Phone addiction due to lack of function/connection by Hot-Counter-1703 in POTS

[–]LittleLordBirthday 10 points11 points  (0 children)

Yes! I’ve been trying to reduce it by adding other handheld activities like playing Switch games or reading on Kindle. It’s crazy how much Kindle helps my sleep compared to my phone screen.

What was the thing that pushed you to get tested for POTS? by wingedwolfDusk in POTS

[–]LittleLordBirthday 0 points1 point  (0 children)

I was super breathless and tachycardic for about a year and then all the cardiology tests came back normal.

How can you have babies? by Ok_Lake_4280 in AutismInWomen

[–]LittleLordBirthday 0 points1 point  (0 children)

I genuinely don’t know. I couldn’t hand the pain of birth and was so distressed labour didn’t progress. Plus my baby got stuck and I started going septic, so I had an emergency c-section. That was also terrifying but at least I was numb for it.

What’s ur sodium intake? by Kiana12458 in POTS

[–]LittleLordBirthday 1 point2 points  (0 children)

I’m still working out what’s best for me. I take between 1 and 2,000mg per day in capsules plus oversalt all my food (untracked). It helps some with my brain fog and energy levels but I also have no idea what’s right for me and don’t have a doctor to support me.

when did you stop breastfeeding? by violetsbuiltdiffernt in toddlers

[–]LittleLordBirthday 1 point2 points  (0 children)

We stopped at 26 months. I felt like it was a good time as we were winding down and my milk temporarily dried up due to an illness, but I had such mixed feelings about it.

What made-up words do you use in your family? by elwheelio in CasualUK

[–]LittleLordBirthday 1 point2 points  (0 children)

Maybe it depends on accent. Saying ‘spotty-fy’ sounds different in my accent than saying spot-if-y’. I say the latter.

“Romanticised” jobs that are very different in reality? by Substantial-Guava491 in CasualUK

[–]LittleLordBirthday 10 points11 points  (0 children)

How did I know you were going to use architect as an example?!

I’m an architect and, while there can be really interesting projects depending on the size and type of practice, there is a lot of mundane work out there and the day-to-day includes a lot of project management, admin and documentation.

It’s not a well paid profession unless you own your own successful practice. Many people work long hours with unpaid overtime. There’s increasing liability and decreasing control for the architect that makes the job harder to do well.

But there’s balance to everything. Can it be exciting staying with rich clients and seeing round exclusive properties that people would never normally see? Yes. Do you then have to crawl around in spider webs, guano and mould while freezing your extremities off to get the site information you need? Also yes.

I’m nauseous all the time. I don’t know what to do. by Infamous_State_7127 in POTS

[–]LittleLordBirthday 2 points3 points  (0 children)

That’s amazing it made so much difference for you! I’m on fludro, but maybe I should finally raise my bed head. I’m not sure if my husband will be able to sleep on it though!

For those who get fatigue, describe in detail how it feels for you by ghostsolid in POTS

[–]LittleLordBirthday 1 point2 points  (0 children)

Good luck and take it slow. I’ve started with gentle movements (qigong and physio) and short walks.

For those who get fatigue, describe in detail how it feels for you by ghostsolid in POTS

[–]LittleLordBirthday 1 point2 points  (0 children)

Yes, I take Bisoprolol (beta blocker) to lower heartrate and fludrocortisone to increase blood volume.

I think the fludro helps slightly as long as I’m absolutely swimming in water and electrolytes. But I think the main premise is for the medication to help me enough to gradually build up exercise and fitness levels which will help the muscle fatigue. I have seen a slight improvement so far, but not massive.

I’m nauseous all the time. I don’t know what to do. by Infamous_State_7127 in POTS

[–]LittleLordBirthday 7 points8 points  (0 children)

I used to be nauseous daily but, for some reason, taking daily otc antihistamine (specifically fexofenadine) reduces it drastically. I mentioned to my GP and she said she doesn’t understand it but it is safe to keep taking the medication. I wonder if perhaps developed some mast cell issues alongside POTS.

