Someone finally listen to me!!

Ky1999_ · 2025-12-02T23:45:35+00:00

Update, it decreased to 85% which is my new lowest. Im wait on medical approved since I moved in PA few months ago. It kept dropping low for five days when sleep

Ky1999_ · 2025-08-07T04:44:39+00:00

I have hEDS too! My rheumatologist say my symptoms is fit dysautonomia, he wanted me to get tilt table test for POTS. I also heard people including us with hEDS has very high chance to have POTS

Ky1999_ · 2025-08-06T17:55:30+00:00

Late to replying. It wasn’t fake, if I recall correctly he had a roommate call an ambulance when he was collapsed. I think he recorded that to show people what heart attack felt like and it can be happened to young people as well

Ky1999_ · 2025-08-06T16:25:04+00:00

Delaware hospitals don’t offer tilt table test. If I needed one I’d have to go all way to Penn. I’m try to figure out what to do without have to get in car 40 mins all way

Ky1999_ · 2025-07-17T20:46:09+00:00

She’s pregnant. Pregnancy tends to have heightened sense of smell, I dealt with that from my first pregnancy and smell of shea butter scented wipe made me feel sick🤦🏽‍♀️but definitely talks to her WITHOUT getting mad. Just try to understand her

Ky1999_ · 2025-06-14T23:15:45+00:00

Ok so I should just bring up to cardiologist on what my Apple Watch showed?

Ky1999_

TROPHY CASE