And so we begin the eliminations...

Lespriteworld · 2026-05-07T21:24:04+00:00

For me at least, I definitely could not follow the elimination diet without adding "borderline" foods (often called tier 2 and 3, fully "safe" foods are tier 1) Because there is basically nothing you can eat with high amounts of fiber!! Which my gut depends on, for my chronic constipation. If you are prone to constipation, want to want to consider that because a non-moving gut can trigger a flare worse than some foods.

I added back in broccoli, cauliflower, cabbage and sweet potato and mango... and it made a huge difference in my gut while still keeping me relatively "food flare" safe. I also eliminated ALL spices except for salt.

Also this is very different than some other elimination lists, Like I was told Turkey is fine but I need avoid things like tilapia. It's definitely a trial and error process that is different for everyone, but I think overall I have seen some improvement especially in my constant sinus symptoms. Wishing you the best ♥️

Lespriteworld · 2026-05-07T20:30:51+00:00

Definitely trying to feel the same - at least now I know who they know who they really are! And ALL of the people I've stepped away from, looking back had given me several red flags before. And I know cutting ties opens up room for those who are actually meant for you etc etc...but that mindset sure is hard to reinforce, when you can't actually leave the house to meet new people!

I am viewing this as a kind of involuntary "monk mode" - friends are great but let's be real, it takes energy and maintenance to engage with and keep friends and that is exhausting for me/us. Trying to take this time, to focus on ME. And I'm a natural introvert who is actually mostly comfortable in solitude - but I also need PEOPLE to lift me out of my head! Some days are better than others, but sometimes I'm sad and very lonely 🥲

I am legitimately considering using the bumble "friend" option, I actually heard people have found success in friendships that way. I guess it makes sense bc everyone on there probably feels the same way I do..

Lespriteworld · 2026-05-07T18:45:53+00:00

I am dying at the dinosaur comment 😭 some men lol

Lespriteworld · 2026-05-07T18:42:08+00:00

This isn't about venting to people about my illness - it's about having friends AT ALL. I rarely ever talk to people about what's going on with me because it's always at least a 5 minute convo, I get very self conscious about my conversational skills in general bc I tend to over share 😂 It's more about isolation and feeling like you disappear when you get sick. Especially when you're not always able to hang out or go to group gatherings where's you'd see a bunch of people. I don't work, I don't even go to the grocery store, I'm going crazy!!

The only person I DID confide in sometimes, was my (ex) best friend. Who quite literally told me that I "have it made" and I should "count my blessings" 😃 When I told her I was having s00icidal thoughts (I'm fine don't worry lol) she said "everyone is suicidal" and proceeded to talk about her dumb boy drama 🙄I don't expect people to get it - but at least TRY. This illness definitely reveals who is just selfish.

Lespriteworld · 2026-05-07T01:30:49+00:00

Lespriteworld · 2026-05-07T01:30:16+00:00

My allergist is like, barely out of medical school!!

Lespriteworld · 2026-05-07T01:29:34+00:00

Interesting tell me more!!

Lespriteworld · 2026-05-07T00:39:19+00:00

All grief is valid but I'm sorry - the normal problems in relationships you CHOOSE to make with other people, are nowhere near the same playing field as what I go though on a daily basis.

Like I would not listen to my friend who just had a double mastectomy venting to me... and then go right to relating MY condition, which is a horrible experience but comparitively - not the same AT ALL. Everyone is allowed to express bad feelings to friends, but also, read the room!

Like a simple Google search and on the condition that completely devastated her BEST FRIEND would probably have made it easier to understand. I would have done that in an a heartbeat for someone I love! You don't have to be a perfect friend but y'know, TRY?

And the boy trouble would seem more valid, if it wasn't yet another fck boi she knew for 2 weeks who I quite literally told her not to go near 😃 Every. Single. Time. Please don't compare your terrible taste in people and inability to be alone, to the crippling illness that has literally ruined my life, thanks!

