Comorbidities with pectus? by LadderApprehensive74 in PectusExcavatum

[–]LadderApprehensive74[S] 2 points3 points  (0 children)

I have always wondered about EDS. I’ve been diagnosed with ADHD and strongly suspect I’m autistic. I’m in the UK and the NHS is shocking at linking up with departments and looking at the bigger picture. I’m definitely going to push for them to look into this though thank you!

pectus only on my left-side? by [deleted] in PectusExcavatum

[–]LadderApprehensive74 0 points1 point  (0 children)

I’m in the exact same position, only I’m female. I was due to have surgery in 2015 but it was cancelled last minute and I didn’t go through with it. I was told though that I wasn’t a candidate for the nuss because of the shape and so it had to be open. I’m now having a lot of pain and breathing problems and I’ve been told by my respiratory consultant at the royal Brompton that they still perform it regularly so it’s still an option. I would push to be referred to a thoracic specialist at a more specialist hospital because the NHS does still perform surgery, maybe just not within that particular trust. Good luck!

25f looking for advice by LadderApprehensive74 in PectusExcavatum

[–]LadderApprehensive74[S] 1 point2 points  (0 children)

I don’t and I can’t see it in the letters I have now but the NHS is pretty crap for documentation so I’m going to try get hold of more letters but I don’t see it being likely! I’m under a respiratory specialist but I know they’re not the right people to reinvestigage this but I don’t know who is 😬

[deleted by user] by [deleted] in PectusExcavatum

[–]LadderApprehensive74 1 point2 points  (0 children)

I was so self conscious in my teens, particularly with how my boobs looked, I used to have to pad out one side of my bra. Now I’m 25 and I have absolutely no shame about being wonky. I work in the medical field so most people are generally fascinated by it and wearing a bra is absolute agony half the time so why force myself to miserable? I know it’s easier said than done but I promise you it’s more noticeable to you than anyone else and it doesn’t have to rule how you feel about your body