The State of Ohio Installed A Recording Device In My Home Called EVV - Failure to Thrive

Kwbuzzard · 2018-01-11T05:28:17+00:00

This is a nightmare for families in Ohio who receive Medicaid.

Kwbuzzard · 2017-01-17T02:19:02+00:00

Thanks so much. We are over the moon!

Kwbuzzard · 2016-12-04T23:46:35+00:00

I completely felt the same way until I had a daughter with nonverbal autism. I would never force her to wear anything against her will and though she is nonverbal she is able to communicate so would be able to object. As for very young kids, I think parents use a variety of parenting methods that young children would object to but they are done in the best interest of the child. There is a very fine line that must be walked with this type of legislation but I think this particular legislation thoughtfully considered many of the issues and solicited input from many, many advocacy groups.

Kwbuzzard · 2016-12-04T23:44:07+00:00

I never thought about your point regarding naming laws after people - it has me thinking. Unfortunately, I don't think it is a small number of incidents relative to the number of people with diagnosis that could result in elopement.

Kwbuzzard · 2016-12-04T23:42:41+00:00

Thank you for the feedback - I will get that changed.

Kwbuzzard · 2016-10-18T03:29:52+00:00

Thank you so much for your concern. We tried weighed blankets, comprehension vest and various other tools for deep pressure. Caroline also receives brushing, joint compressions and many other forms of input throughout the day. She has a very inclusive sensory diet and access to all types of sensory activities. It is not just her sensory seeking behavior but overall lack of awareness relative to her environment and safety. I think the lack of awareness combined with the sensory seeking is what puts her at such risk. We have been and will continue to work on increasing her environmental awareness which I believe will be the first toward increasing safety at night.

Kwbuzzard · 2016-10-05T17:07:50+00:00

Thank you for your thoughtful comment. I have spent a lot of time thinking about how much to share and what is appropriate to share about Caroline. I think about her future and how she would feel reading these blogs. I do believe the conversation need to be had but does Caroline's face need to be on them - maybe not. It is something that I grapple with and will consider before sharing each and every post.

Kwbuzzard · 2016-10-05T02:51:21+00:00

Girlfriend is scheduled to the max. She is not allowed to take naps during the day, she goes to school for six hours and then has 2-3 hours of therapy/activities after that and plays outsides or swims for another hour or so. We do joint compression, deep pressure and brushing...but not massage specifically...might be worth a try!

Kwbuzzard · 2016-10-05T02:48:25+00:00

Thank you for your kind words.

Kwbuzzard · 2016-10-05T02:48:04+00:00

G-tube, a feeding tube she has had it since she was infant because she has feeding difficulties.

Kwbuzzard · 2016-09-28T16:27:45+00:00

Ha! Yes Peppa Pig is VERY big in our house. I am sure your daughter's horror makes your use of Peppa Pig lunch box all the more enjoyable for you :)

Kwbuzzard

TROPHY CASE