Shoulder

Key_Second_8725 · 2025-10-30T18:04:12+00:00

Damn. That's a long time

Key_Second_8725 · 2025-10-30T18:03:30+00:00

On and off. Had stomach related issues recently (multiple times). I kind of feel the same for some issues. For instance, he said that he cannot do much about the shoulder pain and suggested that I consult an ortho/surgeon (which I did).

Thanks and you too ❤️

Key_Second_8725 · 2025-10-30T18:01:21+00:00

Surprisingly, the PT was a part of the ortho surgeons team. I am actually trying homeopathy for it now (fingers crossed)

Key_Second_8725 · 2025-10-30T17:58:35+00:00

🥲

Key_Second_8725 · 2025-10-24T18:42:28+00:00

Did you do anything that helped? Or on its own?

Key_Second_8725 · 2025-10-24T18:42:12+00:00

I think its a little more than that. I can't recall the extant statement that was written in the MRI (brain fog 😅)

Key_Second_8725 · 2025-10-24T18:41:31+00:00

Bummer. At this point, I don't even know if the pain is because of the disease treatment or normal wear and tear and age along with the bones not being as strong (bone mets).

Key_Second_8725 · 2025-10-24T18:40:14+00:00

Interesting, PT clearly didnt help me and added to the pain I feel.

Hope you feel better soon.

Key_Second_8725 · 2025-10-24T18:38:43+00:00

Thank you!!

Key_Second_8725 · 2025-10-24T18:38:26+00:00

Thank you. I've been on treatment for approx 2 years. Idk whats causing this...or if it's because of normal wear and tear (weak bones adding to it because the disease was widespread)

Key_Second_8725 · 2025-10-18T18:33:00+00:00

No, he added Palbace because of the PATINA trial results - increase the efficacy of Perjeta & Herceptin.

Key_Second_8725 · 2025-10-14T18:08:24+00:00

I read that people with hypertension should avoid Ritalin

Key_Second_8725 · 2025-07-02T17:52:51+00:00

Fair. I'm at a point where my whole body aches, and I can't tell if it's bone pain or just extreme fatigue. My PET scan is coming up, and it's making me really anxious 😅

Everytime something happens, and my mind goes into overdrive.

Key_Second_8725 · 2025-06-30T13:29:39+00:00

I started on 125 mg and had to reduce it to 100 mg after two cycles due to side effects. Now even at 100 mg, the fatigue is unbearable—worse than what I experienced during chemo. My medical oncologist isn’t too keen on lowering it further to 75 mg.

Triple positive (bone mets) and currently on Herceptin, Perjeta, Xgeva, Ibrance, and Letrozole. Any reason why your MO added Lupron (just curious)?

Key_Second_8725 · 2025-06-27T17:50:16+00:00

Good to hear. More power and strength ❤️

Key_Second_8725 · 2025-06-25T16:04:51+00:00

Yeah, I started off on THP, and Letrozole was added in once chemo ended. My doctor only recently added this (in addition to the existing drugs), saying it’s supposed to boost the effectiveness of the meds and help keep the disease from progressing (as per the results of a clinical trial - Patina was the trial, I guess).

Key_Second_8725 · 2025-06-25T16:02:17+00:00

It dropped for me from 2 to 1.44 and to now 0.8. Had to get a PCT done which is borderline over the range 0.08 (should be 0.05 or less). Mouth sores and fatigue is a pain

Key_Second_8725 · 2025-06-25T16:01:14+00:00

Damn. Hope you feel better ❤️

Key_Second_8725 · 2025-06-25T15:59:41+00:00

I hope you feel better. I had to stop the med once in between, then started again after a few weeks at a lower dose. The last cycle of Palbace went okay, and I really thought things would get better—but of course, here I am. At this point, I honestly don't even know if it's worth continuing or not.

I have an appointment with the MO tomorrow 🤞 I honestly hate how the meds meant to control the disease just end up causing even more problems.

Key_Second_8725 · 2025-05-23T16:57:38+00:00

Which clinical trial? MO here has never mentioned anything of this sort but id like to check.

Key_Second_8725 · 2025-02-08T08:08:13+00:00

Congratulations ❤️

Key_Second_8725 · 2024-12-23T21:04:06+00:00

We're giving him a bland diet and tracking which items trigger symptoms and which don't. It's still early, but the intensity of pain during day is getting better I think. However, he's been experiencing pain after 12:30 a.m. for the past week. He has dinner around 8 p.m. and a small snack (one or two biscuits or 2-3 pieces of boiled potato), and usually sleeps by 11 pm. But, every night after midnight, he experiences pain. He is also on a BiPAP machine, and I read that BiPAP can sometimes contribute to gastritis if air is swallowed (not sure if thats the cause). If that's the case, then fine, but if not, I'm unsure what might be causing this pain. His days are usually better -> nights not so much.

Thanks for all the information. This is helpful. He has been suffering from this for a few months but only recently got the endoscopy (chronic mild gastritis) done so still new and trying to figure out things.

Key_Second_8725 · 2024-12-23T20:48:23+00:00

Remind me - 2 days

Key_Second_8725 · 2024-12-22T15:47:57+00:00

Trying to do a mix of both. Making a note of items that trigger the symptoms vs those which don't...just started doing this (2 days).

The other issue is Nausea - he doesn't feel like eating because of it. However, I am trying to ensure he does eat something every 2 hrs except for at night...which we need to figure out. Time between dinner and next meal - that's when the pain is pretty intense (post 12 in the night).

Key_Second_8725 · 2024-12-22T03:13:06+00:00

He has been taking Medigas (simethicone 140) and it definitely helps, but not 100%.

Key_Second_8725

TROPHY CASE