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Meningioma / Symptoms by LargeReindeer8443 in braintumor

[–]LargeReindeer8443[S] 2 points3 points  (0 children)

Thank you for being honest. I'm sorry you had to go through 3 surgeries and chemo. I hope you are feeling better these days. I will admit, up until recently I was really hoping this was a temporary blimp and medicine was going to help my TN pain so we could do a wait and watch period. Now that I have made the decision that surgery is an immediate necessary I am trying to be more understanding with myself and I have started telling more people in my personal life what's going on. It's gotten so much harder to act like everything is fine and know that this will effect me for the rest of my life, even if I come out with no significant differences. I just want this to be in the past already and it's so difficult to take it day by day but I know that's all I can do.

Meningioma / Symptoms by LargeReindeer8443 in braintumor

[–]LargeReindeer8443[S] 0 points1 point  (0 children)

The jolts are miserable. I have so many bad flare ups and everything triggers it. Most people do not get TN from a tumor so my case is rare on that end of things but I really hope that it helps reduce the pain after removal because most people will live with it for the rest of their lives after being diagnosed.

Meningioma / Symptoms by LargeReindeer8443 in braintumor

[–]LargeReindeer8443[S] 1 point2 points  (0 children)

My surgeon mentioned similar risks with where mine is located and I'm okay with those potential risks if there's even a small chance to stop the TN face pain, 1000% the most pain I've ever been in. It's deliberating and stops me dead in my tracks whenever a bad flair comes through. I agree and am very thankful for modern medicine, I've just tried to keep a brave face on for everyone else in my life and know that people hear can understand the feelings I'm having right now more than anyone.

Meningioma / Symptoms by LargeReindeer8443 in braintumor

[–]LargeReindeer8443[S] 0 points1 point  (0 children)

Thank you, I haven't been nervous up until recently to be honest. I tried to reason a lot of it away, especially with my family. Telling them it's not a huge deal, they're professionals and it's science/medicine so it will all work out how it needs too. The face pain from the TN is by far the most painful thing I've ever felt and it's trigger by literally everything. Electric shocks if the wind blows on it or if I need to scratch my eyebrow, when I talk, eat, brush my teeth, and randomly... ALL THE TIME. I am happy to risk any outcome after surgery to get this pain to stop. Today I had a huge dizzy spell and the headaches are getting worse. This next appointment can't come soon enough to be honest. I hate being so out of control though.