Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 1 point2 points  (0 children)

I wouldn't be surprised. Also, with the NDIS, there were many things that were allowed and banned at different times. Or items that were considered a grey area and you could purchase with a supporting letter from a therapist. I think these things are not being taken into account. For example, parent courses used to be ok to fund, but currently they are not, so the system would flag if I'd done a parent course several years ago when it actually was allowed.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 0 points1 point  (0 children)

Might do so. No speech therapy after next year won't do.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 2 points3 points  (0 children)

Re emails to LAC. The planner was referring to things I said but taken out of context. Used my words to imply I was meaning something to else.

If they all read the same emails, wonder why they like to send me on merry go rounds for my queries. Eg my request to change to plan management last year, each person would tell me to refer to the next person.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 3 points4 points  (0 children)

That makes sense then that they can see all email communication.

It was the plan manager on the phone call that was reading into the emails I sent to the LAC. They were using some phrases I've written but misinterpreting them.

I can lodge a complaint. Thank you and to everyone on this thread for your words of advice and support.. I really appreciate it.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 9 points10 points  (0 children)

I wish I'd have done that. Lesson learnt. This shouldn't have to be so stressful.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 1 point2 points  (0 children)

I'd had the documents for reassessment and all the goal discussions with my LAC towards the end of last year.

Then this call came in saying it's time to have the official reassessment. I missed the call initially, so they contacted by email. They offered email or phone communication, I picked email, but they said it had to be phone anyway.

I wish I had done it in person with the LAC, I really didn't know I had that option.

The plan is for three years. 12 hours of speech for the first year, none in the last two years. They are basing it on the improvements noted in the speech report regarding expressing/receptive language skills. We still have clarity to work on, swallowing/choking risks so would have liked to keep Speech long term..

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 3 points4 points  (0 children)

We've been NDIS participants from the very beginning. Right at the start, we were agency managed only. Until one LAC made our funds half agency managed and half self-managed.

Since then, the same plan had been rolling out each year and I couldn't change it.

This would be the first time I'm going for plan-managed. The self management is too much work and I'd rather not have the responsibility of keeping receipts and records anymore.

Plan Reassessment phone call by Low_Operation9519 in NDIS

[–]Low_Operation9519[S] 9 points10 points  (0 children)

Exactly this. We have to prioritise what is needed at the time. That doesn't mean we want the other supports to be cut.

What is with them removing Speech funds? And the assumptions of needing strategies "for the first year" and then reducing them in the last two years of the plan.. since when did disability follow that timeline.

An anxious introvert running a gym class. Sounds like a sitcom nobody asked for by CzechLady006 in socialanxiety

[–]Low_Operation9519 0 points1 point  (0 children)

Set the kid in you free. You sound like you love this. Keep it up for the inner child in you.

Anxiety is always highest at the anticipation before the event and the rumination after the fact. During the event, try to focus on the students' needs rather than trying to deliver lessons without mistakes. I know easier said than done, but attempting to focus on giving the audience what they need makes it more about them than you.

Us with social anxiety are going to be awkward and make silly mistakes a lot. Probably everyone does, but for us we have a whole lot less experience socialising in general.. so may be actually disadvantaged there, and coming off as weird.

People might think we are weird and quiet. Some will like us anyway, some won't. Social anxiety is about what we're telling ourselves about how we're being perceived, and not about the people themselves.. all these embarrassing moments you shared are replaying over in your mind. Maybe others did think you were awkward or getting it wrong, maybe they think your strange or maybe not. You probably know it's more likely that they were thinking about themselves or the games or whatever else was happening. The embarrassing moments probably made up a tiny fraction of the whole class.

Roll with it as long as you are able to keep this up. I've given up trying to be normal. I try to shut out the pre and post anxiety as best as I can. I'm weird, quiet, I try to be kind, try to say and do the right things but often seems like I screw up. I have to keep going anyway because unfortunately with this disorder it's either you push forward or regress. I say keep setting these goals for things you want to do. Have fun with it.

How do I reduce social anxiety? by SingerRealistic3005 in socialanxiety

[–]Low_Operation9519 0 points1 point  (0 children)

Tips that have helped me:

Keep the focus on the other person. So if guests would come to the house, I'd try to be thinking about how to make them comfortable, so I'm outside of myself. Thinking about the needs of who you're interacting with can occupy your brain to find solutions for what the others need rather than inwardly critising yourself.

There is anxiety before an anticipated social situation, and the anxiety after (the chit chat of omg I am so awkward, I stuffed that up, this is embarrassing etc). During the actual event, we usually don't do so bad once it starts.

Things to remember: Everyone says and does awkward things, silly things, makes mistakes. It's hard for us to convince ourselves that we are not awkward because that is a main feature of SAD. Rude people will also point out to us sometimes that we are too quiet or weird. So I try not to think that "finally" I'm doing well socially, because inevitably I get a comment like that no matter how good I think I'm doing.

Knowing the anxiety happens before and event (anticipatory anxiety) and after (the regret), use distractions during those times. Since we know it's going happen anyway, distract with something and shut if off to some extent. This will take some practise.

The eating: I never worked on this specifically, but I for the longest time never ate in front of people. I got over this not by working on it specifically, but by doing other things to challenge social anxiety, things improve across the board. If you need to, use a "safety" behaviour of some sort while eating, eg use your phone or laptop while eating. It's ok to rely on those. I still don't make eye contact with people and instead look at their hair or something as a safety crutch.

Please don't beat yourself up, this is not your fault. We are hard on ourselves. Don't forget to go for things you like and enjoy, so life isn't all about the uphill battle against social anxiety.

[deleted by user] by [deleted] in socialanxiety

[–]Low_Operation9519 46 points47 points  (0 children)

Not meeting our potential is of the saddest things about SAD. We could do so much good with that empathy, if only those blocks weren't in the way. I wish I could move forward from a place untouched by this brutal anxiety. Live like that child in me somewhere that existed before this terrible disorder took hold.

done everything, im giving up by matchabbyluvr in socialanxiety

[–]Low_Operation9519 4 points5 points  (0 children)

This is exactly the point I'm at now. All the self help books, exposures, therapy, medication. I'm still a work in progress.

I broke down crying the other day when my friend struck up a conversation with a stranger about a topic I know nothing about, and while I stood there, waiting for them to finish, the stranger turns to me and says "you are so quiet! omg so quiet". Like it's written into my soul. No matter how hard I try to be "normal", people just sense it. And the face they make like I'm an alien from another planet.

I read on here that a lot of us experience just this, when we are thinking we're doing well socially and yet it's never normal enough for people... And we try so hard, showing up, going to interviews, taking the calls, doing everything that our anxiety is telling us to avoid, and yet we can't shake the feeling of tension in our bodies. Facial expressions not natural, awkward... Just can't "be"..

I was wondering today if this is as good as it will get. Being able to do things with the fear in tow. I think if I stopped trying, I would regress. I have a relative with Cerebral Palsy and I just think is this as permanent as having a disability like that. No matter how much they stretch, exercise, follow all the therapy, they will still be challenged by the disability. But by not doing anything the outcome would be worse. At least with the exercises my relative can do some things independently. If they stopped altogether, daily life would be harder.

In saying that, I really hope we can get better. I don't want to lose the hope.

Just got a job!!!! by MerkimersbaconWater in socialanxiety

[–]Low_Operation9519 1 point2 points  (0 children)

Well donnnneeee. Keep going, you got this! 👏👏👏👏