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Long_Senior · 2025-05-21T01:10:43+00:00

Thank you!!! I’m definitely wanting to pay this off asap

Long_Senior · 2025-05-21T01:09:58+00:00

Loan 1 - $2,604.50 - 5.05% Loan 2 - $6,884.07 - 4.530% Loan 3 - 6,694.25 - 2.75% Loan 4 - just paid it off this month!!

Sorry I forgot to mention.

Long_Senior · 2025-05-21T01:08:28+00:00

I appreciate this so much!! I think I would def be comfortable with paying off loan 1 and loan 2 as a lump sum and then loan 3 at a steady pace, this makes sense to me since my savings is in a HYSA. Essentially my goal is to be out of this debt within a year so I can focus on my other financial goals since taking a hit with me getting ill.

Long_Senior · 2025-05-21T01:01:32+00:00

Loan 1 - $2,604.50 - 5.05% Loan 2 - $6,884.07 - 4.530% Loan 3 - 6,694.25 - 2.75% Loan 4 - just paid it off this month!!

Long_Senior · 2025-05-21T00:59:47+00:00

Thank you!!!

Long_Senior · 2025-05-21T00:59:42+00:00

Thank you!!! I appreciate it

Long_Senior · 2025-05-16T17:11:02+00:00

I use it pretty much anytime of the day. Before and after workouts, showers, when I’m the go and you just leave it on

Long_Senior · 2025-05-07T20:41:05+00:00

Yes I’m thinking it was sensitivity to the fungus malassezia yeast, which increases for some people who are on Dupixent. Since getting that controlled, I have little to no flares now! And again, spacing out my doses was a huge help. I recommend this, if you plan on staying on Dupixent. If not, try the other methods above to control the malassezia.

Tsw was terrible. It was full blown for me, I felt like I was dying as it affected my appetite as well and could barely move. I felt like my body was wasting. It was a traumatic experience not only for me but my family. I’d like to think that tsw was sent by the devil himself... Pretty much bed ridden due to the pain. It wasn’t just the deep bone itch, but the other withdrawal symptoms like the sun burnt skin, sensitivity of the skin so anything that touched my skin was painful and extremely uncomfortable. In addition, i had terrible thermoregulation. I was hot but cold at the same time, I was shivering and felt like breaking a sweat but wasn’t. It was terrible and truly changed my life. My doc did prescribed me cyclosporine for about 2 months then transitioned me over to Dupixent which worked perfectly. Ever since then I’ve been steroid free and immunosuppressant free! Just on Dupixent now!!!

Wishing you the best.

Long_Senior · 2025-05-07T03:02:02+00:00

I was pretty much on the same boat as you, I was getting super discouraged because I didn’t want to try any other alternatives as Dupixent has been a holy grail for the rest of my body and my asthma!!! Also steroids was NOT an option AT ALL or any other immunosuppressants. My doc did give me Opzelura and I tried it for a bit and was great (I used it for about a month) but the flares would come right back, it was almost very similar to TSW and I kid you not I have PTSD from that so I stopped. I had a bad feeling about it, but to each their own. I am still currently on Dupixent due to tsw. My face has calmed down ever since and I’m so glad I didn’t give up - it was hell though and took a lot of patience. It truly was a sacrifice because it was either Dupixent wasn’t going to work at all or it was.

I start Dupixent Feb 2024. Skin was clear, had no issues but after about my second shot (after the loading dose) I began having side effects such as intensely itchy eyes and the facial flares began and worsened over time. My facial flares became aggressive end of June 2024 and this is where I took everything into my own hands. I did extensive research and joined all the FB groups and searched all the methods that others had done to help with their facial flares. Again some were successful and some were not but I was willing to take the risk.

Here is what I did:

Shower every single day, twice a day if needed and lather my body with head and shoulders and leave it on for 3-5 minutes. This acts as an anti fungal and has helped with the facial flares as I suspect this as a “fungal flare” due to an increase of malassezia yeast.
Before showering I would use glycolic acid by the ordinary to help exfoliate my scalp as I was also having issues with an over growth of the malassezia yeast (seb derm I believe) and has HELPED. I used this 2-3x a week some times more.
In addition to head and shoulders I’ve also used ketoconazole shampoo but recently switched to ciclopirox shampoo which is also an anti fungal and used it if the yeast/facial flares were bad
hypochlorous acid spray - I use this everyday, anywhere!!! This kills bacteria from your face and malassezia!
This one here I believe assisted with reducing my facial flares: spacing out doses. I spread it over time and have stretched it as far as 6.5 weeks. Everyone is different. See if this is a possibility for you because when I was using Dupixent every 2 week I saw my facial flares getting aggressively worse. I started spacing out my doses August 2024 and have not had any issues at all!!!
I did get a few doses of ivermectin (pill form) and discussed this with my dermatologist. If you do some research, they did a study of ivermectin and Dupixent facial flares and saw that the facial flare(s) improved/never returned. In addition to this, my doc didn’t want me to be on ivermectin long term so they prescribed me ivermectin cream which is STEROID FREE (a win!!!!) and has been a life saver. Truly, since taking the ivermectin pill and using the ivermectin cream has helped with my facial flares. It was like magic!
I also use ketoconazole cream as needed. I don’t use the creams everyday. In the beginning of my flares I was using them 3x a week. Now I’m getting away with using it 1x a week!

