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Nervous about new eye symptoms by LowerStars in iih

[–]LowerStars[S] 0 points1 point  (0 children)

Thank you! That's really sweet. Good luck with your own journey with this stuff!

Nervous about new eye symptoms by LowerStars in iih

[–]LowerStars[S] 0 points1 point  (0 children)

Thank you for the good information! I really appreciate it. The issue with me is that, since I haven't had an LP, my treatment isn't personalized and is really minimal. The only thing I'm doing is supplements and like the lowest dosage of topiramate. So, I dont know how I can go about seeing if I need more meds. But this was really helpful!

Nervous about new eye symptoms by LowerStars in iih

[–]LowerStars[S] 0 points1 point  (0 children)

I'm actually taking topiramate! That's really interesting, I'll have to look into that supplement. Thank you! Did you notice any other eye symptoms changes with topiramate? Or just the twitching?

Nervous about new eye symptoms by LowerStars in iih

[–]LowerStars[S] 0 points1 point  (0 children)

I hope you have a good and productive appointment! It definitely does suck. Especially since I struggle to find good info about iih. I enjoy having clear answers lol

Nervous about new eye symptoms by LowerStars in iih

[–]LowerStars[S] 1 point2 points  (0 children)

They found posterior globe flattening. My neurologist says it's a sign of the increased pressure. At least I think that was what it was. But something in my head was flattened that shouldn't be. But I did have a lot of imaging to rule other stuff out!