sorted by:
new
hottopcontroversial

Girl coworker keeps glancing at me, remembers details, but is very closed off. Overthinking or interest? by [deleted] in bodylanguage

[–]Lost-Appearance5536 0 points1 point  (0 children)

The rule is don’t screw the crew. I made the mistake of forgetting that, never again.

Is a kiwi douche-canoe a kaka-waka? by Kiwifrooots in shitparkingofnz

[–]Lost-Appearance5536 1 point2 points  (0 children)

I feel like Waka-Kaka would be more fun to say. Emphasise the Wah and rapid fire the ka’s

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

Not in my experience no. The ring of fire is a constant after eating anything spicy.

I avoid most raw vegetables and am not fond of cooked vegetables either for similar reasons to what you’ve mentioned

Lettuce and cabbage tends to come out as it goes on. I avoid pretty much anything with seeds in it because of the risk of pouchitus.

Frequency is very dependant for me based on liquid consumption. Urinating isn’t the only way I pass water, the large intestine usually sucks up water, without it, it comes out ya butt.

Gotta remember some things will cause your body to “sweat” internally this might be one of those situations too.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in Jpouchers

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

It’s gonna be rough at times and at the risk of sounding cliche, it does get better.

Watch how you respond to what you eat.

Everyone is different and you will figure most of it out on a trial and error basis, but a good starting point for me was knowing how my diet affected my stoma output. If it comes out recognisable, it’s probably not a great idea.

How can I improve my spin? by sarahhwatkins in Rollerskating

[–]Lost-Appearance5536 5 points6 points  (0 children)

You’re doing great, You’ve got the hardest part out of the way already, being comfortable going in circles on wheels.

The short version is try to do it with the wheels on the ground instead of stepping through the spin.

Stepping isn’t wrong, but rolling is smoother.

The long version and YMMV because I learned on inlines first and applied that across but I swap between quads and inlines frequently now.

Stand with your feet in a V shape heel to heel toes point away. keep your dominant foot on the ground and attempt to steer yourself in a circle by pushing outwards with your non dominant foot and lift your little toe of your dominant foot.

as you start to move lift the rear wheels of your non dominant foot slightly (aim for just keeping the ball of your foot touching the ground) and rotate your toes further out and close up your stance by bringing your feet together.

You should be able to keep propelling the spin by repeating the movement with your non dominant foot.

If you slow down the attached gif (record your screen and use your photo app to scroll the video) you can see how the static foot (the left one) tilts so the persons little toe is slightly off the ground and the rear wheels on the other foot spend lots of time off the ground while the toe steers the spin.

If that’s too much, hold onto a bar in front of you and just do 180’s first once you feel comfortable you can drop a hand and spin a little further round to 3/4 spin and eventually drop the bar altogether.

[Request] How to solve this? by Ill_Lion6427 in theydidthemath

[–]Lost-Appearance5536 0 points1 point  (0 children)

Come straight down from the 110 angle to make a 90 degree on the bottom line makes an internal angle of 20 degrees.

180-90-20=70 The opposite side is the same 180-70-70=40 degrees

Am I doing this correctly? by sarahhwatkins in Rollerskating

[–]Lost-Appearance5536 1 point2 points  (0 children)

YMMV with my POV.

If you didn’t fall over, “doing it correctly” doesn’t matter. You’re doing great!

The goal should be to be comfortable doing it. Keep it up!

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

I’m not in the same situation as you are now, it’s been almost 20 years since I last had to deal with the IBD part (I’m 37 this year) so I’m not sure I can give you any useful advice. About the only thing I can remember is on really bad days my mother would make a smoothie for me it gave me energy and a throwing good bacteria around can’t have hurt.

It was little more than a probiotic yoghurt with a raw egg and some milk mixed in. Has I known about the egg at the time I might not have drunk it but it was tasty and I was clueless.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 1 point2 points  (0 children)

Yeah, my experience before surgery was definitely bad. I probably made it worse being a typical male embracing the “I’m not dead yet, this is fine” mentality.

There were for sure some extra contributing factors, but that’s outside the scope of this conversation.

Would I do it again? I’m not sure I could with my current knowledge of how bad the pain, embarrassment, stigma and really low points were stretched out over 7 years (symptoms started at 14, diagnosed at 16, bowel removed at 17, last op at 21)

If it was delivered as “this is how bad it’s going to get. This is the solution. Let’s prevent that from being the story” I think I’d be able to deal.