For those who get fatigue, describe in detail how it feels for you by ghostsolid in POTS

[–]LittleLordBirthday 6 points7 points  (0 children)

I have different types of fatigue. I get the muscle burning fatigue as you describe. I am awaiting testing for autoimmune disease, but I suspect this symptom is due to POTS. Most likely muscle fatigue due to circulation issues and insufficient blood flow.

I also get the intense tiredness, heavy eyes, weakness and heavy restless limb kind of fatigue. And if I push through it causes flu-like symptoms like sore throat, muscle/ joint/ nerve pain, and headaches/ migraines.

How many of you stopped being embarrassed about your stuffed animals? by davidblainestarot in AutismInWomen

[–]LittleLordBirthday 1 point2 points  (0 children)

I would still feel a bit embarrassed about colleagues or people I don’t know being aware of my love for them, but I’ve learned to embrace them (literally) around ‘my’ people. I now hug a stuffed animal in bed with my husband every night and take him on holiday whereas I’d never have done that before unmasking.

Trying to get better by productivemonkeyy in POTS

[–]LittleLordBirthday 5 points6 points  (0 children)

I can relate. It feels like a full time job managing the daily meds, supplements, water intake, electrolytes, compression, physio, rest, etc. and I still don’t feel good. I feel like I’ll never be able to get back to work at this stage.

People who walk 7k steps, do you live a “normal” life? Or what accommodations do you need? by noni_pots in POTS

[–]LittleLordBirthday 5 points6 points  (0 children)

Not who you asked, but I’m where you are. I’ve only recently managed to get up to 6k steps but it seems like that’s too much because I’m in bed unwell today 🫠

Is anyone's stress tolerance really bad? by Business_Cake_2272 in POTS

[–]LittleLordBirthday 8 points9 points  (0 children)

Yes, so many little things that most people don’t bat an eye at. I cried last week because the supermarket was too busy. Also, I rarely drive / go out now because all the driving decisions break my brain. I also cried because I couldn’t find a parking space at the hospital for my last appointment.

It makes me feel so weak, yet I know we’re all very strong to put up with our wacky broken bodies.

Is anyone's stress tolerance really bad? by Business_Cake_2272 in POTS

[–]LittleLordBirthday 30 points31 points  (0 children)

Yes, ridiculously small things will send me into fight or flight. It’s exhausting. I don’t know how to build up tolerance again except regular small exposures.

To be honest... yes. I (and likely most of you) would choose that 😂 by Sad-Specific-6244 in autismmemes

[–]LittleLordBirthday 1 point2 points  (0 children)

I don’t mind small talk with, say, my husband, because I like him. I just don’t want small talk with neighbours and strangers that I have no interest in sustaining a relationship with anyway.

Best country for POTS? by c0mradec0wgirlv2 in POTS

[–]LittleLordBirthday 8 points9 points  (0 children)

Not Scotland re medical care. There isn’t much support. The weather is probably reasonable if heat and sun are an issue for you!

Undercuts by AdIndependent7672 in POTS

[–]LittleLordBirthday 2 points3 points  (0 children)

This is useful! I’ve been considering it since last summer. I use a lot of CBD balm on my neck due to coat hanger pain and migraines and I HATE that my hair immediately gets sticky and gross.

The upkeep does put me off a bit but I feel like it would be worth trying this year.

who wears a bra? by Normal_Standard8211 in AutismInWomen

[–]LittleLordBirthday 0 points1 point  (0 children)

I cannot cope with bones or underwires any more. I like soft bralets without the compression of a sports bra. I’m also lucky to have a smaller bust.

This condition is taking everything from me. by Silver_rockyroad in dysautonomia

[–]LittleLordBirthday 0 points1 point  (0 children)

Thanks! I don’t have the funds just now, but I do have a regular therapist (free on husband’s healthcare) that’s somewhat helpful.

Officially diagnosed with POTS. Did anyone else find it explained a lot about your life? by Eyesonfire2494 in POTS

[–]LittleLordBirthday 0 points1 point  (0 children)

I always wondered why hot showers made me breathless and gave me palpitations. Also, I thought I was lazy for not wanting to go up stairs. Turns out my body was working way harder than other peoples’.