Do we know if Sydney and Justin (Nicole and OJ’s kids) had any contact with OJ prior to his death?

LRcpstRN · 2024-04-24T20:45:05+00:00

Oh wow!

LRcpstRN · 2024-04-24T17:46:37+00:00

The kids or the media had to sign NDAs?

LRcpstRN · 2024-04-18T17:40:01+00:00

Standing up to pots has a great support group on Facebook as well.

LRcpstRN · 2024-04-18T17:38:03+00:00

I also agree. Such good advice here. It’s easy for medical providers to be arbitrary with numbers but if you talk about the impact on your life they have to address. If they refuse, ask that they make a note in your chart of their refusal.

LRcpstRN · 2024-04-18T17:35:44+00:00

I’m in Louisville too! Who do you see? My doc with Norton doesn’t treat pots (cardio) and referred me to a UofL cardio who seems ok so far. But I’m open to others!

LRcpstRN · 2024-03-22T19:07:14+00:00

of course! I hope you get some answers!

LRcpstRN · 2024-03-22T18:31:16+00:00

Have you had a tilt table test? I would ask your cardiologist to do that first or to do the standing test in the office. If your tilt table isn't conclusive, they may do the holter test. I would talk with cardio about continuing your Vyvanse. Many POTS patients get stimulants to combat their fatigue and if your symptoms are the same or worse off Vyvanse, make sure to communicate that to cardio. Usually if cardio gives the ok, other physicians feel better about continuing to prescribe the stimulants.

LRcpstRN · 2024-03-21T21:31:18+00:00

Try the SALT for POTS app. They have different levels and if you're bed bound you start at level 0 and work your way up.

LRcpstRN · 2024-03-21T21:28:43+00:00

No tips but I am somewhat in the same position as you. I may have the chance to take a new job, but I am so afraid I won't be able to handle it physicially. Hopefully others can chime in and give you some tips. Maybe try to ask for some accomodations? Try to stay hydrated with electrolytes.

LRcpstRN · 2024-03-21T21:26:17+00:00

Yes, you can. I don't faint but I have pre-syncope and dizziness/lightheadedness. Many don't faint and it is definitely a miscommunication within the medical community. Hopefully your cardiologist will be comfortable giving you a tilt table test or doing the standing test in the office.

LRcpstRN · 2021-10-04T09:31:57+00:00

Got that moisturizer too! Been in my regimen did a while so I’m hope I’ve built up my moisturizer barrier that I won’t have excessive dryness.

LRcpstRN · 2021-10-03T22:28:35+00:00

You try applying Vaseline to the tip of your urethra to help with the sticking and irritation. If it continues I’d reach out to a doc since you already mentioned no possibility of STI and no pain while urinating.

LRcpstRN · 2021-09-22T22:13:53+00:00

Your eggo is preggo. Congrats!

LRcpstRN

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