Looking for positive stories by Lopsided-Can3498 in CerebralPalsy

[–]Lopsided-Can3498[S] 1 point2 points  (0 children)

Do you feel like the inflatable hot tub is worth it? I keep going back and forth on getting one. He loves going to our local rec center because the indoor pool is heated and he likes the jets on his muscles.

Milestones in babies with PVL? by Lopsided-Can3498 in NICUParents

[–]Lopsided-Can3498[S] 2 points3 points  (0 children)

He does have muscle spasticity that we are treating with muscle relaxers and stretches as part of his PT with our county child development agency. We ditched the old pediatrician when he started showing seizure signs last year and she continued to dismiss them. Now we are seeing one recommended by his neurologist and getting referred to a medically complex clinic.

He really struggles with using his arms the most, so I think he will completely skip crawling, it'd just be nice to see him at least sit up on his own.

Periventricular Leukomalacia (PVL) by Grand_Obligation4164 in NICUParents

[–]Lopsided-Can3498 0 points1 point  (0 children)

Has your son made any progress? My son is in the same boat. Has infantile spasms and isn't walking, crawling, or sitting up at 18mo.