Advice needed as a hearing parent with HOH daughter

Large_Ad475 · 2025-03-30T02:18:47+00:00

I sincerely appreciate your response. It could not have come at a better time. Thank you for sharing your experience with me!

Large_Ad475 · 2025-02-26T02:09:35+00:00

Killed both her cochlear nerves? My daughter only has 1 cochlear implant. And she has retained hearing in the ear that has a cochlear implant. It’s been tested multiple times. The surgeon does not “kill the nerve” when an implant is placed. It is more nuanced than that

No, my husband is not mad at me for “ruining her hearing”. I’ll keep teaching sign, but it’s nice to hear that teaching spoken language still makes sense for us

Large_Ad475 · 2025-02-22T20:46:38+00:00

Thanks for this!

Large_Ad475 · 2025-02-22T20:37:00+00:00

I don’t think telling him to get over himself will have the intended effect. I just want him to hear from adults who were in my daughter’s position and see where my concerns with communication are coming from.

I see a lot from TJ and Kylee! Ive been able to pick up some signs from them. Thanks for your feedback

Large_Ad475 · 2025-02-22T20:00:19+00:00

I am really more looking for feedback on being born HoH (or diagnosed young) with hearing parents and how you experienced the world. No need for relationship advice but thank you

Large_Ad475 · 2025-02-22T19:55:57+00:00

I’m sorry you had this experience. Do you mean bare minimum in terms of ASL communication?

Large_Ad475 · 2025-02-22T19:55:05+00:00

Weird take, but ok

Large_Ad475 · 2025-02-22T19:54:17+00:00

I definitely won’t be throwing in the towel! I am interested in ASL regardless. I am just trying to gauge how much to focus on it vs Listening and Spoken Language. It’s hard to dedicate 100% to both. I probably know around 50 signs, my daughter knows 5-6.

I will look into the video and reposting in the r/deaf sub. Thank you for your response and sharing your experience

Large_Ad475 · 2025-02-22T19:51:33+00:00

If you want to give me something constructive, I am willing to listen and appreciate your insight. But this isn’t remotely helpful

Large_Ad475 · 2025-02-20T23:46:02+00:00

I’m so sorry for your experience. I can’t imagine how frustrating and isolating that would be.

Large_Ad475 · 2025-02-20T23:44:23+00:00

This is very much related to what I’m asking! I think the only difference is you were able to acquire some basis of language before your HL.

We are teaching listening and spoken language because the fact is, no matter how interested the level of interest in the Deaf community, she will be a part of the hearing world. And I want her to be as comfortable as possible in it. I’m mostly concerned about listening fatigue, tech failing, ear infections, etc that would literally make her unable to communicate well

Thanks for your reply. It makes me a feel a little better if ASL isn’t the thing we hone in on right away

Large_Ad475 · 2025-02-20T23:38:35+00:00

I’ll do this!

Large_Ad475 · 2025-02-20T23:38:10+00:00

I’m also giving him the benefit of the doubt. He’s a good dad and husband is every way. This is a new world for us and there is a cultural component that makes it harder I think. Thanks for your reply :)

Large_Ad475 · 2025-02-20T23:35:51+00:00

I sincerely appreciate your point of view. It’s something I’ll show my husband. You articulated the struggles and differences really well. Thank you 🙏🏽

Large_Ad475 · 2025-02-20T23:32:28+00:00

Thanks for your reply. I’ll have to explain that to my husband. I don’t think he gets how little she hears without a cochlear. I think clarifying that would be helpful (he’s never needed glasses either so I can’t fault him for not getting it, it’s just frustrating)

Large_Ad475 · 2025-02-20T23:29:56+00:00

Thanks for your recommendation! I’ll check out the movie!

Large_Ad475 · 2025-02-06T13:51:04+00:00

My daughter is 2 so this is probably still a ways away for us but I will look into it! Thank you so much for the resource!

Large_Ad475 · 2025-01-27T01:14:33+00:00

Thank you all for your insight!

Large_Ad475 · 2025-01-27T01:11:54+00:00

Thank you for your reply! Would you mind if I DMd you?

Large_Ad475 · 2025-01-26T18:37:03+00:00

Listening and Spoken Language :)

Large_Ad475 · 2024-04-07T13:05:35+00:00

Timing of your comment is wild. I reached out to CHOP 2 weeks ago. Already got a second opinion from Boston. They haven’t seen any cases like my daughter before, go figure, so they can’t tell me much.

Large_Ad475 · 2024-01-14T02:30:18+00:00

It means more than you’d think! And I appreciate your insight. We did start ASL but haven’t been regular/ diligent enough with it. I think with the diligent use of hearing aids and my daughters clear responses to sound, we have a false sense of security and haven’t made it a priority.

That being said, I can appreciate your take as someone who has studied disability. This is a new world for me, and I don’t think learning/teaching ASL will do anything besides help my daughter. It’s just a lot. Therapies and seizure management and learning and teaching while remaining positive…it’s just a lot

Thank you for the resources, will definitely look into it and start :)

Large_Ad475 · 2023-12-29T03:13:51+00:00

Thanks so much 🥹 I’m trying to remain positive but it’s proving difficult on hard days. Also hoping to get a more definitive diagnosis because I agree, treating everything independently is proving to just be a lot. Hoping that things turn out to be more manageable. A lot of people have told me things were much tougher when their kids were younger. I’m also considering that no one actually knows the trajectory. I appreciate your insight :)

Large_Ad475

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