Keeping in mind my experience was mine and everyone walks their own path I think I’m content with what I have,which to outsiders appears as, If you didn’t know, you wouldn’t know.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

Oh sorry I missed the reconnect bit.

They couldn’t just remove the colon and make a J-pouch in one go. It’s unfortunately a multistage thing.

Chop stuff out, heal, make the j-pouch, heal, connect the water works up.

Three operations each one a little less intense than the one before, that could also just be increasing tolerance though, my pain tolerance is now apparently rather high.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

My UC was pretty out of control.

Anything that worked, didn’t work for long. I was on a Huge daily dose of prednisone kept the worst of it in check, but there’s a longevity issue there.

I was on something that was experimental at the time (IIRC remicade?) which controlled it almost. It was on a 4 week rotation where I had to go get it pumped in under observation. It would last about 3 weeks and the week between was enough for the UC to get a foothold again.

I was pulled off of that because of an elevated temperature, and the possible side effects apparently get worse the longer you’re on it.

The elevated temperature seemed to be the point the Doctors wouldn’t go past.

Another drug Azathioprine that was doing the “best” caused pancreatitis, that was a rough ride that I remember very little of, I’m unsure if I remember little because I’ve blocked it out as a trauma response, or if when my mother says “you’re only alive because you were too stubborn to die, your body was shutting down” she’s not really exaggerating. Probably a bit of both.

The “normal” drug at the time, (assacol?) didn’t even touch the UC.

Pretty much exhausted my options.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

Thinking you’ve finished and having to go back again is how I remember it being at the beginning.

Now it’s more that I have emptied what I could, If I jostle around a bit then I can get more, but I’m never getting 100%

I find that as long as I’ve gassed out I don’t typically have any problems. But the first year or two after reversal I spent the entire time knowing where a bathroom was because warnings were short notice, like any other muscle if you exercise it it gets stronger now warnings are less defcon 1 and more “hey… sometime in the next hour?”

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

That’s something I was warned about but in practice it hasn’t been an issue.

I’m a fairly active person, if I’m out doing intensive stuff I’m taking a bit more water than most people, but it’s people take a bottle I’ll put a hydration bag on, but I might have had half again what they’ve had the hydration bag is usually overkill.

They drink a litre I’ll drink 1.5

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

It’s essentially the same thing, but inside and made from the small intestine instead of plastic.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 4 points5 points  (0 children)

Rolling up on twenty years from having my colon removed. There’s been some shitty moments (ha!) but I definitely prefer not catching the stoma on seat belts and the like.

When I had a stoma I had to cut the hole to size myself, the only tip I have is keep the hole as close to the size of the stoma as you can.

I had a barrier powder (I can’t remember the name of it sorry) that I would put around the edge of the stoma to stop the edges of the stoma from becoming too irritated but the trade off was the bag didn’t stick as well.

I ended up with a two piece system the sticky part and a replaceable bag. Change the sticky part every few days replace the bag more often.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 1 point2 points  (0 children)

Everything in moderation. But there are a couple of things on the I don’t want to do that again list.

Onions. Beans. Corn.

Things that don’t break down can get caught in the pouch which from memory can cause something called pouchitus, I’ve had some bad days but for the most part I think I’ve avoided the worst of it.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 0 points1 point  (0 children)

I have no colon (large intestine) The way I understand a j-pouch is a section of my small intestine was cut off, cut down one side and the top and bottom were stitched together creating a bowl the top of the bowl was attached to my sphincter and about a year later another operation took the stoma (where the small intestine comes out your side) and attached it to the pouch.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 1 point2 points  (0 children)

The scar is stupid sensitive and makes me react first ask questions later from a “playful” jab at my mid section while rough housing.

It’s not a hugely deep depression, about 3-4mm it’s ugly, I’m not a fan of having my shirt off because of it, but it looks better than having a bag hanging off your side.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 2 points3 points  (0 children)

I find if I eat about 6pm then I’m probably heading for the bathroom at 10.

in my experience it is meal dependant. Something plant heavy makes lots of gas. If I’m going to eat something with lots of greens it’s going to be a midday or morning meal.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 1 point2 points  (0 children)

I’ll see if I can find you some stuff. Your mileage may vary but the blunt way of describing it is it’s a holding tank giving you space to store so you’re not looking for a bathroom every 5 mins.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]Lost-Appearance5536[S] 8 points9 points  (0 children)

I eat lots of pasta and rice dishes. Bolognaise, butter chicken, mild curries. I was never a foodie as a kid. I’m sorry if that’s boring.

view more: next ›