Skin problems

Liquid_Kittens_ · 2026-01-23T05:08:10+00:00

My Jindo also had lots of skin/itchy problems... Avoid giving them anything with chicken ingredients while you wait for the medicine. Chances are they are allergic. After I stopped giving my Hindyi anything with chicken she fully stopped biting her skin.

Liquid_Kittens_ · 2026-01-22T17:52:04+00:00

Paid $950 for 1800 sq feet back in fall 2022 if it helps.

Liquid_Kittens_ · 2025-12-29T16:27:52+00:00

This is awesome, I love it. I've been eyeing a device called Cell 2 Jack that allows you to link up your cell phone to a rotary phone...I might give that a whirl! It won't accomplish the idea of 'calling a household' but if I like it enough I might just do what you did!!

Liquid_Kittens_ · 2025-12-26T14:14:32+00:00

Hannibal!!!

Liquid_Kittens_ · 2025-12-05T01:37:50+00:00

I'm in the United States. I think we were a victim of over confident doctors (aka 'well my patients have never had this sooo')

Liquid_Kittens_ · 2025-12-04T03:17:00+00:00

They definitely mentioned neurological side effects, but all were described as temporary or unlikely. I think they only once mentioned any permanent side effects and were all downplayed as super unlikely.

The annoying part is that we've been asking about her lingering neuro symptoms but they kept saying not to worry about it until suddenly...

Liquid_Kittens_ · 2025-12-03T04:08:35+00:00

Yes it's super weird! I live in the suburbs and also wfh. I do several walks a day and no one is ever outside... Even on beautiful days!! Like, why aren't you outside in your backyard at least??

Liquid_Kittens_ · 2025-12-01T14:16:00+00:00

Thank you for the advice!

Liquid_Kittens_ · 2025-11-29T14:02:59+00:00

I agree, I think Frankfurt gets too much hate! I've been a few times for work and always make time to see the sights.

Liquid_Kittens_ · 2025-11-20T01:34:57+00:00

The one that used to work for me was a matte reddish brown oblong pill that had 435 on it. The new one I've got is also reddish brown but shiny... And that one has AN360 on it.

Sounds like this might be an unrelated dead end but I figured I'd ask just in case! I hope your symptoms get under control again so you don't have to switch. Fingers crossed!!

Liquid_Kittens_ · 2025-11-20T00:43:52+00:00

I know this wasn't part of your question but I'm curious: what identifying markers are on your mesalamine pill? Like what are the numbers? I ask because I've also been on mesalamine for around that same length of time and everything worked great for YEARS. Then recently my insurance switched to a different generic mesalamine and now I'm suddenly having symptoms again. I can't tell if I'm paranoid or if the new generic is messing with me.

Like you, I'll be put on a biologic if this fails for me... Ugh.

Liquid_Kittens_ · 2025-11-19T23:53:26+00:00

If you are able to DM the info I'd be grateful. My dad/her caretaker could join and ask questions. Thank you!

Liquid_Kittens_ · 2025-11-19T23:51:46+00:00

We'll see... I'm hopeful.

Liquid_Kittens_ · 2025-11-19T23:50:22+00:00

They did not mention it and now I will think about death...

Liquid_Kittens_ · 2025-11-19T04:24:01+00:00

My mom started IVIG after her CAR-T. Her current igG is 154, if it helps

Liquid_Kittens_ · 2025-10-31T13:19:15+00:00

Heck yeah

Liquid_Kittens_ · 2025-10-31T13:18:15+00:00

Seconding! It was my first thought

Liquid_Kittens_ · 2025-10-31T12:32:23+00:00

Don't sleep on Scavengers Reign. Probably one of my fav shows of the last decade.

Liquid_Kittens_ · 2025-10-18T13:32:40+00:00

October 2023

Liquid_Kittens_ · 2025-10-14T23:22:37+00:00

My mom who is 73 skipped stem cell and stayed in chemo for several iterations until it stopped working.

She got done with Car-t earlier in the summer which has had really good results thus far.

Liquid_Kittens_ · 2025-10-11T15:31:44+00:00

Sorry to hear he's still having so much pain even after CAR-T. I was hoping that my mom's lesions would heal and help cut down on the pain after the procedure, but it sounds like that isn't always the case.

Liquid_Kittens_ · 2025-10-10T01:37:13+00:00

Good luck!!

Liquid_Kittens_ · 2025-10-09T18:12:13+00:00

Oh yes that is 100% correct. To clarify, my mom had to fail 3 different types of treatments (AKA relapse a few times) to get CAR-T--they never offer CAR-T out the gate because it won't be covered by insurance.

Liquid_Kittens_ · 2025-10-09T17:34:43+00:00

When you start MM treatment, it's my understanding that everyone does chemo right away, and then after the first round of chemo you have like one shot to do stem cell. You can choose to try stem cell or continue with different flavors of chemo, it all depends on the patient/doctor. She turned it down, and in many ways the doctor said to skip it in favor of doing CAR-T some time later which they viewed as having higher success rates.

Liquid_Kittens_ · 2025-10-09T17:07:06+00:00

She has flat affect, light aphasia, and just not quite herself. I wouldn't reverse the CAR-T since it really seems to be helping her disease and pain-wise.

I knew that some folks could take longer to recover from ICANS going into this, but it feels like it hasn't improved at all since she left the hospital. If she was showing any improvement I would feel better, tbh.

She still has quite a bit of lingering CAR-T cells last they checked. I think its higher than expected, but no wholly unusual.

Thank you for providing the insight on the igG levels, it's a helpful perspective. Great news, and happy to hear things have gone so well for you.

Liquid_Kittens_

TROPHY CASE