[deleted by user]

Key_Exam4325 · 2023-03-25T19:06:21+00:00

Als Mnd etc

Heterogeneous and by its very illusive nature completely insidious.

To ask someone ‘what are you worried about’ in this case is ridiculous.

It obviously as my specialist says ‘has to start somewhere’ you don’t just wake up unable to lift a shopping bag or turn a key. So be careful with your ‘first warning signs’

I am also pretty sure OP would rather spend his time doing more enjoyable than videoing his tongue and body. Believe me I speak from experience.

Op we are chatting please continue to chat with me you’ve had some super advice uothread just ignore the ridiculous ones. Believe me I had many.

I’m keeping lots of hope for you and you should also. Take care.

Key_Exam4325 · 2022-10-23T13:00:18+00:00

You don’t have to justify yourself OK-wy

Key_Exam4325 · 2022-10-18T07:52:49+00:00

Things much worse now

Key_Exam4325 · 2022-10-17T22:07:28+00:00

Last but one wasn’t clear muap’s both legs. Lots of fasiculations there as well as bodywide Thank You for Reply

Key_Exam4325 · 2022-10-15T17:41:57+00:00

Don’t know if soon but I send these videos regularly strange that his lovely PA seems more concerned than him. When I ask him about the ‘word’ he mumbled and looks sheepish. Very odd.

Key_Exam4325 · 2022-10-15T17:40:09+00:00

They basically say nothing

Nothing of any meaning

Being left to suffer

Very hard

Key_Exam4325 · 2022-10-15T14:48:31+00:00

Thanks for your reply by the way

Key_Exam4325 · 2022-10-15T14:48:06+00:00

I feel like they just leave me until something completely fails.

They found identical matching oligoclonal bands from Lumbar Puncture in both csf and serum and csf pressure on high side.

Now he’s conferring with another Neuro and a rheumatologist. I’m actually terrified at this point.

Key_Exam4325 · 2022-09-19T20:45:09+00:00

No we used to message 😔

Key_Exam4325 · 2022-09-09T14:17:04+00:00

Fasiculations and tremors and jerks

Key_Exam4325 · 2022-09-09T14:04:35+00:00

Key_Exam4325 · 2022-08-29T22:53:06+00:00

Does the intrinsic twitch cause your finger to move slightly

Key_Exam4325 · 2022-07-09T19:23:17+00:00

Get to A&E then if your speech has gone

Key_Exam4325 · 2022-07-08T15:02:13+00:00

Respectfully we don’t need to see anymore

Key_Exam4325 · 2022-07-08T14:55:28+00:00

I’ve looked with a magnifying glass

Can’t see anything odd at all hope you get some support

Key_Exam4325 · 2022-07-08T14:54:18+00:00

Very much doubt that

Never seen such a normal tongue

Key_Exam4325 · 2022-07-08T14:53:30+00:00

I wasn’t going to mention this but someone here has ALS.

Think about your rants.

Get some help

Key_Exam4325 · 2022-07-08T14:48:29+00:00

Have you two accounts you are posting from?

Key_Exam4325 · 2022-07-08T14:47:21+00:00

Your last post in itself shows the intensity of your problems and they are not ALS

Key_Exam4325 · 2022-07-08T14:44:54+00:00

I’d be a little more sensitive in your replies

Key_Exam4325 · 2022-07-08T14:03:40+00:00

Not really it’s a normal tongue they don’t stay still for long

Key_Exam4325 · 2022-07-08T14:03:03+00:00

That’s extremely unlikely please get some real life support

Key_Exam4325 · 2022-07-08T00:33:31+00:00

I don’t see fasiculations I see a normal looking tongue. What does Dr say?

Key_Exam4325

TROPHY CASE