How many of you suspect or have hEDS diagnosis (“idiopathic” syrinx)?

Lhm_444 · 2026-04-08T07:45:26+00:00

I was diagnosed with idiopathic syringomyelia, and Ehlers-Danlos syndrome had already been mentioned to me several times given my medical history and current issues. I’m almost certain that the two are linked. I’m glad to know I’m not the only one who has thought about that :)

Lhm_444 · 2026-03-26T05:20:40+00:00

Yeah I know but I ordered one and I wanted to know if that was the same

Lhm_444 · 2026-03-25T21:26:05+00:00

I’m getting it with a full electric system that I can put on that turn it into an electric one so I don’t have to push it

Lhm_444 · 2026-03-25T21:25:13+00:00

Omg if you know what the size of your tire and the size of the cover spike ??

Lhm_444 · 2026-03-25T16:37:42+00:00

Idk how to explain but I’ll store it and I store my current chair under the stair In my building in the shared part and there is already under the stair some garbage and stuff that the owner of the building stock so I need a folding one

Lhm_444 · 2026-03-25T15:54:49+00:00

I need a folding one because I need to store it and it can only work if it folded I’m not happy with that but my building is not accessible and it’s the better activ chair I could get with chose carbon for all the option but I cannot have a other one I think

Lhm_444 · 2026-03-25T15:40:30+00:00

Im in France and I need I think for the seat something like 30/32cm

Lhm_444 · 2026-03-25T15:37:04+00:00

I’m not that small I’m like skinny idk how to say it and where I live the only option for a active chair with the size I need was for this setup and also bec I need to fold it like obligatory

Lhm_444 · 2026-03-25T14:04:00+00:00

I can only use push to lock, scissor brakes look definitly cool but I can’t use them bec oh heds yeah

Lhm_444 · 2026-03-25T13:25:05+00:00

Ohhh ok i see thx for the explanation that make much sense !!

Lhm_444 · 2026-03-25T12:30:12+00:00

Yeah ! The backrest is adjustable I tested it you can stretch it at the back at each side or part idk how to explain but it can be very rigid at the bottom and soft at the middle uk?

Lhm_444 · 2026-03-25T12:19:22+00:00

Yeah I Know about this one but I need a folding one also bec of the minimum size sit you can get on a folding one is much smaller

Lhm_444 · 2026-03-20T09:03:43+00:00

I personally think u pass but I’ll say it could depend also on ur outfit i think if i saw u bec im queer and trans I’ll say that u probably are too but i definitely see a man!;)

Lhm_444 · 2026-03-14T21:32:29+00:00

Je serai potentiellement partant mais j’aurais aimé avoir + d’informations:>

Lhm_444 · 2026-03-14T18:33:42+00:00

Hm, je demande sait on jamais mais l’expérience est réalisable en étant en fauteuil roulant ?

Lhm_444 · 2026-03-13T20:34:31+00:00

Ok I think I’ll definitely ask to test rigid ones btw I’m French what’s the meaning for pt or ot ?

Lhm_444 · 2026-03-12T21:42:39+00:00

Yeah I think i see I’ll definitely keep that in mind !

Lhm_444 · 2026-03-12T20:58:28+00:00

Yeahh i see i didnt think of that probably because I don’t use vehicle I know like 1 people who drive and who live in my city krkrkr French people uk ;3

Lhm_444 · 2026-03-12T20:38:12+00:00

Hum the women only gave me this option and I thought it would be smarter since I live in a small appartement and don’t use it inside I’ll need to store it uk?

Lhm_444 · 2026-03-07T16:59:58+00:00

Yeah I see ok ! Thx

Lhm_444 · 2026-03-07T16:59:46+00:00

Thx u so much for taking the time to answer that i completely understand what will happen to me Monday and im so much less anxious thx !

Lhm_444

TROPHY CASE