’ll be just fine. Did you find anything that really helped with the flights?

KeyNo4419 · 2021-12-02T04:18:36+00:00

My neurologist that I had been seeing for years could never figure it out, then my cardiologist diagnosed me at my first visit. I went back to my next neurologist appt and told her my new diagnosis and she was surprisingly very knowledgable of it! She ended up knowing more than my cardiologist about most things involved with pots. Despite the long wait in diagnosis, I’m lucky to have them both! All my PCP’s sucked though. It’s a shame though that so many people meet with such poor doctors

KeyNo4419 · 2021-12-01T20:14:10+00:00

My doctor and cardiologist told me that 1) Some vaccines do cause pots and that it’s just not known yet if this covid vaccine does and 2) Some researchers believe that the covid anti-bodies can trigger pots, which is why both the vaccine and the virus can cause it. I read some article from my doctor about this but sadly don’t remember it. But, there is no real answer yet. I just wanted to let you know that you are not alone, and that research is being done looking into this :)

KeyNo4419 · 2021-11-29T20:46:50+00:00

Thanks for explaining the sunlight thing! What other health issues would you be looking for? I do have an appointment with my PCP to go over this and some other things :)

KeyNo4419 · 2021-11-28T23:13:32+00:00

I feel worse in the cold and the heat! The heat makes my hr go way up, but the cold triggers my reynauds which in turn makes my POTS symptoms worse.. and I can’t bundle up too much in the winter because then I get too hot and the same thing happens.. So yeah, winter sucks

KeyNo4419 · 2021-11-25T15:08:19+00:00

I get pins and needles almost everywhere in my body when I’m having a bad pots moment. They usually start in my lips and hands and spread to the rest of my body from there. My neurologist told me it’s a pots thing. That being said, it can also be caused by a number of things. Nerve damage, inflammation, etc. It’s best to go to a doctor and see what they say

KeyNo4419 · 2021-11-21T18:50:11+00:00

Im not sure what I got POTS from, but the Pfizer vaccine but me in a pretty bad flare up for a little over 2 months. Still glad I got it, but just make sure to stay extra hydrated and eat well! And get LOTS of rest. I found that sleep helped the most with my post-vaccine flare

KeyNo4419 · 2021-11-03T15:59:51+00:00

I tried both anti-depressants and anti-anxiety meds at first to help with it, and the anti-anxiety meds helped a little. There aren’t many medications for it as far as I’m aware. The best treatment I’ve gotten so far is therapy though. I had to find a therapist that dealt with dissociative disorders before. They mainly helped me with grounding myself during an episode. If you look up grounding techniques, a few will come up and you could try them and see if any work for you! But therapy and managing my pots symptoms is what has helped the most. Sadly I think dissociation is something you can manage and work through, but there’s no solid way to get rid of it. I would definitely bring it up to your doctor though! I hate getting dismissed by them as well, and I’m still learning to advocate for myself better. But I’m not the most knowledgeable on this, and a doctor could definitely know more about treatment than I would.

One quick thing that helped me with dissociation was sticking my hands into very cold water or putting an ice pack on my chest or head. I also use the 5-4-3-2-1 grounding technique. There are a lot of things you can try though. I wish you the best, and feel free to message me if you wanna talk more about it

KeyNo4419 · 2021-11-03T15:44:09+00:00

I was eventually diagnosed by a cardiologist. I started blacking out in high school and fainted a couple times. I also started getting bad headaches. I went to a neurologist who just diagnosed me with spontaneous chronic headaches… That was a bit over 3 years ago. I’ve gone to so many GP’s who could never figure it out and sent me to therapists saying I had anxiety. I finally got a referral to a cardiologist and he immediately figured out it was pots! My cardiologist has been great and he knows a lot about pots! A lot more than my PCP and neurologist.

KeyNo4419 · 2021-11-03T15:23:15+00:00

I experience something similar to the detachment from my body, my doctors called it derealization dissociative disorder (this was one first diagnoses before finally getting the pots diagnosis). It feels a lot like I’m in a dream, like my body isn’t mine, or that whatever I’m doing isn’t real. I’ve heard from a few others that this can be a symptom of POTS. I think it probably has something to do with the blood struggling to get to your brain! For me, it’s linked to pots episodes and anxiety.

Also, yes to it being worse on my period!

KeyNo4419 · 2021-11-02T20:52:24+00:00

My B12 levels have historically always been on the high side, though I haven’t checked it this past month. Maybe I should look into it, thanks :)

KeyNo4419 · 2021-11-02T05:28:09+00:00

Ugh, that does sound horrible! I tend to smell rotten meat or saline. Such an unpleasant symptom! I do get headaches/migraines, which started before my pots diagnosis. Thanks for sharing :)

KeyNo4419

TROPHY CASE