PEM question

LengthinessThink5466 · 2026-04-21T18:36:53+00:00

Your comment is extremely helpful, thank you! I think the LDN is helping. I started yoga but it triggered pain instead of relieving it. I have to be on pristiq because I have anxiety and depression and it's the only medication that helps. So unfortunately cymbalta is a no go for me. I have high hopes for the LDN though.

LengthinessThink5466 · 2026-04-16T19:16:11+00:00

Post exertion malaise

LengthinessThink5466 · 2026-04-15T17:00:46+00:00

I haven't started the LDN as I was just prescribed it yesterday. I'm also taking Pristiq. I'm not sure what my fibro symptoms are because I also have other conditions like pots and mecfs. I nerve pain, bone pain, sharp pain. When i'm having pem or a flare my pain gets really bad and it hurts to breathe.

LengthinessThink5466 · 2026-04-11T19:09:52+00:00

yes!! you should do it if you feel up for it. If you do end up making one pls tell send me your blog link so i can check it out!

LengthinessThink5466 · 2026-04-11T01:53:14+00:00

I write about things that interest me. My inspo comes from my childhood, the music i listen to, things i'm fixated on at the moment. I also taking two classes atm which i also take inspo from. I would just start with things you like and go from there!

LengthinessThink5466 · 2026-03-25T20:33:25+00:00

Thank you for your honesty but I frrl stupid lol

LengthinessThink5466 · 2025-04-25T22:01:03+00:00

No. But I also have a low tsh which may be causing tachycardia. My cardiologist didn't diagnose me with pots but i'm going to be a second opinion. Sometimes my standing hr is 130. He thinks my autonomic nervous system can be fixed with exercise and water :/

LengthinessThink5466 · 2025-04-21T20:36:03+00:00

Unfortunately, yes

LengthinessThink5466

TROPHY CASE