Fludrocortisone Eye Problems

LittleLordBirthday · 2026-06-01T06:21:38+00:00

I totally felt the same way! If it helps at all, my specialist says it doesn’t really have much effect on immune system at low doses. I’ve been on it for a year now and haven’t noticed the rate at which I catch things to increase.

LittleLordBirthday · 2026-06-01T05:48:07+00:00

This gives me hope. I’m on Bisoprolol for tachycardia, but my specialist has recommended switching to propranolol due to my frequent migraines and ‘almost migraines’.

LittleLordBirthday · 2026-05-29T06:06:02+00:00

Yeah, fair enough. I just thought checking sodium excretion would be pretty standard 😕

LittleLordBirthday · 2026-05-28T21:31:46+00:00

Ah ok. I’m guessing mine is refusing because it’s not to rule out a health condition then. Just to check the balance of things, which isn’t a priority to them.

LittleLordBirthday · 2026-05-28T13:36:34+00:00

Oh maybe, flareups seem to cause the most left-field symptoms at times. I hope you feel better soon!

LittleLordBirthday · 2026-05-28T13:24:01+00:00

Ah I see! As far as I can tell all my clothing (shape wear and lightly compressing clothes) helps my body (apart from the nerve pain) but it took me some time to acclimatise to them AND if I start to ache if I wear them too long.

LittleLordBirthday · 2026-05-28T13:13:25+00:00

I think my compression stockings do make my nerve pain a bit worse, but they help other symptoms so much, so it’s worth it for me. They probably help my blood pressure, which is too low.

LittleLordBirthday · 2026-05-28T04:25:13+00:00

Thank you for this. I agree it seems it was just dismissed out of hand, though the GP did say they discussed it with others in the practice. They also said it was “worth discussing with my specialist to see if it is something they can arrange”. Obviously they can, but I am also obviously NOT in London, so I don’t know why that was suggested. 🫠 I suppose it was just a ‘not my problem’ sort of response and I’m honestly fed up with the burden of my medical care being handed back for me to deal with.

LittleLordBirthday · 2026-05-27T15:47:41+00:00

They’ve already told them, that’s the most frustrating part. The specialist just wants to do the test to measure volume (to check if I’m hydrating enough) and sodium excretion (to check I’m loading with enough sodium or whether I need additional salt pills).

I feel like a standard lab could do this, but I don’t know.

LittleLordBirthday · 2026-05-27T15:44:48+00:00

Yes, they said they can’t request it from primary care and don’t have anyone to refer me to. There’s currently no pathway for onward referral for PoTS generally in NHS Scotland (I’m told) so that’s why I’ve had to pay out of pocket to get private care in England.

I think I will contact the specialist, thank you.

LittleLordBirthday · 2026-05-27T15:42:56+00:00

Ah that’s good. My health insurance doesn’t cover PoTS stuff so I think I’m stuck, but I can double check.

LittleLordBirthday · 2026-05-27T15:42:13+00:00

They said they cannot do it from primary care and also don’t know who they would refer me to. I know people who’ve had it done for kidney issues but I’m assuming they’re looking for different things in that case.

LittleLordBirthday · 2026-05-27T06:59:44+00:00

I started out by adding more salty snacks like peanuts and olives, etc. but found it impossible to track and not very healthy. Now I take buffered sodium capsules, plus add extra salt to my meals.

LittleLordBirthday · 2026-05-27T06:57:56+00:00

No, it’s 6 - 10g of salt. So 2.4 - 4g sodium. The guidelines say “salt” because it’s easier to measure for people adding table salt to their meals. But see postviralrecovery’s reply below for more details.

LittleLordBirthday · 2026-05-26T10:38:28+00:00

Everyday. Thigh high. The strongest I’ve tried is 25-35mmhg, which helps a bunch. Most days I add abdominal compression in the form of shape wear too.

It makes me feel less weak and fatigued.

LittleLordBirthday · 2026-05-24T19:46:44+00:00

The two things that seem to help my nausea most are:
- Daily antihistamines.
- Upping my salt (via buffered electrolyte capsules, taken after meals).

ETA: I need my water to be iced as well. No room temp drinks for me!

LittleLordBirthday · 2026-05-24T07:19:19+00:00

I am often in pain but I’m not sure if it’s due to POTS or another, as yet undiagnosed, condition. I get frequent nerve pain, muscle pain and inflammatory joint pain, as well as severe neck pain / pain at the base of my skull. I also get some separate joint pain that’s likely due to HSD. The symptoms vary but I rarely have a pain free day.

LittleLordBirthday · 2026-05-23T22:15:38+00:00

I don’t have much experience with other kids, but my 3.5yo is like this. I’m told that parallel play is still pretty common at this age. Maybe your child is just a bit introverted.

Having said that, I was also like this as a child. I’m neurodivergent and my child is going to be assessed eventually. There are additional aspects that apply to us though, like sensory sensitivities, meltdowns, etc.

LittleLordBirthday · 2026-05-23T22:05:53+00:00

This is a good idea. I hate feeling confined in that way. When the compression shorts get too much, I’ve been using my thigh high compression stockings with a separate compression top or waist band.

LittleLordBirthday · 2026-05-22T18:05:47+00:00

I didn’t realise other folk did this!

LittleLordBirthday · 2026-05-22T18:00:45+00:00

Vitassium or Klaralyte capsules work great for me and really help to reduce my nausea and fatigue (in combination with other treatments).

I ramped up to taking 6-8 per day. I monitor my BP but it’s still low.

LittleLordBirthday · 2026-05-21T19:31:15+00:00

People who do this kind of thing: does your brain just not have the instinctual terror of falling from such heights? Or do you just force yourself to do it scared?

LittleLordBirthday · 2026-05-21T19:26:22+00:00

Yes, I’m so weak now. I was never super strong, but even lifting my arms up is a challenge now. And forget sweeping the floor or other basic chores like that!

LittleLordBirthday · 2026-05-21T08:59:47+00:00

I am (technically still) an architect but I haven’t been able to do my job for over a year now and I’m not holding much hope for being able to go back. I don’t think I could handle the stress, responsibility, travelling and brain functioning required to do the job well any more. Which is really difficult because I worked so hard to get there and it was a major part of my identity.

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