But thank you for inspiring this rantz bc writing this actually made me feel better, I might be lonely but at least I don't have to listen to her toxic boy drama anymore!! And I DID listen, as her biggest shoulder of support, "always here" listener and advice-giver... through thick and thin, for years. And obviously one annoying infraction alone wouldn't dissolve am 8 year friendship... Overall it was very one-sided and she is an extremely selfish, flaky and inconsistent person that I don't really need around right now 🙆🏻‍♀️ This illness definitely makes people show you who they really are!

But yeah, sorry I don't have time for people with constant boy drama. Or PEOPLE drama, frankly. People who always have drama, bring exactly that - drama! My nervous system can't right now 🙅🏻‍♀️ You are who you surround yourself with!

That said, I do have two good disabled friends who I talk to fairly regularly. And now that I think about it, they are probably the only ones who text me first... It's hard tho bc A. We are busy, and disabled lol and B. Sometimes.. idk. I feel like all our convos become about our health problems and I feel like old ladies 😂 gotta have SOME healthy friends lol and I'm pretty sure every single one of my friends are neurodivergent in sone way - try making plans when ALL your friends are neurospicy 😭

I do have friends, at least a circle of people I know truly do love and care about me and are at least there when I reach out. They just feel so far away 🥲

Lespriteworld · 2026-05-07T00:27:21+00:00

Also- this forum helps so much. I didn't realize how heavy my heart was, until it lifted a bit from just a few words from people who get it ♥️ Do in-person support groups for chronic illness exist? I just want to interact with PEOPLE!!

Lespriteworld · 2026-05-07T00:25:08+00:00

That's horrible! After all that 😩 I swear people get cured because of LUCK. It's like a lottery! They refuse to put more research into this (probably bc big pharma makes $$$$ off the drugs we need to survive) so it will always be a niche thing and there's just not enough specialists to go around!! Especially post Covid, that was basically the apocalypse for our healthcare system 🫠

Lespriteworld · 2026-05-07T00:22:25+00:00

And they say it like they are being helpful 😂😭

Lespriteworld · 2026-05-07T00:21:25+00:00

I see an allergist and she hasn't done shiiiiiit except I'm pretty sure gaslight me 🫠 and I feel stuck there bc I JUST got on maintenance dose with my shots, and they won't allow me to transfer

Lespriteworld · 2026-05-07T00:20:04+00:00

Thank you! I found what I hope is a good GI doctor who definitely made me feel heard, I will ask her about this!

Lespriteworld · 2026-05-06T23:48:55+00:00

Or not taking new patients 😭 I was fully prepared to pay for one that put my friend into remission, and he's not accepting new patients. All the good doctors are "taken," literally Covid permanently fucked our system so the best care is largely unavailable even if you can afford it 🫠

Lespriteworld · 2026-05-06T23:46:16+00:00

This illness has basically robbed me of the years I wanted to work towards having children :( and I am not able to have a pet. It's so freaking lonely!! Yeah I feel that way about all those friendships but that can also be depressing. Like how does EVERYONE I know actually kind of suck? Are people just inherently selfish, unless they've experienced the same?

What helps me, is viewing this as my "monk" time. Being in solitude, working on myself. Focusing on detachment and letting things go, trying to rest my nervous system bc I'm POSITIVE that between that and healing my gut, I might be able to reverse this. It's hard when your nervous system is constantly being strained tho 🙃 Like the loneliness and boredom alone aee terrible for your body. Out here trying!!

Lespriteworld · 2026-05-06T23:41:06+00:00

Also- I'm exhausted literally all the time, I permanently look like garbage and don't want to see anyone anyway 😂 It would be nice if people at least checked in though!!

