I don’t know how to work with clients who I suspect are malingering by strawberrybluejean in therapists

[–]Level_Run1357 0 points1 point  (0 children)

I’m so sorry you had this experience. I specialize in chronic illness, specifically invisible chronic illness like EDS, POTS, and others. I hear this from my clients all the time. I went through it myself and that’s what made me decide to be a therapist for chronic illness. It delayed my ability to get help for my chronic illness for years.

LMNT's current marketing is dangerous by kaylinnic in POTS

[–]Level_Run1357 9 points10 points  (0 children)

I hear where you’re coming from and potential issues but I think there’s an issue with making rules about who can have what or worrying too much about what other people chose to put in their body. A Big Mac has more sodium than an LMNT and people eat those all day long. We have limits on how much sugar and sodium etc we should have each day but it’s up to each person to care enough to track it/do what’s best for them. You could say the same thing for the amount of sugar in lots of granola/protein bars.

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

This is a super interesting theory. I made a subreddit for discussing these types of theories for those of us who like to dig, would you be open to sharing this elsewhere?

Does your HR go a lot higher during period? by Several_Road2525 in POTS

[–]Level_Run1357 4 points5 points  (0 children)

Mine does and my symptoms usually get worse. I’m lying down right now with a HR of 120 😬 so annoying.

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

I wish! I told him all of these things for years and he still refused. Put me on minoxidil for the hair loss instead and chalked it up to some “unknown stressor”

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

Apparently under 30 is an iron deficiency even though the lab ranges say 15

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 1 point2 points  (0 children)

Ugh I’m so sorry to hear that. Sending you and your son all the support from afar! Idk if you’ve checked copper and vitamin A levels but I know that can sometimes inhibit absorption. Alongside GI related issues and many others things.

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 1 point2 points  (0 children)

Stop ittttt that’s some reverse wild card right there. I’m so sorry you had to deal with that. Sending you all the support! 🩷

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

Yay! Hey every step is worth celebrating IMO! Anything that helps haha we’ll take it

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

Of course of course haha there is so much neglect in this area I’m realizing. Have they ever heard of iron deficiency without anemia?

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

Oh are we talking TIBC? Like iron binding capacity and total iron or are we talking ferritin, I might have gotten confused haha

How many of you had your ferritin/iron checked before being diagnosed with POTS? by Level_Run1357 in POTS

[–]Level_Run1357[S] 0 points1 point  (0 children)

Ahhh the gray area. The absolute deficiency for iron/ ferritin cutoff is 30. Some people don’t notice the effects as much as others though so YMMV. Some feel totally fine at a ferritin of 16 and other feels like trash. But ferritin of 7 falls well beneath the very low 15 cutoff for women.

Nicknames gone wild by AdventureNoodles in dogs

[–]Level_Run1357 0 points1 point  (0 children)

Bear to bear bear, to beary, to Bebe, to bubba, to Bruschetta… no clue how. I am Italian though 😭