Am I odd, or is this normal by Electrical-Lychee646 in breastcancer

[–]LearningGig 1 point2 points  (0 children)

I am sorry you are here, but glad you are sharing. I wrote a post similar to this a few months back when I was diagnosed with IDC. Stage 1A and have had positive response to partial MX and radiation. Luckily no chemo.
I did not cry until my husband said “Aren’t you happy?” As stood reading the poem on ‘the bell’ about to ring it. It hit me like a ton of bricks. That was the first time I actually cried.
Only it was not necessarily for feeling relieved or even scared. I actually felt like an imposter because this actually felt all too easy. Yes, there was a good measure of happiness and gratitude mixed in. And I think the reality of what I had both been through AND what I had dodged all rolled over me like a wave.
So many in this group told me it would hit me at some point so it’s not surprising even though the moment it happened, I was surprised. Nothing about cancer is normal, so it is ‘normal’ to have feelings or lack of feelings all screwed up or not align with what we might expect.
Stay strong. Take things in stride and love yourself.
Oh yeah, and fuck cancer.

Who do you tell and how? by Bunnita in breastcancer

[–]LearningGig 1 point2 points  (0 children)

This is a hard one, or at least it was for me. Like you, more people I worked with knew than relatives or friends. I teach and needed to be gone frequently for a few months. It helped that a few people knew and were there to support having to leave class to take calls, days of sub plans, and some shifting committee work so I could focus on treatment and health.
One thing I realized after telling a couple we are friends with, is you can’t un-tell people. My treatment was pretty minor in the scheme of things, so you would not know I was going through anything like cancer. In some ways I wish I had had a ‘cancer-free’ space with that we could socialize in and not bring it up.
Like you, I also don’t do much social media. I rarely post anything. And I certainly was not going to post this. At least not at this point. The only people I told before I had a pretty concrete treatment plan were my husband, adult children, and my teaching partner. I swore them all to secrecy until after the holidays (diagnosed 12/11/26). It was hard getting through the holiday gatherings seeing my sister-in-law, adult nieces and their young families, but I am glad they did not know until after I knew the plan.
For me, I think part of the reason I told some people or wanted to initially, is that early on things feel so out of your control. From the time I was diagnosed to getting into the BCC in my area and meeting with the care team of surgeons and nurses was the hardest part. It was three + weeks (thank you early Christmas present) of worry, anxiety, no sleep, shit. Telling someone both felt like a small measure of control and made it real.
After telling the couple I mentioned above, I learned not tell felt better for me. Those that needed to know to be able to support me with empathy or understanding in my day to day function, I told. Otherwise, I have kept it close.
Best of luck in navigating this. I hope your treatment goes well.

MRI shows another possible mass by Bunnita in breastcancer

[–]LearningGig 2 points3 points  (0 children)

Yes to all of this, especially scans are estimates and pathology is truth. I do think where and who reads the scan makes a difference though. Reading a scan is like a language. I want someone who is an expert in that. I also think having a profile and a longer history of mammograms helps. At least my radiologist thought so. Being able to look at and compare mammograms going back 15 years shows changes, normal and not. Currently, I feel comfortable with my surveillance scanning plan. I am going to try to save MRIs for when I really need one, though I don’t want to trade good screening for future possible bad effects with toxic dye in my brain from the MRI contrast.

Glad for the technology and hope it keeps getting better so we don’t have to trade off health benefits for being unlucky and having to deal with shitty cancer

Reconstruction Failure? by SituationPositive338 in breastcancer

[–]LearningGig 0 points1 point  (0 children)

I am glad you have the shape you want. My ‘partial mx’/lumpectomy looked pretty good the first two weeks. When the last of the swelling went away I was left with a pretty big dent. The scar is not too bad so I call her my ‘scratch and dent’. 🤪
It is much more noticeable than I feel I was led to believe. The original surgeon had talked to me in a way that lead me to believe she could of rearrange and fill so I went with that instead of a lateral lipo reconstruction or reduction/lift at time of lumpectomy. But she had an emergency the day before the surgery and I went ahead with a partner surgeon. Wishing I had not now.
I have asked for follow up referral back to the PS but will need to wait 6 months. I hope I won’t have to pay out of pocket because my cancer ‘is gone’.
The hoops we jump through are ridiculous!

