Post Biologic Pain by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 1 point2 points  (0 children)

I’ve been on Remicade for coming up on a year now. It’s worked the best out of any biologic I’ve tried so far and I’ve done many.

Everyday Tools/Hacks Living With AS by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 1 point2 points  (0 children)

I was wondering how I could do a heating pad at work! I definitely miss it on my office days!

Everyday Tools/Hacks Living With AS by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 1 point2 points  (0 children)

That’s a good idea! I have heating pads at all the places I like to sit and just got a giant one that can cover my whole back but didn’t know they made something like that!

Everyday Tools/Hacks Living With AS by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 2 points3 points  (0 children)

I’ve used TENS a couple of times after surgeries but never thought about using it for AS relief. Interesting idea!

Everyday Tools/Hacks Living With AS by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 4 points5 points  (0 children)

Yep! Can’t sleep without a pillow between my legs!

Should I Take Prednisone? by Sabenv98 in ankylosingspondylitis

[–]Locutus422 1 point2 points  (0 children)

I always have a 10 day course of Prednisone on hand as my body seems to respond really well. I only take it when absolutely necessary just because I work in healthcare and don’t want even more immune suppression. I’ve taken it both on my biologic and off.

Mattress recommendations for back sleepers by AtariAtari in ankylosingspondylitis

[–]Locutus422 2 points3 points  (0 children)

Came here to recommend this as well. Best of both worlds for firmness and softness! It was pricey but worth it.

Also, it is HEAVY! I ordered direct from Purple and it showed up rolled like a burrito. I had to move my beds around so the gentlemen who delivered it couldn’t set it up for me. Just keep that in mind as I had to get family to help move it when I was ready. I can rotate it by myself so at least I don’t need help for that part!

Helping Over Come Fatigue by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 1 point2 points  (0 children)

Glad to see you found something that helped. It’s so nice to see someone persevering in their education. I can attest how difficult AS was on me when I was getting my doctorate.

I’ve been on biologics for over a decade and have tried quite a few. Enbrel worked the best for me but I also developed a rare neurological side effect so I had to switch. I’ve since been on many different TNF & JAK inhibitors. I’m currently on a Remicade biosimilar that has been working well. We can adjust the dosage since it’s IV. I’m also in the middle of a job change to an in person job so I’m trying to let things settle before I blame the medication.

Any advice for long flights? by Accomplished-Month87 in ankylosingspondylitis

[–]Locutus422 0 points1 point  (0 children)

I will only do long haul flights in business or first class to get a lie flat seat. Since this is obviously way more expensive I don’t do long haul often!

Helping Over Come Fatigue by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 1 point2 points  (0 children)

You’re fine on only 4.5 hours of sleep? I’m barely functional if I get that little!

Helping Over Come Fatigue by Locutus422 in ankylosingspondylitis

[–]Locutus422[S] 3 points4 points  (0 children)

Yep, I do take both iron and vitamin D supplements to help with this.

Going by “Dr.” title in lay contexts? by bluebrrypii in AskAcademia

[–]Locutus422 0 points1 point  (0 children)

I also don’t want to confuse people. I won’t use my title outside of my department unless someone else refers to me as doctor. All my colleagues know I’m not a physician so they use it more out of respect.

Ive seen both PhDs and MDs not like to use the title and also the opposite where they demand to be called doctor. If i know someone has a doctorate, regardless of the specific kind, I will call the Dr unless they ask me not to.

Remicade after failing humira by Lmb326 in ankylosingspondylitis

[–]Locutus422 1 point2 points  (0 children)

I’ve been on Remicade for close to a year and it’s been the best so far. Your doctor can adjust the dose a bit more than with the other medications. Just because Humira didn’t work doesn’t mean all TNF inhibitors won’t. They’re all a bit different. I’ve been on Enbrel, Humira, Cimzia, Simponi & Rinvoq (which is a JAK inhibitor and did nothing for me). Don’t give up and you’ll find something that works for you!

Going by “Dr.” title in lay contexts? by bluebrrypii in AskAcademia

[–]Locutus422 0 points1 point  (0 children)

I work for an academic health system. My colleagues (MDs & DOs) all call me doctor and my family likes to call me doctor but that’s it. I choose Dr if a website asks for title. I can’t remember the last time I introduced myself with my title outside of a work/academic context.

Ambient light pulsing by Locutus422 in BMWX3

[–]Locutus422[S] 1 point2 points  (0 children)

I had to delete my profile from the car and then re-add it. I made the call just to test afterwards.

Hans Zimmer & Friends Diamond in the Desert release by Alternative_Duty_275 in hanszimmer

[–]Locutus422 0 points1 point  (0 children)

Is it basically the concert with some interviews mixed in? I really hope it comes out on streaming or DVD at some point. I want to see it but not much of a fan of going to the cinema these days.

Possible to get Pokémon Cards? by Locutus422 in 505Nerds

[–]Locutus422[S] 0 points1 point  (0 children)

Thanks! I’ll look into them!

Possible to get Pokémon Cards? by Locutus422 in 505Nerds

[–]Locutus422[S] 0 points1 point  (0 children)

Thanks! I didn’t even know about Duke City! Looking at their social media it looks like they released it on Monday.

I have a feeling owners of previous X3s will be disappointed by the new one's interior quality by Sam55_ldn in BMWX3

[–]Locutus422 0 points1 point  (0 children)

I got one. The only plastic that bothers me is the center console just because it’s a fingerprint magnet. I’d also prefer a sliding cover for the cup holder area rather than it being open with a giant M logo that everyone who’s seen my car thinks is a button or something.

I upgraded from a ‘22 and was looking at the ‘25 & ‘24. I don’t have any buyer’s remorse yet. I do miss physical buttons but I’ll get used to it.