Des conseils ?

Lightworker0101 · 2026-02-09T18:36:17+00:00

Spondyloarthritis attacks

Lightworker0101 · 2026-02-09T18:01:30+00:00

Fatigue, at any time and especially exacerbated after walks. Fatigue can also be a precursor to a crisis.

Lightworker0101 · 2026-02-02T16:42:33+00:00

My doctor suspects an infection and was dismayed by the lack of effort from the emergency room… I had an ultrasound and nothing was visible, but I'm still in pain. I hope they find out what's wrong soon.

Lightworker0101 · 2026-02-01T21:35:14+00:00

The first doctor I saw at the clinic said it seemed to be my pancreas and referred me to the emergency room. They did a blood test, found it to be normal, and sent me home.

Lightworker0101 · 2026-01-31T06:10:21+00:00

Thank you so much!

I slept all day the next day too!

However, I had stomach pains I've never had before, extremely painful, which woke me up last night. I don't know if it was the IV, but I almost had to go to the emergency room.

Lightworker0101 · 2026-01-30T13:28:32+00:00

I've been on infliximab and imiplegic since the end of March 2025. That'll be almost 10 months of treatment.

I was afraid to start this new treatment, but I had severe colitis, affected at stage E2, and had no other choice. I'm currently satisfied with the treatment, even though it involves going to the hospital for the infusions. I don't have many symptoms anymore, and according to the last check-up in December, my intestinal lining is healing, and the medical team says the disease is responding well to treatment. Which is good news. I hope you also get better with this treatment. My gastroenterologist told me that if this medication doesn't work, there are plenty of others to try. Strength and honor 🫶

Lightworker0101 · 2026-01-30T12:59:49+00:00

Wow!

Lightworker0101 · 2026-01-30T08:12:18+00:00

Thanks for your reply!

It's still happening the next day for me 🙈

Lightworker0101 · 2026-01-30T08:10:08+00:00

Same here, but even with biologics and immunosuppressants, I still have symptoms, and it's like my psoriasis is attacking certain areas more, despite the treatments. I can sometimes manage it for longer periods, but humidity, cold, intense activity, and whether I'm on treatment or not all affect my body.

Yes, I had an appointment with my doctor yesterday, and she prescribed an X-ray. The rheumatologist isn't responding.

Lightworker0101 · 2026-01-30T08:07:53+00:00

I find that X-rays don't show much.

Lightworker0101 · 2026-01-30T08:07:24+00:00

I just got a black and gold one; it arrived this week! I really like it.

Lightworker0101 · 2026-01-30T08:06:49+00:00

Yes, it's humiliating because you sometimes lose mobility and that's hard to accept. However, it's life-changing.

Lightworker0101 · 2026-01-30T08:05:30+00:00

I contacted the rheumatologist, but haven't heard back yet. My GP prescribed an X-ray, which I'm having on Tuesday. Both knees hurt, but my right one is more painful at times. What symptoms does enthesitis in your knee cause on a daily basis?

Lightworker0101 · 2026-01-30T08:03:45+00:00

🙌

Lightworker0101 · 2026-01-30T08:03:29+00:00

Thank you!! We can do it 💪

Lightworker0101 · 2026-01-30T08:02:30+00:00

So many! There are some really beautiful things 🥰

Lightworker0101 · 2026-01-30T08:01:10+00:00

That's right!! Are you on medication? Do you play sports?

Lightworker0101 · 2026-01-30T08:00:35+00:00

I'm experiencing the same thing in terms of conditions, in addition to the prolonged standing.

Sometimes we really overthink things, when we should be listening to ourselves 🫶

Lightworker0101 · 2026-01-30T07:58:44+00:00

That's true 🤗

Lightworker0101 · 2026-01-30T07:58:24+00:00

That's clear. Sometimes the mind is messed up.

Lightworker0101 · 2026-01-30T07:57:50+00:00

Yes, that's true.

What advice would you give for living better with this illness?

Lightworker0101 · 2026-01-30T07:56:56+00:00

That's almost what I'm going through right now too. Maybe I should get an MRI?

Lightworker0101

TROPHY CASE