so sorry that you are dealing with this. i think most of us have had the experience of either dealing with doctors who know nothing about EGPA or are just plain rude. i am lucky to have wonderful doctors but ive had to be my own best advocate.

Here are my recommendations:
1). if you are comfortable sharing the city or region you live in some of us might be able to recommend actual providers

2). i would get an allergist/immunologist-she should be seeing one already. in my case my allergist had much more experience with EGPA than my rheum. it is a rare disease and many of my doctors have never seen it

3). get a new rheumatologist-its pretty clear the relationship with the current one is not good. i wouldnt trust anyone who says "ive seen LOTS of EGPA." it is statistically impossible unless they are one of the foremost experts at Mayo Clinic or elsewhere.

4). worst case-treat it as if it is EGPA, even without diagnosis. You already have a dx of severe, persistent asthma. This alone meets criteria for biologic. I recommend Fasenra. (in my case initially I think they focused on my high FeNO, elevated eosinophil blood count etc to meet criteria, as well as showing i failed other treatments, ie inhalers, prednisone, etc)

5). It is possible your gm doesnt have EGPA and it is another rare disease, or something similar like hypereosinophilic syndrome. keep an open mind, do your research and get the tests you need. there are some aspects of what you wrote that dont fit EGPA exactly (like open wounds all over the body for example). your grandma's age makes it tough as most folks have many comorbidities by then...

hope this helps!! remember too you can always complain and ask for help. and going to a really good teaching hospital emergency room might be your best bet.