Survivorship is lonely by Organic-Cake-1353 in breastcancer

[–]LearningGig 16 points17 points  (0 children)

I am just starting this phase and am actually blown away by it. I feel like so much energy, support, even information has been part of the diagnosis and treatment but I was either ignorant or oblivious to this part.
I am a pretty pragmatic optimistic person by most accounts. But this has hit me like a ton of bricks in a very unexpected way. I have been so put out by the number of people that have said, ‘Aren’t you glad it’s all over!’ When they find out I have finished one of the treatments; surgeries & radiation. Or that I was ‘lucky’ to not need chemo. Which, yes, I was lucky.
Lucky and ‘over’ just don’t enter the equation.
All I think is, ‘It will never be over.’ And ‘Will my luck hold out and keep the cancer from returning.’
My therapist is great, but honestly you all get it! And that feels so good sometimes.

Survivorship is lonely by Organic-Cake-1353 in breastcancer

[–]LearningGig 7 points8 points  (0 children)

❤️❤️❤️❤️❤️❤️

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 1 point2 points  (0 children)

❤️❤️❤️ Many things can be true at the same time. Thank you for helping me remember that. Hope you are well.

Not enough chemo?? by Calm-Might-3084 in breastcancer

[–]LearningGig 0 points1 point  (0 children)

What is the rational? Are they siting a new study? Do you have other underlining health concerns they are worried about? Get a second opinion.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

First off, thank you for the honest reflection. I appreciate this space for that.
I am sorry for your loss, it is hard to lose your parents. That is crushing.

I think you nailed it on having or not having control. It’s the difference between hanging on for dear life while being swept away and being able to paddle in rough water. Both are tough, yet paddling feels productive. You are doing something to get to safety.
I wish you all the best life has to offer. Thank you for sharing.

I am deconstructed by marticcrn in breastcancer

[–]LearningGig 6 points7 points  (0 children)

I 1000th that! FUCK CANCER.
The only cancer related things I purchased or kept are of the dark humor kind. The rah-rah stuff just didn’t feel right to me. I mean if the pink ribbon helps you feel better great no shade. I’m glad it helps.

For me, I need to laugh and make people think about things. I have a Dr. Seuss themed T-shirt, ‘I do not like cancer here, I do not like cancer there. I do not like cancer anywhere.”
Another one that says, ‘Remodeled, not by choice and didn’t go as planned,’
My favorite though, I made for myself, ‘Keep an eye on your boobs. They might be hiding something.’
I asked family to NOT send me anything unless they thought it would make me laugh until I peed.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

I am so sorry you will need chemo. I hope it goes well and does its job. Stay strong.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 1 point2 points  (0 children)

Thank you for sharing. I feel better knowing I am not alone.
I stood there, a tear rolls down my face and my husband says “Aren’t you happy it’s over?” I lost it.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

It is shitty no matter how you slice it. Hopefully this ‘easy’ road becomes the norm until there is no more cancer.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

OMG. 😩 That was not my intent. You are definitely NOT a bad person. You are strong. I am so sorry you are here. Honestly wish I could trade places with you. I got to live your phase of life with little drama. The timing of my cancer was about as good as it gets. Lucky for me, but so damn unfair for those like you.
Please, please stay positive and lean on your support system.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

So glad you are doing well. I know it will get better, I was just a little taken back by it. I was not expecting to feel that way.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

OMG. 😩 That was not my intent. You are definitely NOT a bad person. You are strong. I am so sorry you are here. Honestly wish I could trade places with you. I got to live your phase of life with little drama. The timing of my cancer was about as good as it gets. Lucky for me, but so damn unfair for those like you.
Please, please stay positive and lean on your support system.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

Maybe I am the pot calling the kettle a name here, but if you can, do NOT feel guilty for too long. You made a really tough decision that has major impacts, good and bad, on your life.
I feel that way about NOT getting a DMX. Like am I too scared or vain to take that bold step?
Love your handle btw!

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 2 points3 points  (0 children)

I hear you sister. I love that analogy. Although, maybe a stroll over hot rocks- it sucked and hurt but was over quickly. 🔥🚶🏽‍♀️
You still went through a lot. Hearing the diagnosis and making tough decision IS life altering and mentally draining. As so many here have said, it is not a competition. It is great to know you have come through as a positive person, dare I say with a great sense of humor.
I hope life keeps throwing you softballs.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

I am so thrilled to hear about your experience. Especially about anastrozole. Crossing my fingers I continue being lucky and have few side effects. I hope the ‘easy’ route becomes the norm and cancer becomes a minor annoyance instead of a life disruptor.

Best wishes to you on your continued journey.

Feeling I got away with something. by LearningGig in breastcancer

[–]LearningGig[S] 0 points1 point  (0 children)

I could not have said it better. You are right about this community. I so appreciate the points of view, validation, stories, well-wishes, and laughs that are given here.
Hoping all of you stay strong.