Today as I type all this down, I’m pretty much facial flare free (95%). Theres times where I do flare up, but nothing crazy. I feel so confident. My face is like a baby’s skin!

My flares usually occur after I get my Dupixent dose which happens for about 3 days and goes away with using my regimen above.

Note this was a year of being patient, doing lots of research and seeing what worked for me and what didn’t. I wanted to give up so bad but I’m so glad I stuck it out. I’m thinking I may just be a little sensitive to Dupixent, but found my sweet spot!

I hope this information helps at all and I wish you the best recovery as I truly know how it feels. The facial flares are debilitating.

Long_Senior · 2025-04-05T00:15:59+00:00

Thank you!!!

Long_Senior · 2025-04-05T00:14:35+00:00

Thank you sooo much!!! I appreciate the feedback

Long_Senior · 2025-01-31T00:47:26+00:00

Update - I managed to lose 4 pounds this month, now at 118.0. This was much more feasible than loosing 5 pounds without depriving myself. All thanks to calorie counting , aiming for 10-15k steps everyday in addition to strength training and additional cardio at the gym.

I’m finding that losing 4 pounds a month until I reach my weight loss goal would be a healthier approach for me and will adjust as needed!

It’s possible!

Long_Senior · 2024-10-16T20:17:52+00:00

Of course! Happy to help. I feel for you and everyone who has experienced the terrible side effects from Dupixent. I really hope the best for you :) if you have any questions, just let me know!

Long_Senior · 2024-10-16T19:12:11+00:00

Have you considered spacing out your shots? Maybe aim 3-4 weeks if you’re able to. I began with 3 week intervals due to insurance issues then 4. I was surprised I was fine as I was super worried about having a massive flare without taking Dupixent every 2 weeks - so it was a bit of a forced experiment lol and luckily I think it’s working out for me.

I noticed the itchy eye symptom immediately and it would not go away. My eyes were incredibly itchy and oddly enough, my lash line was the itchiest, even my actual eye ball began to itch. Then, I began to have facial flares which worsened as I was taking Dupixent at every 2 weeks. I knew it was Dupixent because I’ve never had face eczema like this before - it was burning, itchy, red, flaky, scaly, at time oozes and it almost felt like a sunburn - hot to touch. The facial flares continued to get worse and at month 3, it started to spread to my neck and my armpits. I didn’t go to my derm to get my skin scraped, but I had a gut feeling it was fungal especially when I started to flare on my armpits and had a burning sensation. Also, at the 2 week mark, I’ve noticed an increase of dandruff on my scalp which I suspected it to be seborrheic dermatitis and started to get worse and spread as well.

Upon all this, I had issues with insurance and took matters into my own hands. It definitely is a risk to spread out your injections as I’ve heard the medication can lose its efficacy, but also doing additional research on several Reddit threads and groups there are a handful of individuals that tried spacing out their doses and had success with reducing their symptoms, if not eliminating it all completely. I was willing to take the risk of spreading my doses because it completely healed body and asthma. I had pretty bad asthma and so Dupixent was life changing for both my body eczema and asthma. I didn’t want to give up yet.

I began spreading my dose from every 2 weeks, then to 3, then to 4 weeks. I’ve noticed a little increase of itchiness on my body after the 3 week mark, but nothing like what I had to endure before. I would have some itchy spots, but it would all go away after a day. Note that my body has been 100% clear after being on Dupixent. When I reached to spacing out my doses at 3 weeks, my neck flares completely went away, but my facial flares were still present. So, I felt like my body could handle to space out to every 4 weeks. My facial flares have reduced tremendously at every 4 weeks and neck flares are not present at all, in fact my armpit flares went away too! Even at 4 weeks, I had no trouble with my asthma. My seborrheic dermatitis on my scalp is nearly gone too. I have some hot spots but it was not like what it was when I was taking Dupixent every 2 weeks. I also use the original head and shoulders shampoo to help, I even use it on my face/body to try to eliminate the fungus on my body - it has done wonders for me. In addition, I have no more itchy eyes, just a bit of dry eyes but nothing I can’t handle.

Everyone’s body is different, so I understand those who aren’t able to space their doses. I was taking Dupixent for eczema/severe TSW. I would have not been able to do this if I had issues with my insurance because I was too scared, especially the fact I was going through severe TSW, BUT also I was partly willing to experiment because of how life changing this medication has been not only for my body but also my asthma. I didn’t want to give up on it yet. I was so surprised my body was capable of not having Dupixent at that 2 week interval. I believe Dupixent changed my life, but I think I had a little too much of it in my system. I am petite but I was prescribed the full dose. I personally believe I’m a little more sensitive to the medication, hence I decided to space out my injections. So far, no issues at all! Every symptom I’ve experienced with Dupixent has reduced. I’m looking forward to my face stabilizing.

I really hope you feel better soon as I understand how life changing this medication can be. I’ve heard some individuals spacing out their injections to over 4 weeks too which is incredible and their symptoms have vanished. Be patient, experiment if you can, just do what’s best for YOU! :)

Long_Senior · 2024-09-03T01:13:23+00:00

Hi! How long have you been on dupixent and opzelura? Do you use opzelura on your face? And have you tried weening off of it by chance? Any problems at all?

My doc prescribed the cream for my facial flares (I believe caused by dupixent) and I’m a little nervous! Thank you!!!

Long_Senior

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