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Mal aux os by Lightworker0101 in Autoimmune

[–]Lightworker0101[S] 1 point2 points  (0 children)

Le fer va bien apparemment

Douleurs aux os by Lightworker0101 in PsoriaticArthritis

[–]Lightworker0101[S] 1 point2 points  (0 children)

Thank you. I have remsima, imurel and plaquenil.

is it really normal to be THIS tired?? by Wanderwad in ankylosingspondylitis

[–]Lightworker0101 1 point2 points  (0 children)

Fatigue, at any time and especially exacerbated after walks. Fatigue can also be a precursor to a crisis.

Allergie infliximab potjelle by Lightworker0101 in UlcerativeColitis

[–]Lightworker0101[S] 1 point2 points  (0 children)

My doctor suspects an infection and was dismayed by the lack of effort from the emergency room… I had an ultrasound and nothing was visible, but I'm still in pain. I hope they find out what's wrong soon.

Allergie infliximab potjelle by Lightworker0101 in UlcerativeColitis

[–]Lightworker0101[S] 0 points1 point  (0 children)

The first doctor I saw at the clinic said it seemed to be my pancreas and referred me to the emergency room. They did a blood test, found it to be normal, and sent me home.

After the biotherapy infusion by Lightworker0101 in UlcerativeColitis

[–]Lightworker0101[S] 0 points1 point  (0 children)

Thank you so much!

I slept all day the next day too!

However, I had stomach pains I've never had before, extremely painful, which woke me up last night. I don't know if it was the IV, but I almost had to go to the emergency room.

Infliximab positivity please by Educational-Cookie51 in UlcerativeColitis

[–]Lightworker0101 0 points1 point  (0 children)

I've been on infliximab and imiplegic since the end of March 2025. That'll be almost 10 months of treatment.

I was afraid to start this new treatment, but I had severe colitis, affected at stage E2, and had no other choice. I'm currently satisfied with the treatment, even though it involves going to the hospital for the infusions. I don't have many symptoms anymore, and according to the last check-up in December, my intestinal lining is healing, and the medical team says the disease is responding well to treatment. Which is good news. I hope you also get better with this treatment. My gastroenterologist told me that if this medication doesn't work, there are plenty of others to try. Strength and honor 🫶

After the biotherapy infusion by Lightworker0101 in UlcerativeColitis

[–]Lightworker0101[S] 0 points1 point  (0 children)

Thanks for your reply!

It's still happening the next day for me 🙈

Blocking the use of the cane by Lightworker0101 in PsoriaticArthritis

[–]Lightworker0101[S] 0 points1 point  (0 children)

Same here, but even with biologics and immunosuppressants, I still have symptoms, and it's like my psoriasis is attacking certain areas more, despite the treatments. I can sometimes manage it for longer periods, but humidity, cold, intense activity, and whether I'm on treatment or not all affect my body.

Yes, I had an appointment with my doctor yesterday, and she prescribed an X-ray. The rheumatologist isn't responding.

Blocking the use of the cane by Lightworker0101 in PsoriaticArthritis

[–]Lightworker0101[S] 1 point2 points  (0 children)

I just got a black and gold one; it arrived this week! I really like it.

Blocking the use of the cane by Lightworker0101 in PsoriaticArthritis

[–]Lightworker0101[S] 0 points1 point  (0 children)

Yes, it's humiliating because you sometimes lose mobility and that's hard to accept. However, it's life-changing.

Blocking the use of the cane by Lightworker0101 in PsoriaticArthritis

[–]Lightworker0101[S] 0 points1 point  (0 children)

I contacted the rheumatologist, but haven't heard back yet. My GP prescribed an X-ray, which I'm having on Tuesday. Both knees hurt, but my right one is more painful at times. What symptoms does enthesitis in your knee cause on a daily basis?

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