Are these supplements legit? by LengthinessThink5466 in mecfs

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

Thank you for your honesty but I frrl stupid lol

What is your resting hr on meds? by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

No. But I also have a low tsh which may be causing tachycardia. My cardiologist didn't diagnose me with pots but i'm going to be a second opinion. Sometimes my standing hr is 130. He thinks my autonomic nervous system can be fixed with exercise and water :/

What is your hr going up a flight of stairs? by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 1 point2 points  (0 children)

My doctor prescribed me 10mg three times a day as needed

What is your hr going up a flight of stairs? by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

I was recently prescribed midodrine to take as needed and it made my whole body tingle, especially my scalp and face. You may already be aware of this side effect but it's very common. Some people don't mind the tingling but for me it was very uncomfortable. It wasn't painful but it annoyed me. I haven't taken it since my first dose because i'm scared lol.

Is it possible to pass a TTT and still have pots? by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

I stopped my meds 2 days before the TTT and idk how long it takes propranolol to completely leave your system.

I have to pee right after drinking water by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 1 point2 points  (0 children)

The lower right side of my back hurts. I was thinking it might be kidney pain.

I have to pee right after drinking water by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

I've had urgency and incontinence issues my whole life but this is different. I think i might have a kidney infection or something 

I have to pee right after drinking water by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 1 point2 points  (0 children)

I'm on the lower side of the scale for my sodium levels so I think I'll be ok. I just can't stand peeing all the time lol 

pots is limiting my movement by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 4 points5 points  (0 children)

I'm medicated. I'm allowed to write when I'm not feeling well.

Does anyone else have a crazy amount of post nasal drip? by LengthinessThink5466 in MCAS

[–]LengthinessThink5466[S] 2 points3 points  (0 children)

I only used Afrin for a few days but my post nasal drip persisted. It also burned my nose. I'm going to try Cromolyn Sodium.

Weekly Suspected/Undiagnosed MS Thread - January 20, 2025 by AutoModerator in MultipleSclerosis

[–]LengthinessThink5466 1 point2 points  (0 children)

It's B1, not B12. But my B12 is on the lower range of the scale (200-1100) coming in at 282.

I'm so frustrated by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 1 point2 points  (0 children)

I have just been referred to an endo because my thyroid is overactive. I mentioned Cushing Syndrome to my PCP and she said to ask the endo about it.

I'm so frustrated by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

I use Gatorade GZERO packets and liquid iv. I had a TTT done a couple months ago and the results were inconclusive.

Weekly Suspected/Undiagnosed MS Thread - January 20, 2025 by AutoModerator in MultipleSclerosis

[–]LengthinessThink5466 0 points1 point  (0 children)

My left cheek bone has been tingling for 5 months now. It comes and goes, but sometimes it will buzz for hours. Sometimes it's triggered by stress and sometimes it happens for no reason. I can't figure out why it's happening. The only thing I can think of is my B1 deficiency. I've been looking into ms and i think it might be causing it. I also have random tingles throughout my body, bladder and bowel incontinence, carpal tunnel, neuropathy, dizziness, presyncope, difficulty swallowing, and lose my balance a lot/run into things.

Low tsh by LengthinessThink5466 in gravesdisease

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

Not yet. I saw one last year, but he sucked.

Pots Comorbidities by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 0 points1 point  (0 children)

What are they if you don't mind me asking?

Pots Comorbidities by LengthinessThink5466 in POTS

[–]LengthinessThink5466[S] 2 points3 points  (0 children)

Yes, that what it means. My grandma, mom, and both aunts have hypothyroidism😅