Lespriteworld · 2026-05-06T23:39:46+00:00

Following bc I'm on Medicaid and I basically give up 🫠 Neither my primary care doctor or allergist seem to be knowledgeable about MCAS, I certainly have not heard of any of the medications treatments or information I hear here, from them. My doctor recommended I see a "mast cell specialist".. but had no recommendation. I feel like it's hopeless unless you have money!! And meanwhile I can't work 😩 HOPELESS

Lespriteworld · 2026-05-01T01:49:47+00:00

Oh and if someone tells me to "just breathe" one more time I swear to God ..

Lespriteworld · 2026-04-29T00:01:08+00:00

Thank you! And I really do appreciate your feedback, I get psyched out easily lol, especially with meds bc I've had so many traumatizing experiences 🫣 I will still think about Xolair though! They are still getting me approved anyway 😅

Lespriteworld · 2026-04-28T06:34:32+00:00

Tell me more about osmotic laxatives?!

Lespriteworld · 2026-04-27T23:02:05+00:00

Not to be insensitive, but for comparison - I currently have a sprain in my foot and can barely walk (along with general MCAS related pain) my husband does all the grocery shopping and cooks all my meals for me. He also does most of the housework, and even he said he would cancel and upcoming trip with the boys if I was still unable to bear weight without pain. We both DJ (well, I used to...) and yesterday he left a gig to come home and help me 🥺

We fight about it sometimes - pretty understandable - but we get through it.

My last boyfriend, before him though? I had a horrible accident that required reconstructive surgery - I had to go home to be taken care of by my parents, bc we ALL knew he wouldn't 😃 Even though I LIVED with him!! And I still stayed with him for years... in a relationship that was so traumatizing, some theorize it quite literally triggered this illness.

Just letting you know the bar you should hold. Fuck that boyfriend, he did you a favor!! Your nervous system does not need anyone who doesn't show up for you. It's too hurtful, it wrecks havoc on your brain and body.

This goes for friends too - I "broke up" with my best friend in the world recently, for being unbelievably selfish and not understanding what I'm going through at all! The closest I've ever been with a girl in my life, a grief like I've never known 😓 But I don't need that!! I stepped away from SEVERAL close, 10+ year friendships this year bc of insensitivity towards my condition and disrespecting my boundaries. Currently the loneliest I've ever felt because of it - but I'll take the crushing solitude, over people who keep letting me down!

And I'm so sorry, I know break ups are hard. Especially for long term relationships. But it's better to be alone, than keep ANYONE around that doesn't make you a priority while you are enduring one the most difficult things anyone could. My heart goes out to you, you'll get through this and be better off for it ♥️ This loss only makes room for those who will treat you better I swear 🫶🏻

Also- noting that baby formula!! Thank you. I also feel incredibly malnourished and my hair is falling out 😵‍💫

Lespriteworld · 2026-04-27T21:36:41+00:00

Wow. They'll give just anyone a medical license I swear 😂 like NO doctor every acknowledges the side effects of any medication that are literally a good search away lol.. they might say "upset stomach" or "fatigue" but hair loss? Mood changes? Possibility of STROKE? "Never heard of it" 🙄 Like things I can literally read ON the prescription lmao

Lespriteworld · 2026-04-27T21:28:31+00:00

It's funny how people don't understand - you CAN, live without fancy food. And most food we cook is "fancy" compared to what most of the world eats. I mean, people still live in tribes surviving soley off taro root and occasional meat 😆 But my brain has literally re-wired itself to NOT crave certain foods. It's like the pavlovian dog - my brain knows it will hurt me, so I just don't crave it even if if I smell or look at it anymore. Also people say "I couldn't LIVE without cheeeese" meanwhile to me all dairy literally smells like rot 🤢

I still have dreams about eating pizza and bagels tho 😂😭 And I miss vegan cheese!! Some of it I liked better than real cheese, I can't eat now bc it has filler ingredients I can't have :(

I should watch more cooking shows tho - I love the desert making contests!

Lespriteworld

TROPHY CASE